Prior to my illness, I never had a regular doctor. I felt no need for one. My experiences with my small-town doctor growing up had convinced me that doctors cared. Doctors listened. Doctors would help when needed.
When I was hit with the very difficult neuroimmune illness, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), I was terrified. The symptoms knocked me into outer space; they were unlike anything I had experienced before.
She was my head nurse on a treatment unit for psychiatric patients. In the course of our work we became as close as sisters. When she developed breast cancer with heavy spread into the lymph nodes, I was devastated but not surprised. She lit one cigarette from the last one throughout those days before smoking was banned.
from your ship in Vietnam.
Love letters.
Six pages in one of them
on the thin Navy stationary,
listing the ways you loved me.
I remember my mother referring to me from early childhood on as “stubborn as a mule.” That trait has held me in good stead when dealing with authority figures or doctors who have tried to talk me into doing something I knew wasn’t right.
The event I remember most, though, comes from my grammar school years. A girl in our class was “retarded” (the term used then), as was her mother. She came to school with her hair uncombed, clothes dirty, and wearing no underpants. Each day at recess a group of boys encouraged her to go on the hanging bars so they could run under and look up her dress.
Stubborn as a Mule Read More »
The Scales Fall Off Read More »
The Spanish Flu Hits Home Read More »
Pris Campbell
About the artist:
Pris Campbell has created graphics for haiga and has twice been published in Pulse. She was a clinical psychologist before ME/CFS rended her housebound. She makes her home with her husband in the Greater West Palm Beach area.
About the artwork:
“This is the last morning my husband spent with our cat before Spike crossed the Rainbow Bridge. The death of a beloved pet is like losing a member of the family, so this was a heartbreaking time.”
Sara Kohrt
Together Through the Rainbow Bridge Read More »
A former clinical psychologist and sailor, I’ve had myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 1990 and have been almost completely housebound, with both neurological and immune system symptoms, all of that time. ME/CFS is a serious, long-term illness that affects many body systems. While each year has come with more than its share of difficulties, this past year was loaded with extensive dental work, back problems, and extended voice loss (I also have muscle tension dysphonia).
Turning to the New Read More »
A Different Kind of Holiday Read More »
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