fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

In the Nick of Time

Barry Thompson

When the ringing woke me at 3:00 a.m., I hoped that it was my alarm clock. For a neurologist on call, middle-of-the-night phone calls mean trouble; as a rule, you don’t get awakened at that hour unless it’s something really serious.

At 6:00 p.m. the prior evening, a young man had shown up in the ER of one of our satellite hospitals with a severe headache. He’d been diagnosed with a tension headache and discharged with a prescription for acetaminophen with codeine. No imaging studies had been done.

Nine hours later, the patient presented to the ER at our main hospital. He was no longer fully alert, the ER doc told me. I told him to get an immediate CT scan of the head. I was out of bed and through the door in an instant, worrying about this young, otherwise healthy man with a severe headache and reduced alertness. It’s amazing how fast you can drive in the dead of night when you’re nervous that a life may hang in the balance.

I parked in my usual spot, right by the ER entrance, and ran inside. The nurse told me that the patient had been sent upstairs » Continue Reading.

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Antibodies

Shanna Germain

At twenty, I started working the HIV
ward, midnight to morning. Left my husband
sleeping, mouth-open to the air, to 
drive through the dark body of the city. 

Every shift, the warning about infections.
Me sliding on booties, disposable 
gown and gloves. Even through the mask,
you could smell decay, the way viruses 

swept through bodies. I did what was needed: 
held hands through double-gloves, took blood 
or confessions when I could, told off-white lies 
to thin cracked lips that knew the truth.

Once, a year or so into it, I stuck 
myself, pointed red end of an IV needle 
left in a lab coat pocket. So small a thing 
it almost didn’t hurt going in, only 

leaving, small pop and smear of two bloods mingled. 
I put the wound to my mouth and sucked before 
I thought. Fear rising, rinsed my tongue with soap,
spit someone’s dark blood into the white scrub sink,

then gave my own blood to one of the other nurses 
to be tested. At dawn, I roused my husband awake 
with my newly tainted tongue, let him slide bare 
into me, as though nothing was between us.

I tell this all like

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Jeannie

Andrea Gordon

“The person with the contractions gets to pick the channel,” I reassure Jeannie, as she tries to talk me into watching The X-Files. It’s not my favorite, but I’m just the moral support–oh, and the doctor.

When she first came to see me, eight months back, Jeannie already had a four-year-old boy and didn’t think that there was much my little white nulliparous self could teach her about pregnancy. I’d offer her my book-learned advice about pregnancy or suggested sources of support, and she would listen patiently, then do what she wanted. She did show up for all her appointments, and she humored me at times: although she refused to stop smoking pot for her nausea, she cut down a little “to make you feel better.”

Jeannie shared everything without embarrassment. Well-trained resident that I was, I asked her about bleeding or discomfort during sex. She said that it sometimes hurt when she was on top, “But he don’t like havin’ to be up there doin’ all the work.”

Now, two weeks before her due date, she’s come into the office contracting. Sure that this is it, she’s already arranged care for her son. We make the ten-minute pilgrimage to

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Losing Tyrek

John Harrington

Tyrek’s mother and I must have spoken for two hours in the Pediatric Intensive Care Unit, covering every topic but the one that was glaring at us: death. A fourteen-month-old child is not supposed to die–and even though I knew the situation was dire, I couldn’t bring myself to face it. So I excused myself, sat down with her son’s chart and stared blankly at it. 

I first met Tyrek and his parents when he was just three months old. Tyrek had Down syndrome, clubbed feet and a large sternal scar on his chest from surgery to repair a complicated heart defect. Despite his bad luck, Tyrek’s most impressive characteristic was his cheery disposition. His mother was a tall African-American woman with straightened hair and warm eyes that always appeared weary. Tyrek’s father stood well over six feet, a sharp contrast to the “little man” he held in his arms.

I became Tyrek’s pediatrician through a referral from a cardiologist who knew that I care for children with special health needs and that I happen to have a son with severe autism. Tyrek’s parents and I bonded quickly, our conversations more animated and collaborative than the typical doctor-patient

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Physician’s Exasperation

Howard F. Stein

We know so much about you–
Your blood, your urine, your internal organs.
We can see everything.
There is precious little that
Is not wrong with you medically.
Still, you do not listen to us.
You miss appointments;
You don’t go to referrals we’ve made.
Do you defy us or merely not understand
How dire your condition is?
You could die at any time,
We have told you more than once.
Still, you muddle along as if all we know
Does not matter. Tell me, what
Is missing from our story?
Have we failed to impress upon you
The urgency of the hour? Speak to me.
I will listen now.

About the poet:

Howard Stein PhD, a psychoanalytic and medical anthropologist, is a professor in the Department of Family and Preventive Medicine at the University of Oklahoma Health Sciences Center in Oklahoma City, where he has taught for thirty years. A poet as well as a researcher and scholar, he has published five books of poetry, including Theme and Variations, which will be published this October by Finishing Line Press (www.finishinglinepress.com). In 2006 he was nominated for Oklahoma Poet Laureate.

About the poem:

“The search for control–real,

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Once

David Goldblatt

Movement disorders can be horrifying. Afflicted persons are solidified or contorted. They may flail so violently that a fork endangers their lives. As a beginning neurologist, I assumed that all such patients curse their fate. Once I got to know Brian, though, I realized that I could be wrong. 

Brian and one of his brothers had inherited Wilson’s disease, a rare, genetic movement disorder that had spared their eight siblings.

People who have Wilson’s disease can’t handle dietary copper properly. It accumulates in–and poisons–the kidneys, liver and brain. Avoiding foods rich in copper does not halt the progression of the disease, but it helps. If patients are also treated early and consistently with a drug such as penicillamine, which binds copper and aids in its excretion, they can expect to live a normal lifespan. If not treated, they die young.

Oscar, Brian’s younger brother, was less affected than Brian in his movements and speech. He looked out for Brian in an unusual way: he punched, pushed and made fun of him. (Psychiatric disorders are common in the disease.) Oscar died in his twenties in a car accident. His spleen, swollen because of Wilson’s-related liver disease, ruptured, and he

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First Patient

It was a quiet knock on my door that morning. So quiet, in fact, that I wondered if I was dreaming. Maybe if I went back to sleep it would go away.

Nope. There it was again: soft but persistent. This time I knew that it really was a knock, and it really was on the front door of my one-room cabin. What I didn’t know was that I’d be hearing that knock for the rest of my life.

I got up, tired and rumpled, and pulled open the door. A young woman I’d never seen before stood there, barefoot and wearing the simple white linen dress of the campesina (as a woman who works the land is called in rural Paraguay)She was probably no more than sixteen, but in her eyes was the look of a mother, and something else: distress. In her arms she held an infant.

Xe memby o-hasy (my baby’s sick),” she said in her native Guarani.

I didn’t understand a word, but I knew it wasn’t good. I looked at her baby–face gray, eyes open, too sick to cry. What was I supposed to do?

Back then, I wasn’t a doctor. Heck, I hadn’t even taken

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Echocardiography

Rachel Hadas

One: secretarial computer screen:
appointments, cancellations. Two: machine

we’re here for, registering your heart’s each pump
with grainy images that throb and jump

in sync with the obscure interior.
Three: anticlimactic VCR

screen, a tiny, garish old cartoon
squawking and jerking in the darkened room.

Past these respective renderings of vision
we move next door. Here the examination

is palpable, is stethoscope to chest:
breath in, out, raise your arms, stand, squat, and rest.

I’m sitting, staring vaguely at the sky–
from the ninth floor, a pale blue vacancy.

What is a window but another frame
or screen through which to ponder–is it time

or space that peels this dull facade to show
the poverty of what we really know

despite the wealth of data we can see
via machines that pierce opacity?

Well, no more screens for one more year or two
Thank you and goodbye. It’s time to go.

About the poet: 

Rachel Hadas is board of governors professor of English, Newark campus, Rutgers University. The latest of her many books of poems is The River of Forgetfulness (David Robert, 2006); Classics (WordTech Communications), a volume of selected prose, was published in 2007. Her website is www.rachelhadas.com.

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Our Town (Chinese Spoken)

By the time Mrs. Zhang came to see me, her headache, left-sided weakness and facial numbness were two weeks old. Like many Chinese immigrants in this country, she’d hesitated to seek medical care because of language and cultural barriers and her apprehensiveness about Western medicine. In fact, she hadn’t seen a physician in the ten years since she and her husband had come to America. Only after a friend told her about me, the sole Chinese primary-care physician in a small Pennsylvania town, did she and her husband come to see me.

Mr. and Mrs. Zhang struck me as a typical older Chinese couple. With smiles on their faces, they bowed repeatedly to everyone in my office.

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Finding Innisfree

Roger looked up at me over the oxygen mask, his eyes drawn wide by the sores stretching his face. He lifted a hand for me to take.

“I’m glad you’re here,” Jen had said before I’d entered his room. “They’ve taken him off a lot of the medication. He’s very lucid, but he’s depressed and scared.”

The previous fall, Roger and Jen had begun couples therapy with me. They were both thirty-two and had been together for ten years. Three years before they came to me, Roger had been diagnosed with leukemia. A bone-marrow transplant had left him cancer-free, but his prognosis was guarded. He and Jen argued frequently, his desire for independence clashing with her insistence on managing his care.

When they first visited my office, Roger shuffled in, bent and thin, on a walker. He wore a baseball cap, pulled low to shield his light-sensitive eyes. When he removed it, I saw that his face was covered with scabs, his bald head mottled in odd colors.

Jen spoke first, asking how much I knew of Roger’s medical situation. I shared what I’d been told, being careful not to paint too negative a picture. Then Roger spoke. His calm,

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Reference Range

Veneta Masson

Your tests show
the numbers 73, 90, 119 and 2.5,
the letter A,
the color yellow,
a straight line interrupted by a repeating pattern
of steeples and languid waves,
a gray asymmetrical oval
filled with fine white tracery,
35 seconds,
100 millimeters,
II.

I’m not sure what to make of these.
With the possible exception of II,
which like all Roman numerals
is subject to misinterpretation,
I see no cause for alarm.
I admit to a preference for low numbers,
the apothecary system over the metric
(my age, perhaps, and distrust of pure logic)
and the letter W,
though most of my colleagues favor
M.

I think you can be happy with yellow
and, based on my experience,
the fact that the straight line is punctuated.
Seconds, millimeters–I marvel at their finitude,
but this oval, so intricate, so light,
might well contain a universe.
Is it normal, you ask.
Normal’s a shell game you seldom win.
Take my advice. Enjoy good health
not as your due but the blessing it is
like Spring, laughter,
death.

About the poet:

Veneta Masson RN is a nurse and poet living in Washington, DC. She has written three books

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A Brush With the Beast

It all begins one Sunday morning when Mrs. Morris, a 75-year-old retiree with a heart condition, trips on her way out of church. She falls flat on the sidewalk, can’t get up, and ends up in our Bronx emergency room. A CT scan shows a pelvic fracture, and she’s admitted to our inpatient team.

When I join the family medicine residents to see Mrs. Morris the following day, she can’t get out of bed. She’s got short, unruly white hair and a gee-whiz expression that charms us. “What a pain!” she says. Given how close she lives to the brink–terrible circulation has cost her one heart attack and several toe amputations–I’m impressed with her good cheer.

Things looks promising. Follow-up studies confirm that the fracture won’t require surgery, and in the afternoon a physical therapist pilots her through a few wobbly steps.

The next morning we come to Mrs. Morris’s room and find her peering at a novel. “I think it would be great fun to be a secret agent, don’t you?” she says to me.

We make arrangements to transfer her to a rehabilitation facility, where therapy will get her walking again.

All goes smoothly until a hospital

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