fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

It Takes a Tokyo Village

Ruth Harimoto

 I have lived in Japan for more than half of my life. I first came here as a nine-year-old child, the daughter of a missionary. Later, after several years of study and work in the US, I returned as an adult with my Japanese husband. You’d think that after more than thirty years here, I could almost call myself Japanese! But no. In this homogeneous country, I’m still a foreigner.

The role of a foreigner in Japan is, for the most part, a comfortable one. Japanese people are polite. They don’t expect foreigners to know Japanese, so when I do speak it (with my learned-as-a-child accent), I’m applauded and praised. This role can also be lonely, though.

As I go about daily life, my five-foot-seven height and Caucasian features automatically set me apart; there’s no possibility of melting into the crowd. Small children stare at my blue eyes and light hair. Sometimes, on a crowded train, the open seat next to me will remain open. Gaijin, the Japanese term for anyone non-Japanese, means “outside person.” I must accept that I am, and always will be, a gaijin.

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Soul Stories

Soul Stories: Standing With Giants

Josephine Ensign

About the artist: 

 

Josephine Ensign is a nurse and writer. She teaches health policy and health humanities at the University of Washington, Seattle. She is the author of the medical memoir Catching Homelessness: A Nurse’s Story of Falling Through the Safety Net.

About the artwork:

This photograph is part of the artist’s multimedia digital humanities project Soul Stories: Voices From the Margins, about the role of narrative in health and healing in the context of trauma. The Soul Stories project includes photographs and digital storytelling videos to accompany a forthcoming book of essays and poems about her search for ways to humanize health care for patients, families, communities and providers. “I took this photograph while writing a lyric essay, ‘Foot Notes,’ which concludes with this line: ‘Feet take us to new territory; they witness and record our journey.’

Visuals Editor: 

 

Sara Kohrt

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Matching Rings

Joy Liu

The room is stuffy, but the woman is shivering.

Her husband stands by her bedside. An interpreter that they’ve hired to stay with her day and night stands at the foot of the bed. And then there’s me, the doctor (I’m an intern), waiting to deliver one of many sad speeches I must give today.

Smiling wanly, she struggles into a sitting position and shakes my hand.

Even with a diagnosis of metastatic stomach cancer, she has movie-star looks. She’s only twenty-six–the same age as me. I can imagine her stepping out of a red-carpet premiere in Shanghai. Instead, having hired personal interpreters and taken a flight halfway across the world, here she is in this hospital bed, waiting expectantly for me to tell her what we can offer her.

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Patient Belongings

Wynne Morrison

A man a few feet ahead of me
is pulling a rolling carry-on,
a clear plastic “belongings” bag tied
to the top by a white drawstring.

I can’t resist a glance in the bag,
like a stranger who wonders about lives
in the elevator or grocery line.
It holds some clothes, playing cards,

the ordinary things. And lying on its side
is a small helicopter, its unpainted
wooden slats as thin as split popsicle sticks,
a broken rotor bent awkwardly

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Withering Away on the Outside


You are an angel, undeserving of such tortuous demise.

I bit my tongue to hold back these words I was thinking but couldn’t say to our young, male patient with amyotrophic lateral sclerosis (ALS). The attending physician had just exclaimed, “Foot drop is often one of the first signs of ALS. Do you notice here the distal muscle atrophy, including the intrinsic muscles of the hand, namely the dorsal interosseus muscles and thenar eminence?”

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Halfway Home

I met Terry the day after he sat in the back of a pick-up, joyriding on a busy interstate. A big rig whooshed by, sucked Terry out of the truck bed and slammed him into the side of the semi-trailer before he fell back into the truck. One scalp laceration and a few facial scrapes presented evidence of the accident. The damage occurred inside Terry’s head.
 
It shames me to admit I practiced the defense mechanism of black humor. During shift change, we joked and wondered if Terry had MFB, or mush for brains. Countless days and doses of diuretics, rehydration, and more diuretics without a twitch, grimace or cough from Terry decimated my hope for his recovery. I bathed him with coarse wash cloths and repented by lavishing his skin with lotion. I talked about sports, music, even Tiger Beat magazine. I prayed for him to a god in which I didn’t quite believe.

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Two Years and a Shadow

Just a shadow over two years ago, my parents’ lives shattered when old age carried deep illness into their home and broke everything into shards. Those shards will be with us forever. They will, I fear, be visited upon seven upon seven generations of sons and daughters and nurses and doctors and therapists and priests and aides and friends, seven generations to come.

The miracle is that we are still here, two years plus a shadow on from that nightmare time.

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Alloimmune

“I only have bad options for you.”

I had visited this place, this stifling humid ultrasound room, a thousand times in my fears. But now it was real, and I had a choice to make. All the grinning, stupid hope I had embraced, the idea that this was a walk of faith I could use to teach others, rose up as a dark maroon flush in my chest. Hubris. The ancient Greek kind.

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Saving Private Ryan

Gregory Rutecki

The late Eighties was the worst of times in medical education–the era when doctors in training worked a virtually unlimited number of hours each week. This unceasing and inhumane workload led residents, understandably, to view patients purely as collections of physical ailments.

Back then, I was an attending physician at a community teaching hospital. One day, as usual, I was preparing to make morning rounds and, simultaneously, to do my best to teach my team of internal-medicine residents.

Fourteen patients awaited us, every one of them quite sick. As my team and I proceeded from one bedside to the next, struggling to cram the patient interviews into ever-dwindling snippets of time, I felt a familiar sense of growing pressure; it was a struggle to focus fully on each patient.

Despite this, our last patient’s chart notes grabbed my complete attention.

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How Did He Just Wake Up?

I hung up the phone in shock. I never felt so helpless.

My brother was lying in a deep coma in a Bronx hospital, and none of his nine siblings were in America. My parents were dead, and the closest relative was my mom’s brother who lived in Canada. He had already booked a flight to New York for the same night.

Sitting in a village in Saudi Arabia, where I worked as a community health nurse, I cried and prayed.

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