fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Transcending Boundaries

My diagnosis launched me into a world where everything felt foreign, even my own reflection in the mirror. But little did I know that that reflection would ultimately help me discover myself.

At first, self-discovery was the last thing on my mind. At age 39, I was facing Stage 4 endometrial and ovarian cancer, and, with it, my own mortality. As I focused on making it through each day of chemo, while struggling to heal from the surgery that had plunged me into instant menopause, I was more concerned about making it to the bathroom than about who I saw in the mirror once I got there.

Lying in bed, I began slowly making my way through the pile of resources my doctors had sent home with me. One, a pamphlet about dealing with postsurgical complications, spoke about “grieving the loss of one’s femininity.” As I read, I suddenly realized that, actually, I did not feel a sense of loss. I felt relieved. Not just because the surgery had removed much of the cancer, but because it had made me feel more like . . . well, me.

This thought took me by surprise, but the longer I pondered, the more I recognized how often I had avoided labeling myself, sidestepping any real consideration of my gender. I remembered my disappointment as a child, when I first understood the societal divide between men and women. And the way, as a teenager, I threw myself into a “performance” of womanhood. Then how freeing it felt to drop much of that charade once I came out as a lesbian. Yet even as a gay woman, some things had never quite fit.

It was only now, gazing at my newly bald head in the mirror, at my ambiguous features, that I began to understand why. I was gay, yes, but I was not a woman. Nor was I a man. I didn’t fit into either of these boxes: I am both—or, better yet, neither. I suddenly knew, with deep certainty, that I am nonbinary. I am me.

Just like in the movies, my mirror spoke the truth that day. It showed me who I really am, and a way to live that truth—something I am still learning to do every day. Existing in a world defined by boundaries is not always easy, especially as a patient, but it brings me one step closer to truly being me.

Jess Skyleson
Rehoboth, Massachusetts

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