fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

June 2023

Are You Going to Leave Me?

“Are you going to leave me?” my ninety-year-old patient asks me during our home visit. I was summoned because she’s been pressing the call button on her wrist every hour. An overworked nurse in her assisted living sent an exasperated fax, mentioning that all vital signs are stable, no physical symptoms, but the patient complains of “being uncomfortable.” Anxiety is a diagnosis of exclusion I’ve come to exclude.

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Northern Lights

Lights from the city shade the stars as he awaits the dark. When the maze of stars appears, the distraction and solace eases his pain. Life outside with all of its hazards suits him, feels safer, closer to who he is than any homeless shelter.

After all, he is a survivor, and solitude is a comfort and a path. Flashbacks of Vietnam he can’t shake. It’s easier alone, less shame. The struggle a way of life now.

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A Lonely Death During a Pandemic

He was a spy, or so we thought. He had traveled the world, spoke eight languages fluently, and knew much more about world affairs than your average Joe. He was a typical COVID patient—jolly, no apparent breathing difficulties, just a slight fever three days ago and a positive test. He came to the emergency department (ED) because he had a blood oxygen saturation reading of 88% at home, later determined to be 90% in the ED. We also saw the much-feared blurry white patches on his chest X-ray.

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Mayday, Mayday

T.S. Eliot was slightly off: I consider May, not April, the cruelest month.

May 8: A birthday, Maril’s. She died of pancreatic cancer—too soon after her brother, my step-father, died of the same disease.

May 10: A diagnosis—the date I learned I had pediatric acute lymphoblastic leukemia, two days before my 14th birthday.

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June More Voices: Alone

Dear Pulse readers,

One autumn evening when I was twenty-two years old, I boarded a bus in New York’s Port Authority bus terminal and headed off with my guitar. Dreams of musical success swirled in my head–new songs I would write, places I would perform–and beckoned me forward.

Over the next several months, I pulled into towns where I knew no one (Columbus, Indianapolis, Cincinnati) and took up a solitary existence. I’d find a cheap place to stay and spend my days alone, waiting for inspiration to strike, practicing the guitar and scoping out places I might play.

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