fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Stories

Love, Marriage and Parkinson’s

In 2015, while walking with my wife, Jody, in our neighborhood, I suddenly found myself bent over and taking tiny, rapid, repetitive steps. I knew I was moving too fast, but could not stop myself. Jody thought I was kidding—until the moment I fell down on a neighbor’s lawn.

A passing driver slowed down to ask if I was okay. I was all right, but thought the experience odd.

I’d never heard the word “festination” (a walking gait characterized by involuntary acceleration) until I saw a neurologist friend a week later.

Love, Marriage and Parkinson’s Read More »

Doing the Math

“I can’t do it—I’ll die!”

Veronica is in tears.

I’m a family physician, working in a pain-management clinic in the Bronx. As Veronica’s doctor, I’ve asked her to see me to discuss coming off her opioid medications. It’s part of a clinic-wide initiative to reassess using these medications long-term with patients who have chronic pain.

Doing the Math Read More »

What Do You Want Your Life to Look Like?

In the first months of medical school, we’re taught that patient autonomy should be one of a physician’s guiding tenets. The doctor provides diagnoses, prognoses and treatment plans, but ultimately it’s up to patients to make decisions about their own care.

As a family doctor, I often tell patients: “Only you can know what the right decision is for you. I’m here to provide information and recommendations and then to support your decision.”

But over the past year, as my father’s memory deteriorated and his life drew to a close, I learned about the ways in which our medical system limits patient autonomy.

During his last months, my father said repeatedly, “My brain is in chaos.”

What Do You Want Your Life to Look Like? Read More »

Caught in the Crossfire

I’ll call him Rocky. In a drive-by incident, his father was killed, and Rocky, age one, was shot multiple times.

His initial resuscitation was heroic—he received medicines to support his blood pressure, underwent emergency surgeries and was still attached to machines to support his breathing—but by the time I met him, the drama of his shooting had receded: He and his medical team had settled into a stable routine.

Though I suspect that the team had expressed their grief earlier on, I found this sense of calm jarring and unnatural.

Caught in the Crossfire Read More »

How Poetry Broke My Heart

On June 2, 2010, I was giving a poetry reading at the faculty club at Columbia University Medical Center in New York as part of their “Literature & Medicine” series. I still have the list of poems I read that day, poems that spoke of my work as a nurse practitioner. One poem described my examination of an abused woman; another recounted the experience of a young teen, raped by her sister’s boyfriend. Other poems concerned the mysteries surrounding death as well as the joys of healing.

Somewhere halfway through the reading, I developed what is aptly called crushing chest pain.

How Poetry Broke My Heart Read More »

Going in Peace

All too often in my forty years of practicing medicine, I’ve seen patients die hard, lonely deaths—lying on a stretcher under the emergency department’s glaring lights, or all alone in an ICU bed.

In extreme situations, the patient is covered in medical equipment: a breathing tube in the mouth, defibrillator pads on the chest, monitor leads on the torso, IV lines dangling from the neck and arms. When family members finally enter the room, it’s heart-wrenching to see them weep over their loved one, to whom they never got to say goodbye.

But it doesn’t always happen this way.

Going in Peace Read More »

The Last Gandy Dancer

After I retired, my wife and I moved, giving me a reason to go through my old files. I found the notes from this story scribbled on some scrap paper that used to be everywhere in our offices. “Keep good notes,” someone once advised me. These are good notes and a good story.

Thirty-five years ago I was on the faculty at the University of North Carolina in Chapel Hill and spent a lot of time traveling around the state.

The Last Gandy Dancer Read More »

One Big Stress Test

On Friday, February 29, my wife Mary and I had back-to-back doctor’s appointments at Kaiser Permanente in Moreno Valley—she to talk about a puzzling lethargy that had been dogging her and I to talk about an odd chest pain that I thought a remnant of the flu I’d had in late January.

Dr. McDougal listened to my heart and then listened to my description of the pain.

One Big Stress Test Read More »

An American Journey

I vividly remember sitting in the living room of my grandmother’s house in Piedra Blanca, Dominican Republic. The room had been cleared of furniture. Before me, a flower-filled casket held the body of a young girl—my sister Nelsida, age seven. She had died from an anesthesia overdose prior to surgery.

I was five. I will never forget the sight of the cotton balls inside her nose and ears, the ice under the casket and the scent of the flowers. And that beautiful pink and white dress she wore, with a tiara that was her favorite. In the next room, my mother and sisters were screaming in grief.

An American Journey Read More »

Father and Son

When I met Mr. Rosenbaum, age ninety, I’d been a physical therapist at the hospital for all of three months.

The nurse had propped up his scabbed foot on several pillows. Cushioned on them like a precious jewel, it extended over the bed’s end.

I introduced myself and asked if he’d like help adjusting his yarmulke, which was entangled in the nasal breathing tube slung around his left ear. He smiled at me, one eye wider than the other. I grinned back, reminded of my own grandpa.

“Are you married?” he asked.

Father and Son Read More »

Scroll to Top

Subscribe to Pulse.

It's free.