fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Stories

Things I Did While Waiting for My Husband’s MRI to Happen

1. Reread the stern words, hammered into a sterile printout. The scope results: a scythe. Images of an alien inhabiting his inner world.

2. Notice the footprints on our living-room floor. Briefly consider cleaning.

3. Three breaths later. Hug him. Hug the kids. Hug myself. Hug the dogs. Tilt my head when he says that he doesn’t want to hug right now.

Things I Did While Waiting for My Husband’s MRI to Happen Read More »

Another Way to Listen

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

“David, from this moment forward, you’ll need to listen with your heart.”

It’s been forty years since I heard these words, but they ring as clearly in my mind as if it were yesterday.

My night nurse, Jill, whispered them into my left ear—the only one still able to hear after my fourteen-hour brain surgery to remove a tangerine-sized growth from the acoustic nerve, which affects hearing and balance.

Another Way to Listen Read More »

Over the Rainbow

Two days after the bus crash, I died. It was March 1996. A bus traveling at 60 mph had hit the car I was in, shattering my fifth and sixth cervical vertebrae and instantly paralyzing me from the shoulders down.

I was only twenty years old, and father to a one-year-old son. I spent the following forty-eight hours at a nearby hospital, on life support in the ICU. I couldn’t speak or breathe on my own.

I survived those two days on a sense of faith, expressed in a mantra: This is just temporary.

Over the Rainbow Read More »

Hot Water Cures (Almost) Everything

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

If, like my parents, you had immigrated across the world to America with only $200 to your name, feeling hesitant to speak whenever you needed something for fear of people doubting your intellect, you might develop a certain degree of wary self-reliance.

My parents have had to fight for everything they’ve achieved here, including voices that would be heeded despite their accents, and equal treatment despite looking different.

Hot Water Cures (Almost) Everything Read More »

Hearing Impaired

“Pick up the phone, Mom,” I said, dashing into the kitchen after answering our landline in the living room.

“Who is it?” she asked.

“Dunno. I can’t understand what they’re saying,” I said.

When she picked up the receiver, the caller—her father—got right to the point: “She can’t hear.”

Hearing Impaired Read More »

Many Shades of Different

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

Having stage IV cancer at twenty-one made me different from my peers.

I was already different: By the eighth grade, due to my mother’s quest for greener pastures, I’d attended twelve schools, many of them outside of the US. I was a Yankee when my family lived in Australia, but also when we lived in Florida. I was a gringa when we lived in Mexico, then in Peru. In places where English was spoken, I stood out because of my accent. In places where Spanish was spoken, although I became quite fluent, I was clearly a foreigner.

Many Shades of Different Read More »

Lessons From My Teachers

In July 2003, a few days after I had started service as inpatient attending pediatric cardiologist at Lutheran General Children’s Hospital, the neonatologists, nurses and I met with Jenni and Tony to discuss their daughter Grace’s health status.

Grace, now two and a half weeks old, had seemed normal at birth. After a few hours, her skin color had turned blue: Her oxygen level was dangerously low. She’d been whisked off to the neonatal intensive-care unit (NICU), where tests showed that her heart function was poor due to high blood pressure in her lungs. Her heart and lungs began to fail, so we’d placed her on a heart-lung machine (ECMO) for sixteen days. Now taken off the machine, she was breathing with the help of a ventilator.

Lessons From My Teachers Read More »

“How Long Have You Had These Symptoms, Doctor?”

“How long have you had these symptoms?”

Dr. Quantrell’s tone was kind and inquisitive, but with the CT scan on the computer between us displaying a two-centimeter kidney stone, I couldn’t help hearing: How long have you been ignoring this problem?

Much has been written about the experience of doctor as patient. Like many of my colleagues before me, I’d fallen into the trap of trying to diagnose myself before calling my family physician.

“How Long Have You Had These Symptoms, Doctor?” Read More »

Nontraditional

Editor’s Note: This piece was awarded an honorable mention in the Pulse writing contest, “On Being Different.”

I have always been different. As a nurse I was a late bloomer, though I’d always felt passionately drawn to the profession.

I was born to nurse. This was evident even when I was a young child; I bathed my grandmother’s amputated leg while the other kids played in the yard. Although I had planned to go to nursing school after graduation, I took a seventeen-year detour and ultimately entered as a nontraditional student.

Nontraditional Read More »

Don, 1979

It’s 3:00 am. Deep in the bowels of the hospital, bright fluorescent lights softly buzz overhead in the windowless snack bar, where a row of vending machines give off a low hum.

Don, my sixteen-year-old patient, and I sit huddled in orange plastic chairs at a tiny Formica table. He is ranting, and I am listening. Neither of us can sleep. Don is awake because he is mad at the world, and I’m awake because I’m the pediatric resident on call.

Don, 1979 Read More »

Scars

Editor’s Note: This piece was awarded an honorable mention in the Pulse writing contest, “On Being Different.”

In the summer between second and third grade, when I was eight, I first realized that it was safer for me to hide my surgical scars.

I had two huge scars starting at my hip joints and running halfway down my outer thighs. They were “Dr. Frankenstein” scars, with obvious cross-hatches that couldn’t be missed when I wore shorts or bathing suits.

That summer, my scars brought odd looks and comments from both children and adults.

Scars Read More »

Powerless

“I know it wasn’t really your fault, but I blame you on some level,” said my patient Aisha, sounding husky over the phone. “I’m working on forgiving you, but I’m not there yet.”

Tears sprang to my eyes, but I kept my voice steady as I replied, “I understand. I’m sorry about my role in what happened. Please let me know if you ever feel ready to come back to see me, but I can refer you to another doctor in the meantime.”

What had I done to deserve such harsh words? I hadn’t prevented her traumatic childbirth experience.

Powerless Read More »

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