My Brother Is Dying, and They Won’t Let Me Visit Him
My Brother Is Dying, and They Won’t Let Me Visit Him Read More »
My Brother Is Dying, and They Won’t Let Me Visit Him Read More »
“Excuse me? I’m lying right here, ya know. C’mon!”
The voice came from behind the cloth curtain of the test bay, in a tone of defensive disbelief. It belonged to a patient who had Brugada Syndrome and an implanted defibrillator awaiting her stress test.
I had been discussing Brugada, the potentially lethal and heritable “sleeping sickness” marked by unheralded syncope (loss of consciousness) and sudden death. My colleague and I were enthusiastically running through the electrocardiographic characteristics, diagnostic uncertainties, defibrillator firings and death rates when the conversation turned to the patient.
“If she were to drop dead during exercise…” I had started to say.
The Patient Is Always Listening Read More »
I was in the outpatient clinic, seeing an African-American patient for the first time. I noted that he was on an anticoagulant, Dicoumaral (similar to Coumadin).
His prothrombin time (a test that indicates the level of blood thinning) was very low—in fact, outside of the therapeutic range. When the range is too low (meaning the blood is too thick) or too high (the blood is too thin), the patient is at risk for serious complications such as clotting or hemorraghing.
Without thinking, I said, “You must not be taking your medicine.”
I AM Taking My Medicine Read More »
“In 2009, after many years in hospice work, I was asked to help a friend in Oregon do the spiritual work around her choice to have medical aid in dying. (She asked me to do this not as part of her hospice care, but as a friend.) We did a weekend intensive, and within two weeks she took her leave. I did this series of collages about a month after her death to honor her life choices and my experience of her release from her broken-down body.”
The Lies We Tell Ourselves Read More »
I ambled with squirrels and rabbits on an urban trail overflowing with chaparral and mossy oak. Early morning bird chatter, drone of bugs in rays of sun, and the crackle of underbrush beneath my feet kept me company. My thoughts wandered brisk as the sound of river water on rock.
A man wearing a holey T-shirt and sweatpants approached me, accompanied by a large German Shepherd. The dog was off leash but seemed friendly. The man had a vacant stare, and as I passed him I gave a perfunctory smile and “Good morning.”
He didn’t even note my existence nor change his faraway gaze, and I immediately snickered at his lack of basic human decency. Shaking my head, I glanced back at him. He had stopped, looking up at the cloud-threshed sky, and suddenly emitted an unearthly wail.
Nurse Ratched, Nurse Lillian Read More »
Should I talk about the bad stories or the good stories?
Okay, the bad part is hearing that something’s wrong with you. That burns me.
I don’t want doctors bothering me–just leave me alone. I don’t know why I’m afraid of doctors. Sometimes I just don’t like to hear them talk. I just found myself going more to the doctor after I was diagnosed. Before, I didn’t have to go to the doctor. I was healthy.
I don’t like hospitals. My father died in a hospital. My mother died in a hospital–she was brain dead when she passed away, in 2002. My sister died in a hospital. To see somebody’s tongue out their mouth, and hooked up to those machines–I’ve always told my daughters that I don’t want to die in a hospital, that I want to fall asleep in my house.
I love all five of my daughters in a different way. They know what I’ve got. They know who gave it to me.
They used to like him, but they don’t care for him too much now, after, you know, what he done. They felt that he took my life, and he could have told me. When it
Encounters: “You know…sometimes I don’t remember that I have it.” Read More »
You are a big man, a little heavy, but nothing
that can’t be fixed by daily, brisk walks
or swept away by a
dose of cancer and a blast of treatment.
You have been called from your glass enclosure
to help me.
A productive, bronchial cough
is still with me–too long.
Chinese practitioners call this a lurking pathogen
tossing antibiotics into my weary kidneys to excrete
as a mindful French woman
with her midday steamed leeks.
Adam, my twenty-five-year old son, died of a heroin overdose two years ago. Several days after his death, and before the funeral, I sat up late one night talking with his ex-girlfriend. She revealed that he had been sexually abused for several years by a close, male family member starting when he was eleven. The perpetrator threatened to harm our family if Adam ever told anyone. Adam told a few people but the secret was kept from me.
The Anguish of Ambiguity Read More »