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- By Julie Wycoff
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About the Artwork
“Five years of life; five years of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID. Five years of joy; five years of suffering. Five years of living; five years of placeholding. The top row is a representative sample of ages seventeen through twenty-one, and the bottom row ages twenty-two through twenty-six. Built on decades of neglect of ME/CFS.”
Julie Wycoff is a former engineering student turned mostly bed-bound, severe ME/CFS patient advocate for people living with long COVID and ME/CFS. Her advocacy focuses on the current and historic underfunding of research and the neglect of those conditions, their sufferers and other infection-associated chronic conditions (IACCs). She hopes to regain enough function to resume her studies, but until then is enjoying having improved enough to spend some time gently working on art.
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