fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

R. Lynn Barnett

Lady in Waiting

I’ve been a “lady in waiting” more than once. A traditional “lady in waiting” attends to royalty—which sounds like a pretty cushy job. But when you’re a lady waiting for the results of a biopsy, the task is a royal pain. Waiting for the phone to ring when you’re younger often means getting asked out on a date. Then years later, you find yourself waiting for a call from your doctor, to set a follow-up appointment to discuss your biopsy results. As anyone can attest, this waiting period can be a true test of resilience.

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Lost and Found

My husband and I took care of my mom for five years, when she had Alzheimer’s. She could get lost walking out the door, which is why I was always her shadow. But I felt lost too: whom was I dealing with, hour by hour, day by day, due to the changes in her Alzheimer’s-riddled brain. I felt lost and confused by our new puzzling reality.

One thing that helped me cope was humor. Sometimes my mother would say something funny, like when she wanted to tell someone that she had pounded the pavement after college, looking for an accounting job in New York City. But what she said was, “I walked the streets of New York City, if you know what I mean.” Yes, my mom might have been a sweet talker, but she wasn’t a street walker!

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Wit and Wits

My husband was recently hospitalized for a long and arduous cancer surgery. A few days post-surgery, one of his nurses told us that she had to leave early, but that a blonde lady would be coming in momentarily to relieve her. Sure enough, this other nurse comes in, having overheard this comment, and says, “I’m the blonde lady.” My husband noticed that every woman in there was blonde: the aforesaid nurse, the respiratory therapist and the physical therapist. My husband said, “Every woman in here is blonde. I guess it’s not a good time for a (dumb) blonde joke.” Everyone laughed.

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A Knock on the Door

Sometimes dementia comes barging in the front door; other times, more stealthily, it comes tip-toeing in the back. My mom’s Alzheimer’s came in through the back end of things, because it involved picking her up for a potentially life-saving colonoscopy, and if anything signifies the back end of things, it’s a colonoscopy! I told her I’d leave my house at 8 a.m. to pick her up, but she called me at 8 p.m. the night before, asking why I hadn’t called. This episode was the conduit for her moving in with my husband and me. She stayed here for her remaining five years.

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Grits and Grit

My husband and I took care of my Alzheimer’s-ridden mom for five years, and as any caregiver knows, we all have had to develop “true grit.” “Grit” to me is inner mettle and perseverance.

Any disease is difficult to deal with, but with Alzheimer’s, you’re often dealing with an ungrateful stranger, due to the changes in the brain. The “stranger” part didn’t bother me as much as the “ungrateful” part did.

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The Waiting Room

I recently spent some time in the waiting room of a hospital, while my husband was having surgery. As I sat there, I was patting myself on the back for being organized for this little jaunt. I had remembered a wheeled suitcase in which to store hubby’s belongings while he was in the OR, I’d packed some nibbles for myself so I wouldn’t have to go down to the cafeteria if I didn’t want to, and I’d made sure I had my my phone with me.

Then I suddenly realized that what I hadn’t thought to bring was a phone charger, that my phone’s battery was low, and that the doctor was going to call me on it to tell me how the surgery went.

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