fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Stories

Five Years Later

Steve Lewis

Evenings in the Sloan-Kettering ICU were starkly lit–nowhere to hide from the glare, bloodshot eyes trained on blinking lights, buzzing machines, masked men and women passing soundlessly through sliding glass doors, and little but hours and hours of bright, eerie luminosity ahead.

By contrast, the days then were dark. No comfort to be found in the sunrise or in that old salve about everything looking better in the morning. My wife and kids and I sat on the edge of uncomfortable couches in dimly lit waiting rooms where the waiting was always either too long or never long enough; we stood shoulder to shoulder in airless elevators with strangers sharing the same muted despair; we sat huddled in the cafeteria and did not eat.

When I was alone I paced the circular halls of that cancer-riddled sixteen-story building, cloaked in green gowns and latex gloves. My beard was always wet with acidic breath behind the paper mask. I slathered my hands in Purell every time I made a move, because it seemed as if germs were the only thing left in my life I could control. Because practically everything I’d once assumed to be true was now a » Continue Reading.

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Emergency Landing

Shumon Dhar

In the summer of my first year of college, I did an internship as a nursing attendant in a rehab hospital’s stroke unit.

As a premed student, I had little idea of what it meant to be a physician. But that didn’t stop me from feeling slightly superior to others who weren’t on the same path. Although I didn’t know how to take someone’s blood pressure, I often treated friends to detailed descriptions of the biochemistry of complex metabolic diseases.

My summer job took me totally out of this academic comfort zone. 

I found myself washing, dressing and caring for the most debilitated people imaginable–unable to walk and suffering from cognitive impairment and, often, incontinence. Throughout the day, the halls echoed with their moans of pain.

Every morning, it was my job to wash, dress and transport several of them to the dining room before breakfast. The work didn’t come naturally to me. Long-haired, underweight and completely unused to manual labor, I was quickly labeled a burden by the nurses.

To counteract this humiliating reality, I tried every minute to project an

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Father and Sons

Kathleen Crowley

It was early November–the sky a sharp, deep blue that only comes at that time of year–and my primary-care clinic in the heart of the city was booked full with bronchitis and early flu. The TV in the corner was tuned to CNN. Children bounced around in boredom, chatting away in an assortment of languages–Haitian and Portuguese creole, Spanish, English. 

My last patient of the morning was Jack, a man I’d been seeing for the past few years. He was a middle-aged guy–almost the same age as I was, in fact. I found him sitting quietly in the examining room, reading glasses on and newspaper in hand, wearing a jacket with his employer’s logo on the front. 

Unlike most of the people in the waiting room, Jack was feeling well. He was only here to follow up on the usual suspects–diabetes, hypertension, cholesterol, weight struggles. When I checked his blood pressure, though, it was way out of control.

“That’s strange,” I said, looking through his records. “Your pressure is usually pretty good. Have you missed your medications at all in the last few days?”

“No. I take them every day. Might just be”–he took his glasses off and

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Telling Nick

Marianne Lonsdale

“What’s going to happen to Catie when she grows up?”

I was driving with my son, Nick, to the store when he asked this about his fifteen-year-old cousin, Catie. Nick, age eight, had just spent his spring break at Catie’s home. Blind, she was now losing her ability to talk, but she always recognized Nick’s voice. She adored having him by her side; whenever Nick walked into the room, her face lit up, and she raised her arms for hugs. She was the closest Nick was going to get to having a sibling.

“Will she get a job?” he piped up from the backseat. “Or will someone still have to take care of her?”

Small for his age, Nick was just about big enough to stop using a booster seat, but still young enough to be afraid that monsters in the closet were real. 

I’d been wrestling with when to tell him more about Catie. Now, here came this question from out of the blue. 

“Her mom and dad will always take care of her,” I said. My first instinct was to

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Beyond Reason

Kathy Speas

Visiting the dementia unit of a nursing home is never easy.

First off, you have to find your patient amid the assemblage of people–mostly women–seated in wheelchairs, recliners, wingbacks, sofas and assorted walkers, or wandering around. 

Then, you must make yourself known to the person you’ve found. Here’s where the harder questions arise: How can I introduce myself and convey my role–a hospice chaplain–to someone who has outlasted language? Is my state of mind so calm and engaged that my very being will exude peace and generate trust? Am I totally present, or is my mind bouncing back and forth between tomorrow and yesterday? And just what does it mean, as a hospice chaplain, to provide spiritual support to someone at the end of life?

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Five Years to a Cure

Ellen Diamond

Recently, while reading a post in an online chat group for people with chronic lymphocytic leukemia (CLL), I spotted an intriguing comment. At an important conference, a world-renowned hematologist had referred to a “five-year timeline” for a cure.

This took me back fourteen years, to when I’d just been diagnosed with CLL. There was a Gilda’s Club near my workplace; I’d always passed it quickly on my way home. Now I found myself stepping through the doorway to hear a top specialist talk about my disease.

I recall his closing words: “Give me five years, and I’ll give you a cure.” 

As desperately as I wanted to believe this pronouncement, I felt reluctant to pin my hopes on it. Fourteen years later, my skepticism remains. 

I’ve heard many CLL experts make similar predictions, but despite great advances in research and treatment, no one with CLL has ever been cured. I’ve never doubted the doctors’ sincerity and good intent, but at times I’ve felt quite angry at their willingness to raise their audiences’ hopes in this way.

Given the facts, how can they

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Remembering John

Hilton Koppe

I remember you the day we met. It was five years ago. I was terrified. You seemed relaxed and at peace. I’d been invited to join the Lennox Head Club, in the town where I live and work; this over-thirty-five match was the first game of soccer I’d played in twenty-five years. I was the oldest on the team. You were the youngest. For you it was just the start of another season, your loping, languid style belying your skill and your speed.

I remember you sitting next to me in my car on the long drive home from a game at Nimbin. You telling me about your long journey with Crohn’s disease, about the colectomy you’d had in your twenties and about your two broken bones last year. I couldn’t stop myself from being a doctor and suggesting that you get your bone density checked.ch

I remember you sitting in my consulting room. We had many years of shared conversations–me offering ideas, and you running your race in your own way, not always by the book, but always with great intelligence

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House Call

Kendra Peterson

I approached my father in the yard of his most recent home, a small, run-down duplex shack. His hair was whiter than I remembered, his old blue sweater shaggy. He was clipping the hedge in his careless but enthusiastic way; when finished, it wouldn’t look good, but it would look clipped. 

One of his eyes was red and tearing up. A splinter had flown into it as he trimmed the boughs above his head. He hugged me nervously, and we went inside. 

He pushed a stack of newspapers off the sofa, and we sat down and awkwardly tried to talk. The cramped living room was dirty, and dominated by boxes and piles of books. 

“Just moving in,” he apologized. He rubbed his eye, and I told him not to. 

My father was sixty-two years old. For much of his life, he’d been an accomplished university professor of American history, and a charming and eccentric character. But in the past few years, he’d taken many wrong turns: He’d increasingly used illicit drugs, including cocaine and methamphetamine, and had been arrested for drug possession.

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An Orphan’s Tale

Peter Ferrarone

At the outset, I confess that I have no experience in the medical field. I’m not a doctor or a nurse; I’m a recent college graduate, a writer and someone who’s interested in the world. And, all last summer, I was a volunteer in Uganda. 

I’d met a Ugandan priest who was visiting the States on a lecture tour. He described his work overseeing an orphanage located in Western Uganda, a day’s bus ride from Rwanda and Kenya. When he invited me to go and help out there, I accepted.

Upon arriving, I discovered that the orphanage was a small, broken-down concrete house perched on a hill above a muddy soccer field. The building had four bedrooms and no running water. The yard featured a wandering mountain goat and a smelly outhouse with a faulty latch. 

Fifteen orphans lived there–eight girls and seven boys, ages eight to twenty-one. In summer, when the schools let out, as many as ten more children came to stay. 

Life at the orphanage ran along unusual lines: There were no adults on hand, so the oldest orphans

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Cadaver Happy Face

Rachel Willis

Sitting with my mother in a white-walled exam room, awaiting the surgeon’s arrival, I felt happy. 

Earlier this spring, I’d landed hard on one leg during a volleyball game and collapsed, hearing my knee make a terrible cracking sound, like all ten knuckles firing off. When I resumed playing, after several weeks of rehab, it happened again. 

Now we were awaiting the MRI results.

You’d think I’d be nervous. I was seventeen, college-bound on a full-ride volleyball scholarship. Would this injury jeopardize that? But I felt glad–and touched with a kind of glamour. During hundreds of boring or grueling practices, I’d longed to sprain an ankle or break a leg. Now I had an iron-clad excuse to duck the huge workout packet my college coach had sent. 

My doctor bounded in. A tall African-American man in his fifties, with white hair and beard, he radiated energy. 

I liked him–his energy, the contrast of his bright white hair and brilliant smile with his dark skin. 

Swiftly, he pulled an MRI image from its envelope, clipped it to a board and pointed. 

“That,” he

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July Intern–Taking Off My New White Coat

Heustein Sy

I became a doctor of internal medicine in my home country, the Philippines, in 2005. The following year, I immigrated to the United States. In order to practice medicine here, I must complete one more journey–a three-year medical residency in the U.S.

My first week at the hospital has been a hectic blur–one task right after another. I’ve been existing on minimal amounts of sleep, food and social contact and maximum amounts of coffee.

Inside my head, though, this week has also been all about me. How lucky I was to have been picked for this coveted residency in this highly regarded hospital! How can I regain my rusty diagnostic skills? How do I look in my new white lab coat?

Rushing here and there, checking on lab results, taking comprehensive histories from patients, doing my best not to miss a single differential in the most ordinary cases and trying to impress my seniors, I’ve felt a bit like Superman: I’m saving lives!

At times, I’ve slipped into a state of mind where every patient becomes just a room number and every diagnosis just a billing code with its corresponding treatment algorithms. When I’m in that zone, time passes quickly.

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What About Bob?

Joseph Fennelly

The time: early one morning, thirty years ago.

The place: my local hospital.

At this point, I have been an internist for twenty years. I’ve just entered the cardiac care unit, where my patient Bob, a ninety-five-year-old man with advanced senility, has been brought because he’s having chest pain. 

As I step through the door, Bob codes. The young residents and staff swing into action, rushing the crash cart over to his bed.

Quickly, I jump between them and Bob. 

“Don’t resuscitate him!” I shout.

Looking stunned, they eye me as I stand there with folded arms, making myself into a human shield.

Bob lies motionless, not breathing, his monitor registering occasional spontaneous heartbeats.

Suddenly it hits me: I need to see the situation through these young residents’ eyes. After all, isn’t this a patient in the cardiac care unit? Aren’t his monitors signaling a heartbeat? And isn’t their duty to protect life? 

To help them understand why I’ve staged this aggressive assault on their training in high-tech medicine, I must help them to understand Bob. They need to know this gentle,

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