fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Stories

Selfie

12 Comments / Stories /

Melanie Di Stante

In 2000, my husband Brian was diagnosed with Stage IIIB Hodgkin lymphoma, which has since become a prominent part of our lives. My children and I belong to Gilda’s Club, a cancer support community, and recently we were asked to help record a promotional video to be featured at a fundraising gala for the local chapter and on the club’s website.

I’m not a “spotlight” kind of girl, and I don’t feel drawn to video cameras or speeches, but I’ve been going to two Gilda’s Club programs–a caregiver-support group, and a writing group–for nearly five years. Everyone is nurturing, supportive and so nice. My son Marco and daughter Gabriella also attend a group, where they do projects to help build resilience for kids impacted by cancer. It’s priceless, and it’s free.

If this is something I can do to give back, I thought, I’ll do it. My kids were on board as well.

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A Mother’s Son

10 Comments / Stories /

Hugh Silk

“Why do you want to go into family medicine?” my internal-medicine preceptor asked.

It was an innocent enough question. I’d known from day one of medical school what I wanted to do, so I answered with confidence, and perhaps a bit of a chip on my shoulder.

“I love being with people and getting to know them,” I said. “I’ve always been this way, so it makes sense that’s what I would do for my career. I’m looking forward to having the long-term relationships and seeing where they go.”

A raised eyebrow, followed by his knowing Irish brogue: “I applaud that. My own father was a GP in Ireland. But I’m afraid you won’t find much of that in one month on the wards. This will be a chance, however, to learn your medicine well.”

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A Conversation About Race, Fear and Connection

15 Comments / Stories /

Paul Gross

In the wake of recent events, many speak about the need for conversations about race. In our country, the implications of race are a moral issue, a humanitarian issue, a justice issue and, yes, a medical issue. (One need only examine how racial categorization affects rates of death.) But what would this conversation about race look like?

Today, Pulse’s editor provides one offering. In August, we’ll invite all Pulse readers to join in with their stories, when Race will be the theme of More Voices.

I grew up in Stuyvesant Town, a middle-class housing development just north of Fourteenth Street on the east side of Manhattan. Built after World War II, Stuyvesant Town was a leafy and desirable place to live. There was a long waiting list to get in, and priority was given to World War II veterans, like my father.

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Killer Shrimp Ceviche

6 Comments / Stories /

Kristin Hirni

It’s October, and I’m a second-year medical student. My best friend Carly and I have just finished a backpacking trip through South America. We fly out tomorrow from Lima, Peru, and we have just one thing left to do: eat shrimp ceviche, the classic South American dish of raw seafood marinated in lime or lemon juice, oil and spices.

We wander along the busy streets until we find the restaurant our hostel’s desk clerk recommended. It’s a small, dingy joint that doesn’t look up to the current health code, but I don’t give that another thought once a giant bowl of amazing shrimp ceviche is placed in front of me.

It’s incredibly delicious, and we quickly demolish it.

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Blindsided

9 Comments / Stories /

Alice Y. Kim

When Teresa showed up forty-five minutes late for her appointment, I sighed. I knew this would disrupt our clinic’s afternoon schedule.

That was nothing unusual, though. The clinic treats large numbers of patients who are undocumented, homeless and uninsured, and many must walk or take public transportation to get here. After seven weeks on rotation here as a third-year medical student, I knew that appointment times were flexible.

As I read Teresa’s notes and recent lab results, the nurse came in.

“Teresa’s blood pressure is 210/122,” she told Dr. Fuentes, the attending physician.

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Happy Feet

12 Comments / Stories /

D. Micah Milgraum

It’s a typical chaotic day on the hospital’s hematology and oncology floor. I’m sitting in a side room with one of my fellow medical students, doing paperwork and making follow-up calls for our medical team.

That’s when the music starts. The sounds of two guitars, a tambourine and a few maracas drift down the hallway. I can’t make out how many people are singing, but the happy voices and the song’s upbeat tempo make me curious: I never thought I’d hear this type of music on the “cancer floor.”

As I look up in surprise, Kevin, our team’s intern, appears in the doorway.

He catches my eye, and after a moment, we both start bobbing our heads to the beat. He makes swaying motions, as if he wants to dance.

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Showing Up

9 Comments / Stories /

Sarah Bigham

Years ago, as I left my college dorm room, the posters caught my eye. Plastered everywhere, they announced a bone-marrow drive led by a fellow student in search of a match for his brother, diagnosed with cancer.

A confirmed needlephobe, I’d recently fled a Red Cross blood drive at the mere thought of the tourniquet. Registering as a bone-marrow donor seemed like a terrible idea–but the sibling connection grabbed me and wouldn’t let go. The eldest of four, I pictured my sisters and brother at home, two states away. If any of them had developed this terrible illness, I knew that I, too, would implore my classmates to be tested. So, with several friends, I made the trek across campus to register and have my blood drawn.

I hope someone here is a match, I thought, looking around at the crowd.

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Pain

30 Comments / Stories /

Ronna Edelstein

When my friend Madeline turned seventy, she celebrated in a big way: She walked a half-marathon; she hosted a cabaret for family and friends at which she sang and told stories; she traveled to China. Now, six years later, this dynamic woman has become a virtual prisoner in her apartment. She has undergone back surgery, suffered a nearly fatal intestinal infection and, after a fall, had bolts and screws placed in her hip. Her voice, which once broadcast her energy and joie de vivre, has dwindled to a whisper.

The thread that links all of these bodily assaults is pain. Chronic, intense pain has drained away my friend’s energy and quality of life. No doctor has definitively diagnosed the source of her pain–or been able to find an antidote.

I feel a special sympathy for Madeline because, like her, I live a life in which pain plays a constant role.

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Chemo Brain

10 Comments / Stories /

Rick Monteith

One weekend about nine-and-a-half years ago, I flew from Minneapolis, where I live, to Atlanta for a publishing conference. A colleague and I were to make a presentation to the vice-president of one of our major customers.

For a couple of weeks I’d been plagued by a sore throat, but I’d written it off as allergies or a virus. When I tried to begin the presentation, though, all that came out was a squeak. The VP was very sympathetic, and fortunately my colleague was able to handle the meeting.

I flew home that afternoon. The next morning, I saw my primary-care physician, who referred me to a radiologist for a CT scan that very day.

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First Shower

15 Comments / Stories /

Kristen Knott

“Do you need help getting undressed?” Jon asks from the doorway of our bedroom, one hand holding his BlackBerry, the other tucked into the front pocket of his baggy jeans. His head is slightly tilted, his eyebrows arched, highlighting his forehead wrinkles.

His phone vibrates, drawing his eyes from me to the incoming message. I wait.

Jon reads, ponders and then looks up, half-absorbed in what he’s just read, and registers that I’m still on the bed. His face lights up.

I now have his full attention.

“I think I can manage,” I say, “but I may need help with my shirt.”

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Guinness

16 Comments / Stories /

Linda E. Clarke

Once upon a long eighteen years ago, I got sick.

I was just finishing ten years of hospital-based ethics work, and at first I thought that the work had made me sick. I thought that the stress of hearing so many difficult stories, of witnessing so much suffering, was hurting me. I was wrong.

I was sick from a growth in my brain.

The growth was found after I’d shuttled from doctor to doctor, from appointment to appointment, from X-ray to scan. It took a long year. By then, my pain was clothed in shame. Undiagnosed pain does that: It draws the gaze of friends, family and providers. Everyone looks for the cause.

“Soul pain,” said one doctor. “Anxiety,” said another.

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We Pretend That We’re Not Afraid

15 Comments / Stories /

Caitlin Bass

We stand outside in the heat. We swat at the occasional persistent mosquito. We try to ignore the sweat beading down our foreheads and the backs of our necks. We retreat to the deepest recesses of shade we can find. We wish for a hint of a wisp of a smidgen of a breeze. We hold court on life and love. We laugh and tease and are determined to have a good time. We could be in Atlanta or Austin or Anytown, USA.

We pretend that we’re not afraid.

We are afraid, though. Our fear is legitimate: Some people hate us. And some of them are armed and dangerous.

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