fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Stories

Not Knowing

A few days after I’d rotated off the adolescent ward at the university hospital where I was a second-year pediatric resident, I stopped in at Billy’s room to see how he was doing. He was pale, with a few fresh bruises below the sleeves of his hospital gown, but his big brown eyes brightened when he saw me.

“Where’ve you been?” he asked.

“She had to go to work on another ward,” his mom said, rubbing his forearm gently. “I told you that, remember?”

Not Knowing Read More »

A Family History of X

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

When I was diagnosed with breast cancer, my doctor, Dr. Thompson, who looks like the comedian Norm MacDonald and tells smart-ass jokes and likes to draw stick-figure breasts on a whiteboard to show surgical options, asked, “Do you have a family history of breast cancer?”

He had already drawn a series of disembodied breasts before he asked this. The breasts were squared off, with Lego nipples—nothing Victoria’s Secret-ish, nothing human.

A Family History of X Read More »

A Little Bit of Lagniappe

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

Throughout my pediatrics clerkship as a third-year medical student, I resisted the urge to say “sha.”

“Sha,” as in “Sha baby,” “Oh sha,” or “Come here, sha.” “Sha,” a term of endearment, an instinctive utterance at the sight of something cute—for example, all of my patients in the newborn nursery. “Sha,” a word from Acadiana, a word that only people from Acadiana use.

A Little Bit of Lagniappe Read More »

Superpower

I sometimes tell my children that they have superpowers—usually when they’ve done something amazing, unique or powerful.

I’d like to think that I, too, have a superpower: I can move physical pain from a 9 to a 0, just with my thoughts.

I’ve been practicing this power—honing it—for more than twenty years now.

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What’s Left Unsaid

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

Standing with the rest of the medical team outside the hospital room of our first patient of the day, the attending physician nods impatiently at the resident to get started with morning rounds.

“Right, uh,” she fumbles, before finding her footing. “Philippe Dubois. Twelve-year-old boy with Duchenne muscular dystrophy. Here from Québec with his father for annual follow-up. No change in medications….”

As a first-year medical student, I’ve already watched enough medical dramas to know that this is how reports are given—in cold, clipped sentences that reduce people to patients, patients to diseases, diseases to signs and symptoms and stereotypes. Rich life stories lost in translation.

What’s Left Unsaid Read More »

Her Call Was Tougher Than Mine

“Is he in pain?” Joshua’s mother asked, after I told her who I was. She had finally answered the phone after fifteen days of letting my calls go to voicemail.

“I don’t think so,” I answered. The truth was, at that point in my early career as a pediatric resident, I didn’t know whether he was in pain. “We’re giving him medicines to keep him comfortable.”

“Okay,” she said. I could hear young children laughing in the background. I knew from her obstetric records that she had five besides this newborn.

“Any questions?” I asked.

Her Call Was Tougher Than Mine Read More »

Next of Kin

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

The Early Nineties

A number of things happened the moment I realized I was gay. From the moment I came out to myself and to those around me, I felt the scales fall from my eyes. The sky was brighter, the air crisper. I felt free, excited by the world and all it had to offer.

How could it have taken forty-four years to work this out? I kept asking myself.

Next of Kin Read More »

The Dreams That Bring Us Here

It is a quiet Thursday evening in the fall of 2015 at the Dara Medical Center in Brooklyn, where I’m volunteering as a medical observer. The Center is almost empty. At the far end of the corridor, I see an elderly man wearing a black sweater and eyeglasses. His face is pale; his eyes and hands are creased and wrinkled.

“Where are you from?” he asks.

“I’m Palestinian,” I answer.

“Pakistan?” he replies incredulously.

The Dreams That Bring Us Here Read More »

New Normal

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

When I finally got to take my newborn son home, after an almost six-week stay in the NICU, the social worker said, “You will be his advocate. You will know him better than anyone. And you will find your new normal.”

My son’s diagnosis was that he would never walk or talk. After his brain MRI, I felt that the hospital staff looked at us differently. My son’s life—and, by extension, our lives—would be different.

New Normal Read More »

Myrtle Beach

Babies are not made of plastic.

In both their distribution of mass and their texture, the feel is utterly different. Babies are warm and soft and plump and pink. Their heads are bowling balls.

New mothers are uncomfortably aware of this fact, as I’ve observed many times in my role as a pediatrician.

Myrtle Beach Read More »

A Different Shade of Black

Editor’s Note: This piece was a finalist in the Pulse writing contest, “On Being Different.”

Ask any medical student what makes them unique among their peers, and you’ll almost certainly be treated to a two-minute answer that’s been rehearsed in countless mock interviews and essays as part of their preparations for residency applications.

It’s ingrained in the collective medical-student brain that to be recognized, we must stand out–constantly looking for opportunities to demonstrate our unparalleled competence.

A Different Shade of Black Read More »

The Battle of Britain

It was winter, and I’d been seeing Raymond in his home for occupational therapy for more than a month. The home health agency physician’s orders had been to evaluate and treat him for home safety, and I was working closely with the nurse and social worker from the same agency.

Unfortunately, the social worker and the nurse were at odds over the need for Raymond to move into a nursing home.

The facts were stacked against him.

The Battle of Britain Read More »

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