fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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About the Artwork

“Five years of life; five years of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID. Five years of joy; five years of suffering. Five years of living; five years of placeholding. The top row is a representative sample of ages seventeen through twenty-one, and the bottom row ages twenty-two through twenty-six. Built on decades of neglect of ME/CFS.”

Julie Wycoff is a former engineering student turned mostly bed-bound, severe ME/CFS patient advocate for people living with long COVID and ME/CFS. Her advocacy focuses on the current and historic underfunding of research and the neglect of those conditions, their sufferers and other infection-associated chronic conditions (IACCs). She hopes to regain enough function to resume her studies, but until then is enjoying having improved enough to spend some time gently working on art.

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