fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Latest Voices

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Latest Voices

Caregiver Unaware

My Dad is eighty-nine years old and has a glioblastoma, the same as former Sen. John McCain. He’s doing well despite his condition, and my siblings and I are surrounding him with support. Someone lives with him full-time, and we have a weekly check-in meeting so we’re all apprised of his current condition and contributing to his health. Based in our home town, my brother and sister are his primary care team; I live two-and-a-half hours away.

In February I traveled there to work from his home for a week. First thing Monday, I took him to a progress appointment

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The Waiting Game

My first three breast biopsies resulted from self-examinations that revealed a lump in my breast. The fourth—and, so far, final biopsy—came after my surgeon felt a mass in my breast during a routine check-up.
Each biopsy brought its own trauma. For biosies one and two, I had to find sitters to care for my two, young children. For biopsies three and four, I had to arrange lesson plans for my substitute teacher. I had to ensure that a family member would be with me during the out-patient procedures, and I had to gear myself up for the IV and anesthetic, both

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An Editor’s Invitation: Not Knowing

This month’s More Voices theme is Not Knowing.

Not knowing is an uncomfortable state for health professional and patient alike. And it’s striking how often, despite my profession’s reverence for knowledge and certainty, I’m unsure–or simply don’t have the answers.

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Full Disclosure

After a long night, the frigid morning air slapped me awake as I walked out of the hospital from just attending a delivery. Once home, I decided I had enough energy to do a “high intensity” workout and signed myself up to go in an hour.

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Tell Me it’s Nothing to Worry About

Bill has always been one of my healthiest patients. In his mid-sixties, I see him for annual check-ups and for one minor complaint or another. He is proud of his healthy lifestyle and has an air of invicibility about him. He often rants about how people are lazy and bring illness on themselves.
I’ve grown accustomed to handing Bill far more reassurance than prescriptions. Until this week, that is, when he pointed to his mid-chest and began to tell me his story.

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The Epithet

She appeared suddenly in the doorway and hissed, “You’re very rude!” 

With her words echoing around the darkened room, the evening nurse stomped off the ward as I went back to assessing my patient.

It was 1966. As a third-year nursing student assigned to the night shift, I shared responsibility for a twenty-bed unit with a nurse’s aide. The evening nurse and I had just finished the two time-honored traditions that occurred with the change of shifts: patient report and counting narcotics. 

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Happy Birthday

“Oh my god, this whole thing was so crazy!” the patient exclaimed, relief tinged with exasperation.

“Yea, that was crazy –,” I caught myself and glanced nervously at the resident, hoping I hadn’t committed a classic medical student-gaffe.

He responded diplomatically, something about having made the right call for the situation.

We should have been in the OR hours earlier, at the first sign of fetal distress. Instead, she was left writhing in pain in the labor bed. I wet a cloth for her face and watched the fetal heart rate drop lower and lower. We helped her

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Lost in the Office

I was always truthful with my patients, and I always assumed that they were, too, in return. One family gave me an early, shocking lesson about telling the truth.

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The Gift of a Lie

Dad’s official death certificate lists “pancreatic cancer” as the cause of his death. His physicians determined this diagnosis after deciding that Dad had insulinoma; they reached this conclusion through a process of elimination after a long series of tests and after examining his symptoms. Specifically, Dad had extremely low blood sugar, causing him to descend into coma-like states where his mind suddenly shut down, his wobbling legs failed to bear his weight and his overall state-of-being deteriorated. The “cure” was to feed him protein and liquids every two-to-three hours, including throughout the night. Dad and I had many deep conversations

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