fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Are You Going to Leave Me?

“Are you going to leave me?” my ninety-year-old patient asks me during our home visit. I was summoned because she’s been pressing the call button on her wrist every hour. An overworked nurse in her assisted living sent an exasperated fax, mentioning that all vital signs are stable, no physical symptoms, but the patient complains of “being uncomfortable.” Anxiety is a diagnosis of exclusion I’ve come to exclude.

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Northern Lights

Lights from the city shade the stars as he awaits the dark. When the maze of stars appears, the distraction and solace eases his pain. Life outside with all of its hazards suits him, feels safer, closer to who he is than any homeless shelter.

After all, he is a survivor, and solitude is a comfort and a path. Flashbacks of Vietnam he can’t shake. It’s easier alone, less shame. The struggle a way of life now.

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A Lonely Death During a Pandemic

He was a spy, or so we thought. He had traveled the world, spoke eight languages fluently, and knew much more about world affairs than your average Joe. He was a typical COVID patient—jolly, no apparent breathing difficulties, just a slight fever three days ago and a positive test. He came to the emergency department (ED) because he had a blood oxygen saturation reading of 88% at home, later determined to be 90% in the ED. We also saw the much-feared blurry white patches on his chest X-ray.

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A Singular Sensation

Even when I share a physical space with people, I tend to be emotionally alone. I am not a social person; instead, I stumble with the small talk essential for human interactions. My shyness and self-consciousness due to my tallness cause me to find a safe spot, usually one in the corner or against a wall, far from the madding crowd.

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Mayday, Mayday

T.S. Eliot was slightly off: I consider May, not April, the cruelest month.

May 8: A birthday, Maril’s. She died of pancreatic cancer—too soon after her brother, my step-father, died of the same disease.

May 10: A diagnosis—the date I learned I had pediatric acute lymphoblastic leukemia, two days before my 14th birthday.

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June More Voices: Alone

Dear Pulse readers,

One autumn evening when I was twenty-two years old, I boarded a bus in New York’s Port Authority bus terminal and headed off with my guitar. Dreams of musical success swirled in my head–new songs I would write, places I would perform–and beckoned me forward.

Over the next several months, I pulled into towns where I knew no one (Columbus, Indianapolis, Cincinnati) and took up a solitary existence. I’d find a cheap place to stay and spend my days alone, waiting for inspiration to strike, practicing the guitar and scoping out places I might play.

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Underneath It All

I was supposed to see Jane for abdominal pain, but within minutes of meeting her, she told me that her boyfriend hits her. Once, so hard that he fractured and dislocated her jaw. She has a lot of bruises, but only in areas covered by her clothes. To the unknowing, Jane appears neatly put together, whole. But, underneath it all, she is unraveling, coming undone.

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Smiles

It feels like wading into cold ocean water. A bit of a shock, and then so refreshing. I step hesitantly out of my office, and then amble down the hallway toward the exam room to see my patient. Both of us will be unmasked. The natural state now requires getting used to all over again.

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Hard Questions

My routine clinic day was interrupted by a startling message. During a moment of extreme stress, a long-term patient of mine left a threatening voicemail on my colleague’s phone. The target of her anger was me. It was difficult to discern her garbled speech in the recording of her screaming, but I heard loud and clear that she intended to find me at my clinic and physically hurt me – or worse.

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I Took My Routine for Granted

I had just returned from my parish of ministry. Little did I think I would not be returning to my office. Visiting the homebound in person was to become a way of the past. COVID-19 had raised its ugly head and my life would never be the same.

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A Soul-Stealing Belief

During my psychiatry clerkship, I encountered a patient with his first primary psychotic episode. He was an African-American immigrant, and his story hit many of my buttons. I connected with him as his journey brought back memories, and I was moved to read up on various studies surrounding his case. I found an article that hypothesized that immigrants from underdeveloped countries had a higher chance of mental illness due to “dysregulated immunoregulation.”

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Missing Pieces

“Your love makes me feel alive,” she says, eyes on the floor, blank faced, looking anything but alive.

This once bubbly girl with a jazzy soul and a voice bursting in major chords, weeping  over the beauty in Chopin’s Preludes, as lights soared beneath her slender fingers moving across ivory keys. Who attended college until her senior year only to suddenly withdraw with a forest fire burning through her mind.

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