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Ripped From the Headlights

Maureen Picard Robins

“Get a notebook,” he said. 

Dr. Altman and I stood face to face on the pediatric surgical floor of Columbia-Presbyterian Babies & Children’s Hospital. It was the first week in December. A metal crib–it seemed more like a cage or prison–separated us. In this center space lay my yellow heart: my eight-week-old daughter, wounded by surgery, dulled by morphine, our whispers flying over her.

It had been nearly twenty-four hours since Dr. Altman opened the baby’s abdomen and held her tiny intestines in his hands, untwisting them like a fisherman untangling his line; nearly one day since he’d performed a Kasai procedure, fashioning a conduit so that bile could tremble down to her small intestine; one thousand four hundred and forty minutes since I’d been ripped from the headlights of the speeding car known as biliary atresia, a rare condition in which the duct from the liver to the small intestine is blocked or missing. 

“There’s a lot to learn,” Dr. Altman said. “Write down all your questions. There is no way you will remember all this.”

There was only one question I wanted to ask, and I didn’t dare.

Besides that, there were so many other » Continue Reading.

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A View From Nepal

Caroline Jones

The farmer wanted to know why his three-year-old son couldn’t walk or talk. 

I sat opposite him in a dark, cold classroom converted into an examination room for a four-day medical clinic last spring in the village of Lapa, high in the Himalayas. 

Wind whistled through the stone walls; rain pounded on the tin roof. The room’s single ceiling bulb kept flickering and dying; I had to use a camping headlamp to see my notes. And communications were hampered, to say the least: We conversed via two translators–from English to Nepali, from Nepali to the local Tamang language, then back again. It sounded a bit like the telephone game, and had similarly uncertain results.

Still, one look was all I needed to make the diagnosis: Down syndrome. I found the telltale single hand crease, eye folds and wide gap between the first and second toes and asked about the boy’s medical history: he’d never seen a doctor; sometimes he had diarrhea, fever or a cough. 

I thought back to my journey here, the last leg of which had begun five days earlier. With two other doctors, I had left Nepal’s capital, Kathmandu, on a winding, bumpy, eight-hour Jeep

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Running Out of Metaphors

Howard F. Stein

His rapidly metastasizing cancer
was not his only problem:
He was not only running out
of life, he was running out of metaphors.
Metaphors had sustained him
for the four months since
they discovered the spot.
He started out 
losing weight as “The Incredible 
Shrinking Man”; then he became
Gregor Samsa for a while;
briefly he was the consumptive Violetta,
soon followed by Ivan Ilych.
He even remembered Susan Sontag 
and Solzhenitsyn and so railed
at his wasting. He leaped
from metaphor to metaphor the way
a stone skips over water. He asked
all the questions everyone asks,
but felt no comfort from
the answers. 
Companions and kin beset him
like Job’s friends. He graciously refused
their unctuous offerings, their leaden words.
Thinking could no longer save him.
His only balm now was his love for his son. 
He had at last found something that had no metaphor: 
This time, love would have to be enough.

About the poet:

Howard F. Stein PhD, a psychoanalytic and medical anthropologist, is a professor in the Department of Family and Preventive Medicine at the University of Oklahoma Health Sciences Center in Oklahoma City, where he has taught for nearly thirty-one

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Thanksgiving Reflections

Pulse Writers and Editors

Editor’s Note: This Thanksgiving tugs hard at the emotions. While an economic gale roils the world, our freshly chosen captain stands on deck, pointing out a new direction for our battered ship of state. At the same time, each of us has personal joys and sorrows to contemplate. We asked Pulse’s writers and editors to take a moment to share their reflections.

This year, I am thankful for my four quirky little grandsons, my three loving children and my beloved husband of almost forty years. I am especially thankful that the country we share has a chance to find its way again and to call all of us, young and old, toward a future that can still be bright and full of promise. –Johanna Shapiro

I’m thankful for my daughter, and for how she kicks and growls in delight when I enter her room at 6 a.m. –Joanne Wilkinson

As one who came of political age in the 1960s, I remember as only a young man can the losses of JFK, RFK and MLK. As an older man, I’m all too aware of the fragility of any single human life. But I will be grateful this Thanksgiving for

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Hospice

Joanne Wilkinson

My patient’s beagle is very quiet. He lies next to the brown leather living-room chair she used to sit in when I would come to see her at home. His nose is down on his paws, and his round eyes look up at me, up at the nurses, the home health aides, the family members who go back and forth between here and the back bedroom. He is very alert, but silent. He stays perfectly still.

My patient’s sons want to know things. How much longer will it be, will she be in pain, what will the end be like, will she be conscious? Should they take the rest of the week off from work, should they call the son in California and ask him to come? Yes, I tell them. Bring the relatives from far away, call in sick to work, get the minister, the undertaker, the cousin with the good voice who wants to sing at the service. It won’t be long. 

They pace back and forth in the kitchen, stirring the air with their movement. Their footsteps shake the house’s foundations. Would it have been different, they ask, if we’d caught it earlier, if she’d

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little black boy

Jimmy Moss

little black boy
sit down.
fold your hands into your lap
and put your lap into order
now cry me a little song.
sing me a little note about me 
caring about what you care about,
then dream me a little dream.
and when your tears turn into
oases and exposed rivers
stand up
and pour me a little cup
fill it with every broken promise
and the unfulfilled moments of
belated birthdays and first days
of the school year when your
clothes were unkempt…then
tell me a little secret
about how–you wish your father
bothered enough to be a father 
or fathered another version of you,
so that you could have a friend
and then
write me a little poem.
make me a little rhyme about
the places you lived and the schools
you’ve attended
the teachers you’ve impressed
and the classmates
you’ve offended…by simply
being alittle black boy
who could read and speak well
and vividly express himself,
find clean shirts amongst the dirty ones
and dress himself
long enough
to cover up his little pain
and then bring me a little more
of whatever it is that you have
bundled up in your little hand,

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My Patient, My Friend

Death is not always the same. Quantity, fixed: one per patient. Quality, variable.

Doctors see many deaths, of different kinds. This is true of any doctor, whether or not he or she is a surgeon, as I am.

It’s easier for the doctor when death is expected, following a long illness, a chronic disease. Harder when it’s unforeseen–the heart attack, the accident, the gun shot, the sudden death in a young man or woman who seemed a conqueror.

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Halloween Horrors

Paul Gross

One October evening last year, I went to our local pharmacy to pick up a prescription for my daughter. I made sure to bring Cara’s insurance card because my employer had switched us to a new health plan.

I wasn’t sorry about the change. Our prior plan had been operated by incompetents–although they might only have been crooks, I couldn’t be sure–who also managed our flexible spending accounts. These accounts, you may recall, collect pre-tax income from your pay and then return it to you to pay for out-of-pocket medical expenses.

With that plan, nothing ever worked as advertised. I would submit a dental bill for reimbursement and the company would review it for three months before sending me a denial notice, stating that my health plan had no dental coverage.

“I know that I have no dental coverage,” I’d tell the representative on the phone. “That’s why I put a big X in the box labeled Flexible Spending Account.”

“You sure did!” she’d say cheerfully. “I don’t know why they did that. You’ll have to submit it again. This time, put my name on it….”

Or I’d submit a claim for a medical expense that was covered,

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In the Taxi to the MRI

Rachel Hadas

I try to concentrate on the weather. Everything
deliquesces into simile.
Sleet ticks onto the windshield like a clock.
Truth blinks on/off like a stuck traffic signal.
It is better to live in the light but the light is flickering.
Anything more than the truth would have seemed too weak-
Poetic paradox understood too late
or maybe just in time. What time is it?
A small white poodle in a quilted coat
lifts a leg to pee against a hydrant
on Sixtieth Street, and we are nearly there,
early, of course. And since (she said) my heart
has been wrung out, no, broken, this is the …
this has to be … The sentence will not end.
The mind pulls, stretches, struggles, and returns
not to any absolute beginning
but a blank wall. Is there a door in it?
A future? How to get there? And once there
how to escape? When flickering stops and steady
light shines, that may be the worst of all.
Anything more than the truth would have seemed too weak,
but mercifully the blinking begins again.

About the poet:

Rachel Hadas is board of governors professor of English, Newark campus, Rutgers University. The

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Entry from an Intern’s Journal

Jennifer Reckrey

Editor’s note: Over the next months we’ll be carrying occasional pieces by Jennifer Reckrey, a family medicine resident in New York City. Each week while she was an intern, Dr. Reckrey recorded some of her experiences as a brand-new resident. Today’s story is from week number six. 

How do you convince someone to do something they don’t really care about?

This week I took care of a 58-year-old woman who came to the hospital with one week of fevers, diarrhea, burning with urination, and abdominal pain. Though she probably had an infection, the CT scan she got in the ER didn’t reveal its source. It did, however, show that something was wrong with her uterus and ovaries. If the odd-looking mass was an abscess, it needed to be drained. If it was a cancer, she needed a very different sort of treatment plan. And to find out what was going on, she needed an MRI.

When I first asked her about it, she quickly agreed. She’d had MRIs scheduled in the past (her outpatient gynecologist was concerned about her too), but had always missed her appointments. She seemed glad for the chance to get this cumbersome test over

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Carmen’s Story

Carmen Diaz

I used to be a shy woman who didn’t like the spotlight and never did any public speaking. Ovarian cancer has changed all that. Now I look for opportunities to tell my story. 

I am a 62-year-old, Puerto Rican-born, New York-raised mother of two. I was diagnosed with ovarian cancer in 2004. But for more than a year before that, my symptoms weren’t recognized. 

In January 2003, I started to suffer from abdominal discomfort, back pain, indigestion and heartburn. My primary-care physician told me to change my diet and prescribed medication for my indigestion. After weeks with no improvement, I went to a gastroenterologist, who diagnosed gallstones. In March, I had gallbladder surgery. 

Most people go back to work within ten days, but it took me a month. My fatigue, heartburn and stomach cramps, I was told, were probably a result of the surgery. Over the following months, I kept returning to my primary-care doctor, who prescribed antacids. Eventually, fearing that he’d brand me a hypochondriac, I stopped going.

That fall, during a routine gynecological check-up, I told my ob-gyn that I was feeling pelvic pressure and a burning sensation in my bladder. My pelvic exam and Pap

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Rx

 Veneta Masson

Politicians…were quick to rise to the defense 

of a particularly vulnerable population. As a group, 
dual-eligibles [Medicare-Medicaid] have incomes below 
the poverty rate…and take an average of 15 medications a day.

 

Washington Post
January 14, 2006

 

This is how it works: 
as wealth trickles down 
to the poor and old 
it turns into pills.

 

So M and S, their slender portfolios 
long since depleted, can still
compete for bragging rights.
I take twenty a day, says M.
Ha! counters S, I take so many
they had to put in a port.

 

G presides over the corporate enterprise,
his specialty, mergers and acquisitions.
With combined assets (his own and his wife’s)
filling two cupboards, he allocates resources, 
tracks inventory, restocks 
from Canada and Wal-Mart.

 

K can still indulge herself.
I’ll start with one of the pale pink ones,
she tells the striped tabby, 
but I might decide I need two or three.
I’ll wait a while and see how I feel.
Maybe the purple would do me more good.

 

Honor is served.
Wealth is transferred.
The old have their pills.
And their health? 
That’s another story.

 

About the poet:

 

Veneta Masson is a nurse

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