This is a story about failures. First, it’s about my inability as a pediatric hospice physician to do the one most important job in this tender space. Second, it’s about well-meaning, loving parents’ inability to do their part in that job.
Jacob was a smart, funny, elementary-age kid, great with Legos.
The eradication of non-native Fallopia japonica,
for all intents and purposes, must be considered a
practical impossibility. The aggressive nature of the
plant, combined with the similarly harmful side effects
of the removal options, renders it one of the most
devastating blights facing modern homeowners today.
He speaks of Kali maa, goddess of time
while chemo and radiation pin him to the clock.
As if confessing to a thievery of time,
when they neared one hundred years,
my parents said they never expected to live so long.
Their time unfolded like a painted fan.
We all remember our patients who die, though the first patient death really stands out from the rest. This was certainly true for me.
I was just starting the second year of my internal-medicine residency. This wasn’t the first time I’d seen someone die, but it was the first time I’d seen someone who’d been alive and well, and talking to me that morning, be dead by the afternoon–a shocking dichotomy that haunts me to this day.
drink water
let ocean in
tears roll
erase beach
unground you
His steps are wobbly. Our children hold their father’s hands to steady him as they move through the sand toward the ocean. I remain far back on the shore, shading my eyes to make out the three of them as they stand in the shallow water.
I am thinking that he looks like a ten-year-old child from this distance. My sight turns blurry, a combination of sun, sand and sorrow.
I was new.
Seventeen days earlier, a discerning pediatrician had recommended tests to untangle my five-year-old son’s cluster of puzzling symptoms—headache, vomiting and double vision. The alarmed face of the radiation technician in the booth during the CT scan was my introduction to a world where I didn’t know the rules, the language or what was expected of me.
When I thought I might die,
not eventually, but very
soon, I treated me more kindly,
as if I were my own child,
the girl I was, and the woman
I am, all melded
All too often in my forty years of practicing medicine, I’ve seen patients die hard, lonely deaths—lying on a stretcher under the emergency department’s glaring lights, or all alone in an ICU bed.
In extreme situations, the patient is covered in medical equipment: a breathing tube in the mouth, defibrillator pads on the chest, monitor leads on the torso, IV lines dangling from the neck and arms. When family members finally enter the room, it’s heart-wrenching to see them weep over their loved one, to whom they never got to say goodbye.
But it doesn’t always happen this way.
I vividly remember sitting in the living room of my grandmother’s house in Piedra Blanca, Dominican Republic. The room had been cleared of furniture. Before me, a flower-filled casket held the body of a young girl—my sister Nelsida, age seven. She had died from an anesthesia overdose prior to surgery.
I was five. I will never forget the sight of the cotton balls inside her nose and ears, the ice under the casket and the scent of the flowers. And that beautiful pink and white dress she wore, with a tiara that was her favorite. In the next room, my mother and sisters were screaming in grief.
It was a Thursday morning, my first day on the medical oncology service. I hurriedly gathered my white coat and badge, the block letters “3rd Year Medical Student” unmistakable in fresh ink. Taking a deep breath, I forced myself to look up at the cancer center.
This is going to be difficult, I thought.
My seventh-floor window vibrates,
the room throbs in crescendo
as a rescue helicopter stitches
a curved seam across the sky
bound for Children’s Hospital.
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