fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

After the Fall: What Happened Next

I live in a small town on the River Tay in Eastern Ontario. One day, I was exercising at the gym with my husband, Yogi.

I’d just finished my first leg-machine exercise. As I reached for the grungy logbook, the floor suddenly reeled out from under me.

Am I fainting? 

I lurched to sit down.

“It’s okay, I’m fine!” I assured those around me. But my sudden disorientation screamed that I was not.

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Between

This week marked almost the halfway point of my life: the first half with hearing, the second with deafness and, then, cochlear implants. I’ve lived in between two worlds and cultures, hearing and deaf, never fully belonging to either.

During my first year in medical practice, I lost almost all my hearing in both ears. For most adults, hearing loss is gradual, but for me it was sudden. Despite treatment for autoimmune inner ear disease with some ups and downs, my hearing continued to deteriorate.

I was devastated! After so many years of school and medical training, could I continue to be a physician?

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Home of the Free

Today as a family physician I am disabled in a way that I never could have dreamed in 1997 when I joyfully marched across the magnificent auditorium stage. I wore an ostentatious maroon gown and a green velvet sash, an enormous smile and relaxed shoulders. I shook the presenter’s hand and took hold of my diploma. Four years of delayed gratification, hundreds of thousands of dollars, countless late nights and long days culminated in this moment. The camera shutter in my soul CLICKED eagerly to capture it all.

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Wounded Souls, a Broken System and Me

I became a psychologist because I wanted to be a healer.

At twenty-five, I believed I could save lives through therapy alone—reach into the chaos of psychosis, pull people back with presence and insight and bring them home to themselves. Not with medication. Not with systems. Just one mind in conversation with another. I’d read the stories—Frieda Fromm-Reichmann, Harold Searles, Otto Will. I believed in that kind of power.

Thirty years later, in 1998, I emerged from a Christmas party on Lafayette Street, blinking in the cold, the voices of managed-care executives echoing in my ears.

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On Grieving during Residency

As time passes, I no longer remember her face or her name. But I know what brought her in. And I clearly recall how, as an intern, I walked into her grim hospital room, where two tired parents sat by her bedside: a young woman with a small pimple patch on her forehead.

She was twenty-four and had no chronic conditions—but now no sign of life. I’d spent six months as an intern at that point and was still learning to become a doctor. I’d written down all I could find about her medical history and headed toward her room, not for a second pausing to reflect on the fact that she was just twenty-four.

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Assumptions

Floanne, a fellow nurse, was a close friend of mine for thirty years. She was widely known for the grace and compassion she showed to those around her. Sadly, in her later life, she developed peripheral neuropathy. After a million-dollar workup at a hospital, the physician specialists declared her condition a mystery and therefore untreatable. Flo became confined to bed—unable to stand, walk, hold a book, or use eating utensils without assistance.

Dedicated physical and occupational therapists worked with her, and eventually she regained the use of her hands and could tolerate short periods in a wheelchair.

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Freedom

As a clinical psychologist, I saw many people disabled by intense emotional problems and psychotic illnesses. All were compromised to some degree. Many of the most compromised were inpatients on psychiatric units that I ran, before such units started closing down. Many ended up on the streets. Some were lucky enough to have family take them in.

One man I worked with was different. My psychology chief at the VA knew I taught relaxation therapy and asked me to see if I could help a patient on the spinal cord unit. After he got out of the service, “Tom” had been stabbed in the neck by a robber-addict’s needle. Paralyzed, he had feeling in one finger, but that arm stayed spasmed to his chest.

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Still Sitting Tall

My patient, a middle-aged woman with cerebral palsy, sat beside the exam table in a wheelchair. She had a steady presence about her—a quiet strength that filled the room.

“I used to stand,” she said. “But it’s harder now. My legs don’t work the way they used to.”

She wasn’t seeking pity. She was simply stating a fact. Her face showed both fatigue and resilience.

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