fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Knowing When to Let Go

 
I will never forget being told that my mother’s treatment options were pretty much over. A COPD/atrial fibrillation sufferer, she had been intubated and spent time in the ICU, then rehab and then home for a few days. She was very vehement about not wanting to spend life on a ventilator. And she documented this in a living will.

I got a phone call from the ICU doctors saying they wanted to talk to me and my brother. When we got there, the doctor compassionately told us that the BIPAP (breathing mask) they had been trying for a day or so wasn’t helping, and that the only thing left was what my mother didn’t want, being put back on the ventilator.
Because we knew what she wanted, and how important quality of life was to her, we had little problem telling the doctor to only provide comfort care. My mother knew, even better than most, about quality of life from spending years caring for my father, who had Parkinson’s disease. She dreaded a similar loss of control for herself.
She was moved to a regular hospital room later that day, and died in the early hours of the next morning. We had time to say goodbye and to let her know we were honoring her wishes.
Deb Skolnik
Fairview, North Carolina

Comments

1 thought on “Knowing When to Let Go”

  1. There is so much consideration embedded in this piece- whether it be the compassionate manner in which the doctor shared such difficult news with you, or the way in which you and your brother so readily responded to such a difficult situation in the way your mother would have wanted, without any hesitation. I think the piece also serves as a reminder of the importance of discussing with your loved ones what they would want in these kinds of situations. You were able to honor your mother’s wishes because you knew exactly what she would have wanted, which is a discussion I think many often regret not having. Thank you for sharing this.

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