fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

May 2016

Hope

Who knows how many voices created the cacophony that filled the waiting room that night? Words, wails and whispers gave sound to the gamut of human experiences and emotions. But as I listened, I heard one clear, unwavering note that floated above the clamor.

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Green, White and Sterile

The young, black-haired waiting-room receptionist, in a voice that is pleasant and professional but too loud, instructs those of us who are waiting–grey-haired and balding, strangely like me–where we should go for the next phase of our lives. So many are told to go to the critical-care waiting area that I worry that young black-hair knows no other destination. I have an urge to educate her about the “everything’s fine, no need to worry” waiting area and to speak a little more softly, but I think twice about it since, like all the people working here, she seems so powerful, and we, right now, are just weak, worried wait-ers.

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“Hug Lady, Pretty Dress, Crying?”

I am sitting in the all-too-familiar waiting room of my local emergency department on a Saturday night in July. I am here with my daughter, Ashley, who is nineteen but could pass for a typical twelve-year-old—until she starts to talk. Ashley has a rare genetic disorder. On the good days I laugh and say that she will make a great ventriloquist because she talks without ever moving her lips. This is not a good day. She has a fever, a wet cough, and she snuggles up against me.

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Seeing is Believing

For months I spoke, but no one listened. Not my dad’s primary care physician. Not the physician’s assistant. Not the nurse. I described the “attacks” my ninety-six-year-old dad was experiencing: loss of awareness of his social and physical environments; inability to stand on legs that had turned rubbery; skin that looked pasty and felt sweaty. “Give him orange juice,” I was told. “His sugar has probably dropped a bit. And don’t worry.”

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Time Bomb

A lot of waiting goes on in hospitals, and not just in the so-called “waiting rooms.”
I lie in bed waiting for the next day to arrive. It is a small room with an eraser board where, on the next day, I can mark the estimated gestational age at twenty-four weeks and two days, far short of a normal forty-week pregnancy. The bleeding that brought me here has stopped, and now I’ve started my “count up” ritual toward the day of delivery.
I start the next few days with a good attitude. I plan to use this forced bed rest to study for my board recertification and to catch up on friendships. It is hard to understand why each day ends with tears, feeling crazy and watching QVC, thinking that makeup is the thing I need to survive this maternity ward.

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Waiting for Godot

The Scene: The crowded waiting room of a busy, university hospital dermatology practice on a day when Mohs surgery and other treatments of skin cancers have been scheduled.
As a patient, you go to one of the business-like receptionists. After giving your name, date of birth, and insurance information, you are told that you can now sit down. No information is available about waiting times.

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