fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Invisibility

The glass doors yawn open, first one set, then the other. They don’t see me; they don’t hear me. They just sense me—automatically, electronically, a body approaching. It doesn’t matter my size, shape, or color. The doors don’t know whether I’m walking slowly or quickly; they don’t care whether I’m smiling or crying. They just blindly do their job, usher me in (and later out) of the building. Another patient, another day. 

Three women sit at the reception desk. More glass separates the sick from the well. Masks make everyone look like no one. A hand reaches out to grab my parking ticket and stamp it. Cancer is the price you pay for free parking.

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A Haunting Disease

I never told my father that his physicians had diagnosed him with pancreatic cancer. Since he was ninety-eight years old, I decided that telling him would only cause him profound mental and emotional anguish—a fear that would diminish however long he had to live but would not alter the reality. To have Dad endure rounds of chemotherapy or radiation at his age would also be physically cruel.

Most of all, I did not tell Dad because not even the doctors were one-hundred percent certain of their diagnosis.

For months, Dad had experienced attacks that left him light-headed and disoriented. By giving him something to drink or eat, I was able to bring him back to reality. Although I told his primary care physician about these frightening episodes, he dismissed them as the concerns of an overly-emotional and loving daughter. Then, while leaving his office after a check-up, Dad had an incident in the waiting room; within minutes, a physician’s assistant had wheeled him to the emergency room.

A multitude of tests led to the rare diagnosis of insulinoma. When Dad’s blood sugar plummeted, he required sugar and/or protein to stabilize him. I had to wake him up every two hours

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Uniquely Me

“She plays with you when you’ve got no one to play with.” Those words were used to describe a young girl in a Sunday school class many years ago.

The adult equivalent of “not having anyone to play with” might be the experience of being in the minority.

Being a black female physician in the US, I am no stranger to this. It seems like I have been “in the minority” for the majority of my life. Those who don’t know me may be surprised to hear that I experienced “minority status” even while growing up in Nigeria. Not only was I a year younger than my classmates, I was also one of the few Nigerians in a boarding school where the majority of students were white North Americans. Later, I was the “American” in a predominantly Nigerian school. Decades later, as a “second career medical student,” I was on the other end of the age spectrum.

The only female in a group visiting a traditional ruler in Northern Nigeria during a year of national service, I wondered why I wasn’t offered a handshake along with my male colleagues, only to realize later that it was for religious reasons.

This perpetual

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Another Kind of Healing

Editor’s Note: In the midst of last summer’s COVID pandemic, medical student Jordan Berka interviewed patients at a Bronx family health center, collecting personal stories from its diverse community. Today’s issue of Pulse is the product of one such interview. Rev. Rocke’s words are her own, approved by her for publication.

My name is Reverend Hyacinth Rocke, and I reside in the Bronx. I was born in Barbados. My husband died a little while ago, and I also just lost my mom. I have three children, four grandsons and one great-grandson. I am an associate minister at Greater Centennial A.M.E. Zionist Church in Mt. Vernon, New York.

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Being Alienated Can Be A Catalyst for Improvement

Starting pre-med in 1948, my intention in becoming a physician was to learn how to be a healer. To learn how to relieve pain and suffering.

At that time, medical education viewed the physician’s role as a mechanic. Physicians were mechanics who fixed a malfunctioning machine: the human body.

My medical school professors “trained” us to be objective, to view patients through their separate parts, and never to view patients as  persons. With the benefit of hindsight and the autopsy table to uncover the pathology, they viewed the “local medical doctor” and “the local hospital” as second-rate.

My medical school professors marginalized the art and humanity of medicine. They did not treat their students as persons. They did not address the cultural aspects of health, such as racism, sexism and homophobia. They marginalized the palliative needs of dying patients. They failed to address the spiritual dimensions of sickness and suffering.

As a medical student, I felt like a stranger in my own land. I felt isolated.

After completing my training, I joined one of those “local hospitals” my medical school professors had disparaged. And it was at Morristown Medical Center that I discovered that I was not alone in wanting

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COVID Angels

I work as a registered dietitian nutritionist in a nursing home located in a New York City suburb, not far from the community that was the epicenter of the COVID pandemic in 2020.

For the past two months, I’ve also been a member of the COVID Angels, a group of volunteers who help senior citizens in Westchester County make their vaccination appointments.

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Final Appeal

“He basically killed me,” Sam said flatly, sitting my office. “I don’t want to talk to him.”

I nodded sadly with understanding as his on-demand oxygen hissed away each moment, like the ticking of a clock. Why would a patient want to speak to a doctor who’d missed his diagnosis? Why should he?

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