fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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March 2020

When Babies Died

I arrived at Boston City Hospital in 1986 as the new 38-year-old chief of child neurology. I soon realized that many of our tiny patients were dying from AIDS. The pediatric cases were the victims of “vertical transmission,” due to their mothers’ being infected. There was no treatment. Zidovidine (AZT) was not yet approved for pregnant women or their babies. So the mothers transmitted the virus to their babies and the babies got sick and died. 

When Babies Died Read More »

Do I Stay or Do I Go?

Looking out at a metal awning, I sit with my view from this hotel room in North Carolina. Do I stay or do I go?

Three years ago, my older son, who was immune naïve and compromised, got a probable viral pneumonia which progressed much like we know coronavirus does into a heightened inflammatory response. He was intubated on day five and died on day sixteen. I know what this looks like.

 My younger son has been deployed to Afghanistan for nine months. He was due back to North Carolina yesterday.

Do I Stay or Do I Go? Read More »

Sounds

Sounds

Sound comes crawling through, leaping
from its suitcase of slightly sweaty skin
across to the diaphragm, a divide keeping
him from me, now breached, the world now open
crawling up a well-used black rubber tunnel
to my ears, calling to me, waiting to begin
knowing, albeit briefly, the mysteries within.
Slow, deep whoosh, slow, deep rumble,
in, out, in, out, in, out, the rhythm of breath,
repetition, ancient, magnificent, humble,
sucking in precious oxygen, grabbing it softly,
a deal in exchange for recently used air
now full up with carbon dioxide mostly,
a winning deal though the oxygen doesn’t care.

Sounds Read More »

Care Package from Afar

Within a week of the news about the coronavirus outbreak in Wuhan, China, many people panicked and bought all the facemasks off the shelf. Over one of our lunch breaks, my colleague in the immunology department told me she recently sent a box of masks to her mother in New York, because the stores there ran out of masks. My colleague and I agreed that the panicked reaction to the virus in America is laughable. Those affected here would be properly quarantined, and it would take several weeks at least for the virus to fully spread. The countries adjacent to China had many more worries than we did, we agreed.

Care Package from Afar Read More »

The Spanish Flu Hits Home

I’m very sensitive to contagious illness; I have an almost nonfunctioning immune system. Even before the coronavirus, I wore masks on my limited outings and washed my hands often, telling people who were sick to come see me when well. But that’s not the story I want to tell.
At age twelve, my mother was hit by the flu of 1918, but recovered. When the same flu hit even more ferociously in 1919, she was the only one well in the home, due to her immunity. Her parents, grandparents and the three of her five sibs still living there all got sick.

The Spanish Flu Hits Home Read More »

“I’m An Ass. Sue Me.”

Although my training, in both internal medicine and nephrology, was excellent, I was lamentably green for some time when it came to the practical aspects of medicine. I did, however, learn one lesson early on.

One day, I rose from my office chair to greet a new patient who walked in slowly, supported by a cane and holding the arm of a much younger man, who helped her into her seat before taking his. To me, she appeared to be “old,” because in those long-ago days I thought of anyone over sixty-five in such terms. 

 

“I’m An Ass. Sue Me.” Read More »

Carpe Diem

I grew up hearing about the flu epidemic of 1918–and knowing how contagious disease can affect a family’s history. My 26-year-old paternal grandfather died in that epidemic; he left behind his 23-year-old wife and my dad, not quite three years old. This tragedy determined the trajectory of the lives of my beloved grandmother and dad; it left a hole in our family tree that no amount of time could ever fill. 

Carpe Diem Read More »

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