fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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January 2024

The Quest of a Lifetime

Editor’s Note: This piece was awarded an honorable mention in the Pulse writing contest, “On Being Different.”

From a young age, we’re encouraged to stand out—to be who we truly are and to be proud of that person. We strive to understand both our strengths and our weaknesses. In doing so, we’re driven to move forward, knowing we’re doing our best. But sometimes we get stuck in a rut and can’t find our way. That’s where my story begins.

In the mid-Seventies, at age sixteen or seventeen, I was diagnosed with a genetic disorder called Klinefelter syndrome. There were no computers or internet, which meant no easy access to medical knowledge. Living in rural Northern Michigan complicated matters further. Our small town had no medical specialists, and medical journals at the library became my sole source of information.

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Still Standing

Just before I attended my writers’ group meeting, I tested myself for COVID. I’d been congested and coughing, but I was negative. Even so, my husband slept in the spare bedroom that night because of my cough.

The next day, I got up as usual. In the bathroom, I noticed my forearms were tingling—not unexpected for someone like me who has MS, but the location was new and the sensation a tickle rather than the typical burning. I felt different, too, so I checked my blood pressure. It was low, even for me. I shrugged it off. Typical nurse.

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Facing the Unseen

My very first close encounters with death were in the COVID ICU. I had just completed my final year in medical school and had entered my rotatory internship. The first two months of my posting were in internal medicine, and almost all the patients were COVID patients. The very first unit I was assigned to was the COVID ICU—a place where death was a constant presence. As a doctor who had chosen this profession to save lives and help people, I found it disheartening to be surrounded by death; it contradicted all my aspirations.

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Burnt

You never forget the smell of charred human flesh. It permeates your skin, your hair, your nose and your mind. It never leaves. You may try to describe it, but there is no equivalent. Not barbecue, not melted plastic, not wood; the smell of the flesh of a once-living human being stands on its own. Even after thirty years, my mind holds the smell in its broken places.

They said it was a Molotov cocktail thrown into the house because of a drug deal gone bad. The man who was the target jumped out a window and left his girlfriend and children behind. The fire consumed everything.

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My Homage to Palliative Care

As a medical resident, I found there was something about working on the hospice unit that gave me the urge to wander, to slow down; to put away my stethoscope and truly connect with those around me.

Perhaps it was the peaceful, almost hypnotic melodies of the in-house pianist lulling me in a trance-like state, awakening my curiosity. Her music floated sweetly through the halls, following my path as I drifted, lost in reflection. Perhaps it was the towering windows looking out on the lush garden; on many afternoons, I’d gaze through their panes, watching the soothing winter downpour. It was my own personal sanctuary amid the pervasive atmosphere of grief and loss that hung over all.

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Silenced

Editor’s Note: This piece was awarded an honorable mention in the Pulse writing contest, “On Being Different.”

As a maternal/fetal medicine specialist for twenty-four years, I’d always felt that speaking to my patients, peers and the hospital staff was one of my God-given talents. I’m very good at giving bad news to expectant parents about their fetal diagnosis—or I used to be.

All of that changed six years ago, when I had a thyroidectomy for thyroid cancer. During the surgery, both of my recurrent laryngeal nerves were paralyzed, and so both of my vocal cords are paralyzed.

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Long Grief

There used to be much to do. Reciting the Mourners’ Kaddish daily. Making phone calls, waiting on hold, filling out forms, managing the estate. Sorting and donating Dad’s personal goods. Answering panicked phone calls and texts from my mother. Explaining my status as a mourner—taking a year off from dancing at celebrations, declining blindingly joyous events that chafed against my mourning soul. Responding to friends checking in. Processing feelings. And marking all the “firsts”—first Thanksgiving, first Father’s Day, first birthday—without Dad.

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Under the Microscope

I was walking into my kitchen with an armful of groceries when my cell phone rang. It took a second to register the caller’s name: Dr. James. The surgeon I’d met two weeks earlier.

I wasn’t expecting this call. My biopsy had occurred only a few days ago, and I’d been told that, because of the Christmas holiday, the results would be delayed.

Why is she calling?

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