fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.
  1. Home
  2. /
  3. patient stories
  4. /
  5. Page 3

Tag: patient stories

Lessons From the Heart

This can’t be happening to me, I thought. Yet here I was, on a gurney being wheeled into a cath lab for an angioplasty and possible stent.

This can’t be happening, I thought again.

But it was.

A little background: I have always thought of myself as healthy.

Read More »

My Castle

Moving to an independent-living facility requires finding a balance between controlling the things that you can, and accepting help, or changes, with the things that you can’t. It also means striking a balance between being part of a more regimented community and being part of the outside world.

I’m nearly seventy, which is young for this move. But my hearing and balance are not what they were. I’ve had no family for twenty years, having outlived parents, husband and brother. Friends who have helped me in the past are aging into their own disabilities. My apartment of twenty years needed renovations that needed me gone. The timing felt right.

But my transition comes with extra challenges, because I’m congenitally and totally blind.

Read More »

Saved

It was a spring afternoon in Kottayam, Kerala, India, and I was a seventeen-year-old student, doing my final two years of high school at a local college, as could be done in India. I was the student-body president, with just two months to go until graduation.

And in another five minutes, I was going to end my life.

Read More »

Due Date

It’s the bright orange color that catches my eye. Nestled in a box under my home office desk, alongside unused breast pads and pumping supplies left over from the birth of my first daughter.

My first, because there should have been a second. A girl.

Read More »

What Remains From the Pediatric Ward

I wake up in a hospital isolation room, where everything smells weird. It’s 1967 in Galway City, Ireland, and I’m four years old.

The worst smell is the antiseptic—a word I don’t know yet. The second smell is the crayons and newssheet coloring books on the nightstand. Christmas is gone, so how can these be for me?

The family lore would say that I spent nearly seven weeks in that hospital. That’s forty-nine days or 1,176 hours’ worth of temperature checks, dosages, white-coated doctors.

Read More »

Into the Unknown

On March 17, 2015, I was diagnosed with early-stage breast cancer. Initially it was thought that I would need only a lumpectomy and radiation, but the biopsy changed everything.

The pathology report said that the tumor was HER2-positive and estrogen/progesterone positive. The HER2 protein makes the cancer more aggressive, so I would need, in addition to surgery and radiation, eighteen weeks of standard chemotherapy, a year of two other infused drugs and a hormone-blocking oral drug.

Still, the cancer was stage 1a with a decent prognosis, according to my oncologist, who said, “The good news here is that we have treatments for every part of your cancer. You are lucky.”

Read More »

What Makes a Good Therapist?

I thought she could help me with night terrors, this nice new therapist. The night terrors started a few weeks after my son went to prison–five words I had never thought I would string together.

I’ve had nightmares since childhood, but these are extraordinary. I tumble into slumber, then wake myself screaming bloody murder, like the woman in Psycho.

Read More »

Food Fight

My name is Ronna, and I have an eating disorder.

Saying the words is easier than treating the disease. Change has never come easily to me. While my disorder is rooted in my past, it has flourished in the years since COVID infected the world.

Read More »

My Abortion Story

I am a seventy-year-old Jewish grandma and a retired women’s health nurse and educator. I’ve enjoyed many blessings.

And I had an abortion in 1974.

Three months ago, the constitutional right to abortion was reversed. Reflecting on that Supreme Court decision led me to share my own experience. I hope my story will help other women considering an abortion to know that they are not alone.

Read More »

Love, Marriage and Parkinson’s

In 2015, while walking with my wife, Jody, in our neighborhood, I suddenly found myself bent over and taking tiny, rapid, repetitive steps. I knew I was moving too fast, but could not stop myself. Jody thought I was kidding—until the moment I fell down on a neighbor’s lawn.

A passing driver slowed down to ask if I was okay. I was all right, but thought the experience odd.

I’d never heard the word “festination” (a walking gait characterized by involuntary acceleration) until I saw a neurologist friend a week later.

Read More »

Smells Like Love

The dank, loamy smell fills my nostrils. I turn my head, but cannot escape the odor. It emanates from me, this nauseating scent of sickness and neglect.

It is five days since the surgery, five days since my right breast and multiple lymph nodes were removed. I cannot bathe or shower.

Read More »

One Big Stress Test

On Friday, February 29, my wife Mary and I had back-to-back doctor’s appointments at Kaiser Permanente in Moreno Valley—she to talk about a puzzling lethargy that had been dogging her and I to talk about an odd chest pain that I thought a remnant of the flu I’d had in late January.

Dr. McDougal listened to my heart and then listened to my description of the pain.

Read More »
Scroll to Top