fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

July 2023

Please Keep Your Narcotics

“That isn’t Tylenol.”

It had taken more than half an hour for the nurse to arrive at my bedside with the pills I’d asked for, following my grueling four-and-a-half-hour surgery. I had finally been wheeled into a hospital room at midnight, had pushed my call button, had asked for Tylenol, and then had waited.

“What is this?” I asked, as I handed the pills back to the nurse. The color drained from her face. “It’s pain medication,” she said. “I brought you pain medication.”

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Allergic Reactions and Swallowing Challenges

My body resists most medications. I had my first allergic reaction at age 20, breaking out in hives from head to toe as I stood in a post-game locker room. I don’t recall the infection I had, but the pill I’d been prescribed to treat it was penicillin. Since then, my allergy list has expanded to include almost all antibiotics except Bactrim, Flagyl, and Macrobid. I also get heartburn from baby aspirin, itching from Vicodin, and dizziness from steroids.

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The Bell Curve

The current daily medication regimen for a lot of people with HIV involves one pill. Granted, there are several drugs in that one pill; they’re all lumped in there together to make it easier for people to comply with the requirement that they take all their meds, every single day. Still, there’s a part of me that can hardly believe it. One pill. One pill! And it actually keeps people healthy!

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Doctors Run When They See Me Coming

I take two medications. One is Armour Thyroid, as I can’t tolerate the usual thyroid medication. The other addresses symptoms of a neuroimmune disease I’ve had for years—allowing me to endure sound and light and stopping the minor seizures I had when I was subjected to those two things. Those meds help me, and I am grateful for them. But the problem is that I can tolerate almost no other medication that doctors have suggested.

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The Shelf of Shame

Round bottles of pills fill one shelf of my medicine cabinet. Only one bottle contains a rather harmless drug: a prescription pill used to fight nausea; that bottle tends to stay full for a long time. The other bottles hold stronger drugs: one for my hypothyroidism; two to reduce my anxiety and stress and allow me to sleep at night; and one, the largest one, whose contents somewhat alleviate the chronic head pain I have suffered for almost two decades due to five jaw surgeries.

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July More Voices: Pills

Dear Pulse readers,

An elderly patient walks into an appointment with her new doctor and empties a bag of medications on the doctor’s desk.

The doctor looks at the heap of bottles and says, “I have some good news for you! I’m going to take you off of all these pills except for three.”

“Doctor, that’s wonderful!” the patient exclaims. “Which three should I keep taking?”

July More Voices: Pills Read More »

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