fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Pris Campbell

Moving On

Denny was one year ahead of me in grad school and a close friend. We shared so many plans about our future! I knew he was gay, but his bisexual partner was the only other person in on that secret. This was the 1960s, and coming out wasn’t an option back then if you planned to be employed in certain professions.

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Trouble Getting Help

A few years ago, I lost my balance and ended up on the floor with what turned out to be a broken shoulder, multiple bruises, and a semi-concussion. Because my white blood cell count was elevated, the admitting doctor kept me in the hospital for four days on a saline IV, since an attempt to put me on an antibiotic gave me hives. I’d consistently had bad reactions to other antibiotics in the past, so he relied only on the saline to clear my system.

I was in bad pain, since pain medicine makes me throw up or gives me other debilitating symptoms. So I managed through those four days with Tylenol, cool packs, and my arm in a sling. The orthopedist sent by the admitting doctor after my scans were done felt the break would bond on its own if it was kept stable. I was terrified.

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Housebound

I’ve always enjoyed being around people, both at work and with friends. I also liked daily biking and sailing off and on. Then, in 1990, a neuroimmune illness hit me out of the blue. Since that time, the disease has kept me almost completely housebound and able to tolerate only brief personal contacts.

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Doctors Run When They See Me Coming

I take two medications. One is Armour Thyroid, as I can’t tolerate the usual thyroid medication. The other addresses symptoms of a neuroimmune disease I’ve had for years—allowing me to endure sound and light and stopping the minor seizures I had when I was subjected to those two things. Those meds help me, and I am grateful for them. But the problem is that I can tolerate almost no other medication that doctors have suggested.

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Such a Nice Man

He could have been named Mr Congeniality. He was warm and friendly to people around him, always ready to do a favor. I met him when he worked a summer where I was working. His masters degree wasn’t enough to get the jobs he wanted, so he decided to apply to PhD programs. He and I became friends over the summer, and I helped him with feedback about grad schools, housing, and so on. His wife and child had stayed that summer where she had a full-time job so she could continue working.

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Losing My Footing

I have a neuroimmune illness that for years was considered not to be “real” but that changed my life. On top of that, I’m unable to tolerate many medications, which have too often been prescribed for me with no consideration of what I’ve told doctors about their debilitating side effects. But about eighteen years ago, an angel entered my life in the form of a physician who did his initial training in India and then finished up in New York. I don’t know if it was his Eastern orientation that made him so patient-oriented, listening seriously when I needed his help, but he was perfect.

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Count Down

Back in May, after two doctor visits, a scan, X-rays and a foot MRI, it was determined that the excruciating pain beneath my left ankle was due to two cysts pressing against a nerve. My orthopedist set me up for an operation the following week to remove them.

Anesthesia would be required, so the surgery would take place in the outpatient section of a nearby hospital. The operation was scheduled for 3:30 p.m., and I was told to be there at 2 for the prep work.

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Just in Time

I still remember the thrill when the Roe v. Wade decision was issued. In grad school, a friend had tried to abort with a coat hanger when her boyfriend dumped her and offered no support. I was always careful about contraception but knew a number of women who became pregnant even using it. I never expected to need an abortion but was grateful once I had that option.

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