fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Kids Always Know

This is a story about failures. First, it’s about my inability as a pediatric hospice physician to do the one most important job in this tender space. Second, it’s about well-meaning, loving parents’ inability to do their part in that job.

Jacob was a smart, funny, elementary-age kid, great with Legos.

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Your First Summer On Earth: A Letter to My Baby

Your first summer on Earth was the hottest ever on record. I was admitted to the hospital during a cold, early spring, and by the time you were released from the NICU on Easter Monday, it felt like summer already. I had visions of spending full days outdoors, encouraging a love of nature from the very beginning, but it was impossible to spend time outdoors after 9:00 a.m. without both of us overheating.

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The Vital Sign

The other day, our air-conditioner went out. We live in Austin, Texas, so the house quickly became an oven. Opening the windows and turning on fans didn’t help, since the outdoor temperature was over 100 degrees F.  The situation was not just an inconvenience—it required urgent action. We were able to get the air conditioner fixed, but it was expensive. We have resources. Others do not.

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The Toll of Caring

Maybe I can adopt her?

This thought awakened me from my sleep. Earlier in the day, I had treated a little girl, Carla, who was brave enough to tell me about the horrible abuse and neglect she’d suffered, and whose skin and bones were ravaged with injuries that silently told the same traumatic story. Recalling these details, which I had carefully documented, I understood that I’d fulfilled my professional role, but wondered if I could do more.

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Memory

“Sure, it’s not like I’ve got a busy day.”

The tiny woman with translucent skin smiled up at me from her hospital bed. Finally, I’d successfully recruited another study participant. But, she informed me, “No research should be done without proper introductions.” The woman before me shook off her role as Participant #14 and became simply who she was. Let’s call her Eleanor.

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