fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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July 2022

The Power of Choice

Decades ago, an acquaintance gave birth to a son I will call Sam. Despite his handsome appearance, Sam suffered from multiple challenges: he was blind, deaf, mute, and incapable of walking or of self-care, and he lacked any brain activity or emotional connections. Sam spent his life—which lasted into adolescence—in a wheelchair, oblivious to the hours, dedication, and money his supportive parents spent on him. While I know that his three siblings felt sadness for Sam, they also demonstrated signs of resentment, because the attention he needed deprived them of much-desired one-on-one interactions with their parents.

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