fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Kathleen Bourque

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A Perpetual Lover

My pain is a cruel and jealous lover. It dictates my days and dominates my nights. It sulks and whines when it feels ignored. It consumes me.

I bargain with it. “Just give me one night, one night to sleep without you, and you can have me tomorrow.” Pain acquiesces. I nestle myself in a barricade of pillows and heated herbal packs that soothe my twisted limbs and drift gratefully off to sleep, only to have Pain invade my dreams. I cry out, though the torture is phantom. I awake, exhausted, to find Pain perched by my bedside, gleefully prepared to exact my promise.

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Maman’s Voyage

My mother stood at the edge of dementia, a wide and terrifying river.  She turned around, glancing back at me with her blue eyes sparkling, her arms outstretched. And then she waded in. I could not reach her in time to keep her safely on shore.

In the early stages, there were days of clarity when Maman would lift her face to the sun, wave in recognition to those of us she’d left on shore, beckoning us to join her. But it was not long before swift currents ensnared her, taking her farther and farther away. Her emotions and memories swirled menacingly as time and place no longer anchored her. She would cry out, “What is happening to me?”

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