fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Living on the Edge

“How are you adapting to your diagnosis?” the specialist asked. “What changes have you made in your daily life?”

“I take the phone with me to the barn,” I told her. “That way if I need help I can call.”

She looked at me gently, as one might regard a confused child. Even then, I didn’t expect the heavy blade of her answer:

“There wouldn’t be time.”

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Perspectives on COVID-19: Bonds of Marriage, Part 2

Editor’s note: This two-part series presents the stories of Wim and Jo, a husband and wife whose lives were profoundly impacted by coronavirus (COVID-19).

Jo’s Story

My name is Jo Ann, and everybody calls me Jo. I’m seventy-four years old. I’ve enjoyed teaching grade school for forty-two years and plan to return after COVID-19–if they let me.

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Perspectives on COVID-19: Bonds of Marriage, Part 1

Editor’s note: This two-part series presents the stories of Wim and Jo, a husband and wife whose lives were profoundly impacted by coronavirus (COVID-19).

Wim’s Story

My name is Willem, and I go by Wim. I’m seventy-five years old. I moved to Grand Rapids, Michigan, as a young man with plans to go into seminary. That’s where I met Jo, my wife. We didn’t go together too long before getting married. She supported me while I redirected my studies towards a master’s in education. Since then, I’ve taught grade school, worked in school politics and had jobs in sales before retiring a year ago.

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A Real Family?

A few years ago, a Chicago-area fertility clinic ran a series of radio ads at the same early hour each morning. For weeks, I woke to a woman’s energetic voice cutting through the fog of my semiconsciousness, announcing her gratitude to the center’s reproductive specialists. “Without them,” she proclaimed brightly, “my baby wouldn’t have my blue eyes and my husband’s wide smile.”

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Corona, Contagion, Confusion

Corona, Contagion, Confusion

My husband Joel, age seventy-six, has tested positive for the virus–the new big C.
Joel developed a low-grade fever on March 1. We were in San Francisco, visiting our ten-month-old grandson and his parents. They’d all had bad colds, and our grandson was still coughing and producing large amounts of sticky nasal stuff, so I wasn’t surprised when Joel got sick. (I figured that I eventually would, too.)
We went to a local urgent-care clinic. A competent physician assistant examined Joel, then assured us that he didn’t have the coronavirus: His vital signs were all good, and except for a 100.5° fever, he had no symptoms.
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The Cedenos 2 14 20

Lovebirds

Editor’s Note: During a summer internship with Pulse, medical student Kristen Lee had the opportunity to interview Mr. C, who comes to a Bronx family health center for medical care. He was accompanied by his wife, who never goes to the doctor for herself but frequently joins her husband to make sure that he’s giving his doctor accurate information. They are both immigrants to the Bronx–he from the Dominican Republic and she from Puerto Rico. Their immigrant story is uniquely theirs and also typically American. See their photo at the story’s end.
Mrs. C: I’ve known him for forty-five years. That’s how long we’ve been married. I was old when we got married, like thirty-three. He was seven years younger than me, but we’re still

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King of Pain

King of Pain

I am a retired union plumber with the state of Illinois. I’ve had laparoscopic surgery on both knees, a lower back surgery that required two stainless rods and I’m not sure how many screws, and three cervical fusions. I now suffer from neuropathy (nerve dysfunction) in my feet. They’re painfully numb: A shoe could come off, and I wouldn’t know it. I find it difficult to get around–not to mention embarrassing when I go back into a restaurant looking for a sandal.
I don’t understand why in today’s world, with medical research moving so fast, I’m in so much pain.
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Shock Treatment

I sat in the cold, sterile examination room, anxiously awaiting my new orthopedic doctor–the fourth in two months. I was losing hope of ever finding a doctor who would listen to me. The first three had suggested that my pain was all in my head
I want someone to take me seriously, I brooded. I don’t want to be brushed off as the stereotypical hysterical female. My pain is real, and I’m not crazy. I need someone to believe me.
Finally, there was a soft knock on the door.
“Good afternoon, I’m Dr. Lee.”
In front of me stood a man with an impeccably groomed goatee. He glanced at my elbows, which I have a habit of bending too far backwards while relaxing. Brow furrowed,

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Unexpected

Christine Loftis ~

“You’re twenty-seven-and-a-half weeks pregnant.”

As I lay on the exam table, time froze.

How can this be? I wondered dazedly. I’m a second-year medical student. I’ve just completed a course in female reproduction and endocrinology. How could I have missed the signs?

I attribute my obliviousness to the surgery I’d gone through only months before: the removal of a twenty-seven-pound, mucus-filled ovarian cyst. My lack of menstrual periods was nothing new; they’d been irregular for years. My recent abdominal bloating must, I’d thought, be the cyst recurring. I hadn’t worried about it because, frankly, I’d always put my health and personal life second to my future career as a physician.

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Elephants: Another Day with CFS


Linda Koebner ~

Two elephants won’t leave me alone.

Every morning, as I struggle into consciousness, my brain makes plans. I will get up out of bed, go pee, find my way to the kitchen, put water on to boil, fit the paper into the coffee filter, grind beans, slow-pour over the grinds….

In my mind’s eye, I visualize that the coffee is hot, that the news I read is upsetting and that, caffeinated and dressed, I am up and into my day. My thoughts take me out the front door for a long walk with my dogs, and then to work.

The reality is that I haven’t moved a muscle.

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I’m Still Here


Inez Martinez as told to Erin McCoy ~

Editor’s Note: Having just finished her first year of medical school, Erin McCoy became a summer intern for Pulse and embarked on a project to collect patient stories through interviews. One day, a family-medicine resident at a Bronx family health center told her about an interesting lady in Exam Room 8. “I go there,” Erin says, “introduce myself and explain my mission. She agrees to speak to me, on one condition.”

As long as you don’t ask me how many drinks I have in a month.

I promise her that I won’t, and press “record” on my iPhone.

I’m a survivor of 9/11. But I don’t want to talk about that.

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A Poetic Stroke


Thomas E. Schindler ~

Editor’s note: This Sunday will mark the last day that we accept poetry submissions this year. We offer today’s story in honor of the poets who are sending us their creative works for consideration.

For the past few years, since becoming a grandfather, I have indulged in an afternoon nap. Last year, while arising after a nap, I fell on my face–hard. Cautiously, I got up, and then carefully lay down again, confused about what had just happened. Whatever it was, it passed–and I tried to forget about it.

Next morning, my reflection in the bathroom mirror startled me with a garish reminder of my fall: a purple bruise beneath my left eye. Also, something was wrong with my

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