fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Stories

Dear Joseph

26 Comments / Stories /

Michael Terry

I stood right beside them as they slowly slid your head into a plastic bag, looped the coarse twine about your neck and tied it tightly. Like the amateurs they were, they double-knotted it to make sure nothing came loose or dripped out. Then they casually walked away, chatting about what would come next.

Within minutes the bag fogged up, and a clear red liquid pooled at the bottom.

That was just the beginning of the ritual.

I’m sure that under other circumstances you would have put up a fight, Joseph, but today you were no match for them. No matter that they were six slender twenty-somethings, and you at least six feet and 250 pounds; you were on their turf and utterly at their mercy.

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Secret Admirer

28 Comments / Stories /

Kristen Nace

You will never see my face or know my name. You probably won’t give much thought to what happens to your blood after your doctor says, “I think we need to run some tests,” and the phlebotomist draws it into the tubes with their colored tops. I know I never did, until I became a medical laboratory technologist.

Over the course of a normal day at the hospital lab, my coworkers and I process hundreds of patient specimens–everything from blood to bone, from sputum to spinal fluid. Twenty-four hours a day, 365 days a year, the specimens come to us from the hospital’s ER and ICU, from doctor’s offices and nursing homes, from the inpatients on the floors above us and from outpatients who walk in through the hospital’s doors.

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The Couple Next Door

12 Comments / Stories /

Kelly McCutcheon Adams

In 2005, my husband and I bought a small farmhouse in northern New England next door to Tom and Sally.

They were in their early seventies, married nearly fifty years, with a large family. Tom’s grandfather had built a farmhouse in 1900 on the family’s small pig farm. In the 1970s, Tom and Sally had parceled off the land and built a modern house for themselves, a stone’s throw from the old farmhouse that eventually became ours.

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All in a Night’s Work

5 Comments / Stories /

Isaac Song

I was a college freshman, just starting out as a rookie EMT with the local rescue squad. In the squad building, located near a strip mall in our suburban New Jersey town, my fellow volunteers and I joined the staff supervisors to spend days or nights on call.

On a rescue squad, I quickly learned, patience is key. If you visited the building, you’d see seasoned EMTs lounging around as if they had nothing better to do. They had developed a subdued alertness that let them relax while also being ready to leap into action. Unfortunately, I had yet to cultivate this quality; I sat in silence, jittering apprehensively.

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Solitary Confinement

14 Comments / Stories /

Stewart Decker

 I’ve made a huge mistake, I thought.

The fever had come back. The fever had come back, and I was stuck on a bus. The first of five buses, actually….

I am a fourth-year medical student at the University of Minnesota, but right now I’m a long way from home. I am spending a year in South America, studying international public-health issues by working in emergency rooms, non-governmental organizations (NGOs), social projects and surgical suites.

When this story began, I’d been living in a small, remote town called Central Yuu, in the Ecuadorian jungle, helping the villagers to build a potable-water spring-protection system. It was on a rainy day there that I collected a connect-the-dots pattern of insect bites on my ankles.

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Eleventh Hour

16 Comments / Stories /

K.D. Hayes

Uncle Walt died this morning. Finally.

 I say “finally” because I believed this day would come four months ago, when he had emergency bypass surgery.

At the time, I didn’t believe Walt would live; he was an ailing, seventy-seven-year-old man with severe pulmonary disease. When his heart started to hurt one Friday, his doctors told him, “With bypass surgery, you might live. Without it, you’ll be dead before the weekend is over.”

Walt’s oldest daughter and my parents, who were with him, told me about the doctors’ recommendations.

As a retired paramedic, I’d seen this scenario before–often enough to have a strong opinion, and my own advance directives.

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Concierge Care

31 Comments / Stories /

Deborah Pierce

I am a family physician. Like most of my colleagues, though, I must sometimes step out of the comfort of my clinical role to take on the role of patient or family caregiver.

Generally, these trips to the other side of the exam table inspire a fair amount of anxiety.

During visits to the doctor, I find myself noticing many details and comparing the quality of care to that in my own practice. I worry about how the doctor will relate to me–will I be viewed as a knowledgeable colleague, or as someone who knows relatively little? Will my background be treated with respect? Will my needs as a patient or caregiver be acknowledged? The uncertainty eases only when the physician wins my trust by showing both competence and caring.

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Catching My Breath

7 Comments / Stories /

Pam Kress-Dunn

When he was five, my son Daniel went through a rough patch with his asthma. Both he and his sister Allison had been diagnosed the year before, when we were living in Colorado. I never knew if it was the fault of the pollution that too often smeared our view of the mountains, or my then-husband’s two-pack-daily cigarette habit. Or was it the unspoken shriek of anxiety?

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Be Lucky

15 Comments / Stories /

Kenneth Zeitler

In 1996, visiting a mall during an out-of-town trip, I suddenly felt dizzy while descending on the escalator. The sensation rapidly resolved, but to be on the safe side, I went to a local emergency room. My evaluation included a CT scan of my head; the results, I was told, were “normal.”

Shortly after returning home I received another call. The CT results were not normal, and I should see a neurologist to have an MRI scan.

I panicked, as anyone would, but I had more reason than most: I’m a medical oncologist. I knew the implications of this news, and they were mostly quite dire.

The MRI revealed a brain tumor, likely “low grade.” I found this a bit reassuring–but still, it was a tumor in my head! And its specific nature was unclear.

I felt tremendous sadness and fear for my family and for all that I would miss. I was only forty-six. My son was to enter Northwestern University in the fall, and my daughter was a junior in high school; their lives were just beginning. My wife would be a young widow.

After consulting with my physicians, I decided on watchful waiting, with monthly

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Supersize Me

22 Comments / Stories /

Edward Thompson

Donald is large. Very large.

At more than 600 pounds, he is a mountain of flesh with a small opening at the top through which he speaks.

“My stomach hurts,” he says, his voice surprisingly high and childlike.

It is 10:00 pm in the emergency room, and I am already swamped with patients I’m trying to move through the ER before my shift is over.

Asked if he’s ever felt this kind of pain before, Donald says, “No, never. At least, not like this.”

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Imagine

18 Comments / Stories /

Linda Koebner 

“Her vitals are fine,” the nurse told Besarta’s mother during a rare visit to the family’s basement apartment in the Bronx.

Besarta’s mind is also fine–sharp and clear. She asked me to use her real name in this story.

Her twenty-five-year-old face is beautiful and flawless, despite the howls of frustration, rage and pain she directs at her family, at fate and especially at Friedreich’s ataxia, the disease that controls her.

When I come for our weekly visit, Besarta’s blue-green eyes smile at me from where she sits in her wheelchair. Then her head suddenly wobbles sideways. Her face smashes against the chair’s headrest–first the right side, then the left.

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After the Flood: Remembering Sandy

27 Comments / Stories /

Lois Isaksen

Oct. 29, 2012

We’d just received word: within hours, Hurricane Sandy would hit New York City. As an emergency-medicine resident at NYU/Bellevue Hospital Center, I was working as fast as I could–examining patients, suturing wounds, setting bones, running families to the hospital pharmacy before it closed.

The lights flickered once, but I did not take it as the omen it was.

After the Flood: Remembering Sandy Read More »

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