fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Denial and Beyond

When Alma first felt a lump in her right breast, she assumed it was a meaningless skin lesion. But it grew, ultimately taking over the breast. Then her skin blistered, thickened, and turned red. Alma knew it was breast cancer—she’d looked up online images of advanced disease but abruptly closed the web pages. She told herself that “cancer doesn’t happen to me.” Though in her 40s, she was her father’s “mini-me,” adored and indulged.

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Unraveling

I entered the world as a rag doll—so poorly sewn together that one pull on a single thread could cause me to unravel. And throughout my more than seven decades of life, many threads have been pulled. Whether I’m receiving exceptionally good news or dealing with inconveniences that I magnify into tragedies, I all too easily become undone and succumb to a tsunami of tears.

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May More Voices: Coming Undone

Dear Pulse readers,

In my work as a physician, I sometimes see patients whose bodies have come undone. It happens. But in truth, I spend far more time reassuring patients that their bodies have not come undone.

That lump is not a cancer.

Your headache is not a brain tumor.

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Working in the Front Office

The phone rings. “Can I see a doctor?”

“We’re fully booked three months out, I’m sorry.”

“There’s nothing?”

Anger builds.

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Being a Caregiver Is Challenging

Being a caregiver is one of the noblest and most challenging roles a person can take on. It requires compassion, patience, dedication and sacrifice. As a medical doctor, I have observed how caregivers make a huge difference in the lives of my patients, and I always try to take time to listen to their struggle.

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A Letter to My Unsung Hero

Dear Veterinary Technician,

It’s been thirty years, but I remember how softly you entered the exam room, holding Marmaduke’s leash. I remember your porcelain skin and beautiful long hair framing your young face. I dabbed my tears with a Kleenex. I didn’t want Marmaduke to think I was upset with her. She’d endured surgery and four months of chemo, but now it wasn’t working. I’d viewed the X-ray of her lungs dotted with metastatic tumors. Hope had turned to cold fear and despair.

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Ordinary People

On my first day at nursing college, everything was a blur. When I came home, my sister asked if I knew the name of the security guard at the college gate. I looked at her like she had two heads! Why on earth would I need that information?

“Trust me!” she said. “It will come handy!”

I rolled my eyes and sighed. But I knew my sister, and she always had a method to her madness.

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My Mom – My Heroine

Times were uncertain. It was World War II, and Dad was overseas, serving in the U.S Navy. Mom and I lived with my Polish grandparents, but she kept their apartment so we would have a place of our own when Dad returned. She worked long hours in a local laundry to make that dream come true.

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True Bravery

Giving ninety days’ notice to leave a job as a family physician at a community health center provided ample opportunity for me to say goodbye to patients. I listened carefully at farewell visits. A Black patient minced no words as she proclaimed to me, a White woman, “I will tell you what I like most about you. You listen and you don’t act like you know more about my body just because you’re a doctor.” Her words made a profound impact on me.

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A Special Kind of Care

I recently had open heart surgery. A highly skilled surgeon replaced my leaky mitral valve, and I’ll be forever indebted to him.

But my surgeon was only one of member of the team that got me through a challenging, frightening, painful experience. Behind him were a legion of unsung heroes, without whom I never could’ve endured. Uppermost in my mind are the nursing assistants.

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Persistence

She was twenty-three years old and had four children. She lived in a small town, and her husband used their one vehicle to get to work each day. She had loads of diapers to wash and put through the wringer, then hang on the line to dry. She had meals to make, a lawn to mow, a garden to tend, a house to clean, and a husband who expected meat and potatoes for supper every day.

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Words of Wisdom

Decades ago, I worked with hospitalized children and their families as a child life specialist on the pediatric unit of a local hospital. We cared for kids from birth through age 18.

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