fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Stories

Just Middlin’

Alexandra Godfrey

My dad was once a physician for the coal mines in Yorkshire, England, where I grew up. It’s been decades since I accompanied him on his rounds, and fifteen years since I moved to the States and began to practice as a physician assistant in the Appalachian Mountains of North Carolina. But I still vividly recall my childhood days and the Yorkshire dialect we spoke.

Somehow, the seventy-three-year-old woman sitting in my exam room takes me back to that time.

She’s coughing violently–hacking thick yellow mucous into her tissue, spraying the floor with spittle–just as my father’s patients did.

Just Middlin’ Read More »

A Doctor Confesses: I Screwed Up

Marc D. Wager

When I was in medical school, more than thirty years ago, I felt I received pretty good training on how to communicate clearly and effectively with patients and families. I even remember the name of the fictitious character we had to practice telling about his wife’s demise: “Mr. Gottrocks, I’m afraid that your wife has taken a turn for the worse; I think you should come to the ICU right now.” As a pediatrician, more recently, I’ve been trained to discuss vaccines in a nonjudgmental way with parents who, contrary to my wishes, decide not to vaccinate their children.

Despite all of this training, though, and despite many articles on the merits of doctors admitting their wrongdoing, nobody ever taught me how to say, “I’m sorry, I think I screwed up.”

A Doctor Confesses: I Screwed Up Read More »

A May-December Friendship

Hanan Rimawi

Ms. Connie was known, to her delight, as the Jackie Kennedy of Our Sanctuary nursing home. A tall, eighty-something woman who tucked splashy flowers into her voluminous curls, she’d strike up a conversation with anyone she encountered.

These chats were never a half-hearted “How are you?” tossed off before zipping away in her wheelchair. She’d ask an aide if her ailing daughter was feeling better, or check whether the receptionist’s son had heard from his dream college–“I’m keeping my fingers crossed for him!”

Ms. Connie shared a suite with Ms. Alice, a woman who was in her nineties. Ms. Alice was more reserved, but equally good-natured. Morning and evening, you’d find her sitting in her room, absorbed in a book. Despite their contrasting personalities, the two were close friends.

We met when I was fourteen, two years after I’d started volunteering at Our Sanctuary.

A May-December Friendship Read More »

Incidental Finding

Deborah Pierce

“You need to give me the name of a different specialist,” Ashley asserted.

For several years, Ashley, age twenty-nine, has been my patient at the residency practice where I work as a family doctor. Our relationship is not entirely comfortable; after visits, she frequently seems dissatisfied, yet she refuses to see anyone else.

Ashley’s body is a source of distress to her, often developing various pains and discomforts that fade away without explanation. In search of relief, she asks for many tests, but often, when I recommend a treatment, she refuses it or has difficulty tolerating its effects. When we talk, she’s usually very guarded about any aspects of her life besides those directly related to her symptoms.

I often feel ambivalent about ordering tests for Ashley, because all tests carry risks. Mostly, the risks are small. But one big and worrisome risk is the possibility of an incidental finding–something unusual that requires further testing and that would have posed no problem had it gone undiscovered.

Incidental Finding Read More »

Unmasked

Carly Bergey

It’s called a missed miscarriage: You arrive, as I did, at the doctor for your first-ever pregnancy appointment, suffering from morning sickness and filled with joyful anticipation–only to learn that your body has not yet registered the death of your small embryo. Despite all of my doctor’s tinkering and double-checking, the ultrasound screen showed no movement. There was just the outline of a baby in me, quiet and still.

Hoping for a natural miscarriage, I told my coworkers what had happened, but asked that we not discuss it at work.

Day after day, I went to the Denver office where I worked as a speech pathologist, carrying my baby deep inside me, like a single stitch woven within fold after fold of tissue and blood.

I was asking my body to let the baby go. My body refused. So the waiting continued.

Unmasked Read More »

Hearing Voices

Robert Burns

“She’s been hearing voices,” says Adala’s nephew Diri. “She hears them every night.”

The three of us sit in an examination room of my private geriatrics practice. I’ve been in a community-based practice in Memphis, Tennessee, for nearly twenty years.

Adala is a tall, slender woman. Dressed in a gray-blue guntiino, a long piece of cloth tied over the shoulder and draped around the waist, she has her head covered with a shawl. Her gaze shifts from her nephew to me; her eyes search my face and then stare silently at the floor. Despite the differences in culture and language, she is like many of my patients brought by a family member. She’s not here by choice; she came in deference to Diri’s wishes.

Hearing Voices Read More »

Brave New World

Rosalind Kaplan

I think a lot about quitting medicine lately. A lot.

Then I have a morning like yesterday morning:

I see a patient I’ve known for more than twenty years, caring for him through an adrenal tumor, a major gastrointestinal surgery and now renal failure, for which he needs a kidney transplant. As we review his last set of labs (stable, thank goodness), he is sanguine, hopeful. He may have found a donor, and he might make it to transplant without dialysis. He has to live–he has a wife and a child.

Next, I mess up my schedule entirely by spending more than half an hour with a patient who only came in to talk–not about herself, really, but about her husband who has just been diagnosed with a probably fatal illness. I break all of my own rules and tell her what I’d do if this were my own husband–how to push him to get emotional support, where to go for a second opinion….When she leaves, we hug like sisters.

Brave New World Read More »

Heart and Soul

Fredy El Sakr

“Help!” I yelled out of our open apartment door.

I was seven years old, and my family had recently emigrated from Egypt to the US. We’d been feeling elated that week because, after months of interviews, my father had matched into a pediatric residency.

That morning he’d awakened feeling nauseated. My mother and sister went to buy some soothing food. I noticed that he’d vomited in the bathroom; now he was feeling worse.

He knew it was serious, because he put on his brown leather jacket and lay back in our blue recliner, waiting for my mom to return and take him to the emergency room. Now and then he’d look at me reassuringly with deep, dark, pain-stricken eyes, but he was clearly in agony. Then, as I watched, his eyes rolled back in his head.

Heart and Soul Read More »

The Lady Behind the Curtain

Scott Janssen

“Why don’t you talk loud enough for the whole damn hospital to hear you?”

I’ve just greeted my eighty-four-year-old grandmother, and now this irascible voice has erupted from behind the curtain that separates us from whoever is sharing Grandma’s room.

The nursing assistant who showed me in glares across the curtain at the other inhabitant.

“You shut up,” she tells the person firmly, “or I’ll smack you with a bedpan.”

Then she leaves us alone.

The Lady Behind the Curtain Read More »

An American Story

“Mr. Douglas?” I call out into the waiting room. A short, grey-haired man in his sixties staggers towards me, bracing his back with his hands. Despite his pain, he gives me a warm smile, which I return.

As I help him onto the exam-room table, he winces, squeezing my hand.

“I’m a medical student,” I begin. “If you wouldn’t mind, I’d like to examine you before Dr. Smith sees you.”

He nods. “Go ahead, you can learn on me–just don’t break my leg!”

An American Story Read More »

Complainer

Christina Phillips

The patient, age forty-nine, complained of abdominal pain. She was taking both slow- and fast-acting oxycodone to manage the pain, and she also took antidepressants and a sleeping aid. She’d come to the hospital several times in the past year, always with the same complaint. This time, not feeling well enough to drive, she’d come by taxi. The veins in her arms were small, threadlike and collapsed, like those of a ninety-year-old or a recreational drug user.

Her medical file was huge, with reports from her primary-care physician, from local hospitals and from the gastroenterology department of a highly regarded teaching hospital across the state.

Complainer Read More »

Doe Eyes

Andrea Gordon

She burst into tears when I asked if she wanted to get pregnant.

Eman, a beautiful young woman from Jordan, sat in my family-practice office with her husband, Ali, and two adorable children about one and two years old. With her scarf and dark clothing covering all but her pale face and enormous sable-brown eyes, Eman looked closer to fourteen than twenty-four, and scarcely old enough to have any children.

“How can I help you?” I started.

“We wish to remove her IUD, so we can have another baby,” Ali answered.

I don’t think he expected me to address Eman directly.

Doe Eyes Read More »

Scroll to Top

Subscribe to Pulse.

It's free.