The day began like every other summer day. My eight-year-old son and six-year-old daughter ate their cereal, watched Sesame Street, and played—him with his Star Wars figures and her with her Barbies. After lunch, they gathered a few favorite books and toys to entertain them while they waited in the pediatrician’s office for their annual physicals.
Normalcy ended when the physician announced: “Your daughter has a severe curvature of the spine. She needs to see a doctor who specializes in scoliosis.”
Scott Newport
It was another day at a renovation project on the fourth floor of an office building. Glancing at my iPhone, I noticed that my buddy Dave had called a couple of times. Now, coming down a stepladder for what seemed like the hundredth time, I saw his name pop up again. This time I set down my hammer and found a quiet place.
“Hey Scott, ol’ buddy, I got a request,” Dave said. “Last week at hunting camp, a friend of mine was impressed with my restored knife. As we were sitting around the campfire, I told him that you’re kind of a blacksmith, and that you refurbish knives. I wonder if you could fix up his, too. He lent it
It was a Friday afternoon in May, a week before my stepdaughter died. I was holding a solo vigil on the couch next to her bed, while she slept peacefully.
Her hair had started growing back, soft and thick and gray. I loved to rub my hand across her head.
I am sipping the foam off my café latte, holding the cup with both hands because they’re shaking so much. It is early morning and very cold, even for New York, but the waiting room at Mount Sinai Hospital is warm and open to a 10-story atrium courtyard. The Starbucks on the ground floor seems to be the hub of the hospital, as, from the balcony of the waiting room, I watch doctors in scrubs, patients in wheelchairs, Hasidic Jews (identifiable by their curls) in black coats standing in a line that snakes through the lobby.
Kevin Olney / Scott Newport
About the contributor:
Scott Newport, a volunteer with the Patient and Family Centered Care advisory council of C.S. Mott Children’s Hospital, in Ann Arbor, serves both in his state and nationally as an advocate for families with sick children. “My biggest passion is family mentoring, and I have a special interest in supporting dads. I always know I’ve made a connection when I get an email that reads, ‘Hey Scott, are you going to be up at the hospital this weekend?’ I believe that until we make a personal connection with a family, it’s almost impossible to have
Cheryl Lewis
Knotted seams gather scrubbed skin
and titanium plumbs a heart–
guide wires routing an improvised pulse
and tracing an erratic existence.
In the beginning doctors said
genetic mistake, detrimental
mutation, one in 10,000
statistically speaking. God’s will.
At night we wrestle with angels.
Celestial static, incandescent
blue they search our souls
and finger a laboring heart,
heavy like dense lumpy clay
waterlogged and unformed.
Karen Libertoff Harrington
As a medical educator in a hospital setting, I often tell first-year medical students about disparities in health care and about the vastly different quality of care that hospitals deliver, depending on their resources.
I tell my students how important it is to advocate for patients, to learn to navigate the healthcare system and to work respectfully with health professionals in order to get optimal care for your patients.
When my own son was hospitalized, I had an opportunity to put my teachings into practice, and found them wanting.
It was a Thursday evening in early spring, the first hint of green emerging on the lawn of my suburban Connecticut home.
My son David
Tamar Rubinstein
Editor’s Note: One week ago, a deeply troubled young man carrying a semiautomatic assault rifle and two pistols broke into a Newtown, Connecticut, elementary school and shot 26 people to death before killing himself.
Twenty of the victims were six- and seven-year-old children.
Steve Lewis
Evenings in the Sloan-Kettering ICU were starkly lit–nowhere to hide from the glare, bloodshot eyes trained on blinking lights, buzzing machines, masked men and women passing soundlessly through sliding glass doors, and little but hours and hours of bright, eerie luminosity ahead.
By contrast, the days then were dark. No comfort to be found in the sunrise or in that old salve about everything looking better in the morning. My wife and kids and I sat on the edge of uncomfortable couches in dimly lit waiting rooms where the waiting was always either too long or never long enough; we stood shoulder to shoulder in airless elevators with strangers sharing the same muted despair; we sat huddled in the cafeteria and did not
Jeremy Shatan
By the time my wife and I reached Hospital B’s exam room, early in the afternoon, we’d already put in a very long day.
Across the room, which was no bigger than a galley kitchen, stood three doctors. One–I’ll call him the Chief–was the bearded, bushy-maned head of the pediatric oncology program. His explosion of salt-and-pepper hair made a startling contrast to his posh British accent. With him were Dr. Transplant, a small, kind-faced woman who specialized in bone-marrow and stem-cell transplants, and Dr. Nice, a genial young pediatrician with a Midwestern accent.
We were there with our fourteen-month-old son, Jacob. A week earlier, he’d had brain
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