fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

R. Lynn Barnett

A Knock on the Door

Sometimes dementia comes barging in the front door; other times, more stealthily, it comes tip-toeing in the back. My mom’s Alzheimer’s came in through the back end of things, because it involved picking her up for a potentially life-saving colonoscopy, and if anything signifies the back end of things, it’s a colonoscopy! I told her I’d leave my house at 8 a.m. to pick her up, but she called me at 8 p.m. the night before, asking why I hadn’t called. This episode was the conduit for her moving in with my husband and me. She stayed here for her remaining five years.

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Grits and Grit

My husband and I took care of my Alzheimer’s-ridden mom for five years, and as any caregiver knows, we all have had to develop “true grit.” “Grit” to me is inner mettle and perseverance.

Any disease is difficult to deal with, but with Alzheimer’s, you’re often dealing with an ungrateful stranger, due to the changes in the brain. The “stranger” part didn’t bother me as much as the “ungrateful” part did.

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The Waiting Room

I recently spent some time in the waiting room of a hospital, while my husband was having surgery. As I sat there, I was patting myself on the back for being organized for this little jaunt. I had remembered a wheeled suitcase in which to store hubby’s belongings while he was in the OR, I’d packed some nibbles for myself so I wouldn’t have to go down to the cafeteria if I didn’t want to, and I’d made sure I had my my phone with me.

Then I suddenly realized that what I hadn’t thought to bring was a phone charger, that my phone’s battery was low, and that the doctor was going to call me on it to tell me how the surgery went.

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