fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

She Loved Her Baby

I was a second-year ob-gyn resident, back in the mid-1980s, when I met her in the clinic. She stood out because she could speak English—Queen’s English, to boot. She was friendly and happy. She anticipated her delivery with joy. I saw her several times in the clinic and again in the labor room, when we celebrated her son’s birth.

But here’s what she didn’t tell me: She had been a sex worker.

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What Do You Want Your Life to Look Like?

In the first months of medical school, we’re taught that patient autonomy should be one of a physician’s guiding tenets. The doctor provides diagnoses, prognoses and treatment plans, but ultimately it’s up to patients to make decisions about their own care.

As a family doctor, I often tell patients: “Only you can know what the right decision is for you. I’m here to provide information and recommendations and then to support your decision.”

But over the past year, as my father’s memory deteriorated and his life drew to a close, I learned about the ways in which our medical system limits patient autonomy.

During his last months, my father said repeatedly, “My brain is in chaos.”

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Enough

When I entered elementary school in the 1950s, I practiced hiding under my wooden desk in case a Soviet bomb was dropped on my school. By the time I took early retirement as a teacher in 2003, I was leaving a middle school with a locked-door policy; the principal told us if we ever heard over the loudspeaker that “Mr. Lock” had entered the building, we should immediately lock our classroom doors and gather our students on the floor, away from the windows.

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Caught in the Crossfire

I’ll call him Rocky. In a drive-by incident, his father was killed, and Rocky, age one, was shot multiple times.

His initial resuscitation was heroic—he received medicines to support his blood pressure, underwent emergency surgeries and was still attached to machines to support his breathing—but by the time I met him, the drama of his shooting had receded: He and his medical team had settled into a stable routine.

Though I suspect that the team had expressed their grief earlier on, I found this sense of calm jarring and unnatural.

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June More Voices: Gun Violence

Dear Pulse readers,

A few years after my father passed away, my mother was visited at her New Jersey condominium by one of her favorite nephews, who drove down to visit from Canada.

Something happened–as I recall, it was a misunderstanding over a condominium parking space that my cousin was using. In trying to sort this out, the son of a friend of my mother’s became enraged and suddenly, without warning, punched my cousin in the face, knocking him down.

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How Poetry Broke My Heart

On June 2, 2010, I was giving a poetry reading at the faculty club at Columbia University Medical Center in New York as part of their “Literature & Medicine” series. I still have the list of poems I read that day, poems that spoke of my work as a nurse practitioner. One poem described my examination of an abused woman; another recounted the experience of a young teen, raped by her sister’s boyfriend. Other poems concerned the mysteries surrounding death as well as the joys of healing.

Somewhere halfway through the reading, I developed what is aptly called crushing chest pain.

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