fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Allergic Reactions and Swallowing Challenges

My body resists most medications. I had my first allergic reaction at age 20, breaking out in hives from head to toe as I stood in a post-game locker room. I don’t recall the infection I had, but the pill I’d been prescribed to treat it was penicillin. Since then, my allergy list has expanded to include almost all antibiotics except Bactrim, Flagyl, and Macrobid. I also get heartburn from baby aspirin, itching from Vicodin, and dizziness from steroids.

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The Bell Curve

The current daily medication regimen for a lot of people with HIV involves one pill. Granted, there are several drugs in that one pill; they’re all lumped in there together to make it easier for people to comply with the requirement that they take all their meds, every single day. Still, there’s a part of me that can hardly believe it. One pill. One pill! And it actually keeps people healthy!

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Doctors Run When They See Me Coming

I take two medications. One is Armour Thyroid, as I can’t tolerate the usual thyroid medication. The other addresses symptoms of a neuroimmune disease I’ve had for years—allowing me to endure sound and light and stopping the minor seizures I had when I was subjected to those two things. Those meds help me, and I am grateful for them. But the problem is that I can tolerate almost no other medication that doctors have suggested.

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The Shelf of Shame

Round bottles of pills fill one shelf of my medicine cabinet. Only one bottle contains a rather harmless drug: a prescription pill used to fight nausea; that bottle tends to stay full for a long time. The other bottles hold stronger drugs: one for my hypothyroidism; two to reduce my anxiety and stress and allow me to sleep at night; and one, the largest one, whose contents somewhat alleviate the chronic head pain I have suffered for almost two decades due to five jaw surgeries.

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July More Voices: Pills

Dear Pulse readers,

An elderly patient walks into an appointment with her new doctor and empties a bag of medications on the doctor’s desk.

The doctor looks at the heap of bottles and says, “I have some good news for you! I’m going to take you off of all these pills except for three.”

“Doctor, that’s wonderful!” the patient exclaims. “Which three should I keep taking?”

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Finding New Purpose

Having a purpose in life is as critical to one’s well-being as food and shelter. I’ve learned, over my 25 years of doctoring, that a sense of purpose both helps us develop our identity—our sense of self—and connects us to something greater than ourselves.

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Solitude Interrupted, Thankfully

I knew the private room at the busy teaching hospital was a rare luxury.

I had spent the entire day having invasive and uncomfortable tests; I was in the hospital because my left kidney had been partially destroyed by an interventional radiologist who had failed to distinguish between a renal cyst and a renal diverticulum. Thus my left kidney had been ablated with alcohol—twice. I was in pain, infected, and bleeding internally.

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Dust

“From dust we came, and to dust we shall return,” she whispered to me. Her face brightened up her compact 80-square-foot room. I held her hand, decorated with jewels from all around the world. She had just been transferred here from another memory care facility, and I’d decided to sit down with her every Sunday. Stacked in her lap were a Bible, a devotional book, and a journal. “What do you write in there?” I asked, pointing to the beaded journal.

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Against the Current

I feel like a salmon swimming upstream, constantly fighting the current: the current of a system designed to dehumanize students, residents, and patients—a system in which “health” and “care” are often afterthoughts, while profits and media image take precedence.

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Are You Going to Leave Me?

“Are you going to leave me?” my ninety-year-old patient asks me during our home visit. I was summoned because she’s been pressing the call button on her wrist every hour. An overworked nurse in her assisted living sent an exasperated fax, mentioning that all vital signs are stable, no physical symptoms, but the patient complains of “being uncomfortable.” Anxiety is a diagnosis of exclusion I’ve come to exclude.

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Northern Lights

Lights from the city shade the stars as he awaits the dark. When the maze of stars appears, the distraction and solace eases his pain. Life outside with all of its hazards suits him, feels safer, closer to who he is than any homeless shelter.

After all, he is a survivor, and solitude is a comfort and a path. Flashbacks of Vietnam he can’t shake. It’s easier alone, less shame. The struggle a way of life now.

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A Lonely Death During a Pandemic

He was a spy, or so we thought. He had traveled the world, spoke eight languages fluently, and knew much more about world affairs than your average Joe. He was a typical COVID patient—jolly, no apparent breathing difficulties, just a slight fever three days ago and a positive test. He came to the emergency department (ED) because he had a blood oxygen saturation reading of 88% at home, later determined to be 90% in the ED. We also saw the much-feared blurry white patches on his chest X-ray.

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