fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Latest Voices

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Latest Voices

Not Sharing

I’m not going to share the whole story. That period of time was awkward and painful and private. Health scares and hospital stays seem more personal when they happen over the holidays. There’s something a little more permanent about them in the collective family memory. We’ll never forget that Christmas in the hospital.
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A Time of Tribulation and Thanks

 
Ma always made the most delicious Thanksgivings: turkey with stuffing; mounds of mashed potatoes dotted with bright green peas; a Jell-O mold containing pineapple and cranberry sauce; cole slaw and candied yams. Her holiday dinners were culinary feasts—meals that stretched the elastic waistband of my pants but still left room for me to nibble on leftovers later in the evening. Thanksgiving with my parents, maternal grandmother, and two children was the perfect holiday—until the year it wasn’t.

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Last Call

It’s been a few months since he died. A simple, white stone now stands watch for him at Camp Butler National Cemetery.

I have put off canceling his cell-phone service as long as possible. His children, friends and family from all over the world still call to hear him say “Leave me a message,” then weep and pour their hearts out into his voice mail.

But money is tight. The phone has to go. It really wasn’t much good, when none of his doctors would call him on it when he so desperately needed them.

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Counting to Thirty

I am with people when they are most vulnerable: in the hospital, stripped of their clothes, with nothing on but a thin gown that has been worn by many bodies before. My role is a constant balance between “human” and “robot.”

T-minus three minutes. The room is ready; the positions are assumed; the monitors are set. We stare at the clock as the seconds slowly pass, standing in silence to conjure up the stillness before the storm.

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No Right Words

It wasn’t supposed to happen that way.

I knew Amy wasn’t doing well; when I had seen her on Friday, she just laid in bed, breathing heavily. She didn’t even turn to look at me, much less talk. I had sat with her for a while, sang Amazing Grace almost inaudibly, and left the small bag of bananas and salt prunes she had requested on the small table beside her bed.

I had left strict instructions with the nurses that night—Please, call me if anything happens. Call me if she passes. I want to know. I didn’t know if

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Mystery Solved

I’m sitting at my desk when the phone rings. A blue jay is feeding her baby in the coral tree outside my window. She is determined and direct, pecking her catch in gentle spurts into the little bird’s gaping beak. The fledgling squawks hoarsely for more. I pick up the phone.

It’s my son’s oncologist. My heart no longer jumps into my throat when I hear his voice; we speak frequently now, comanaging my son’s leukemia–a case that is proving anything but ordinary. I have no idea why he is calling today.

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Dad

My 72-year-old dad is in neurologic intensive care in a strange hospital in a strange city far from his home and from mine. In the midst of my fully-booked morning of seeing patients, I am trying to reach my diminutive stepmother on the cell phone that she does not know how to program to hear her layperson’s interpretation of what the strange doctors are telling her.

Unable to get through to my step-mother, I step into the next exam room to see Mr. P, a 72-year-old man with stable coronary disease and gastroesophageal reflux disease (GERD). He has difficulty hearing and

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Sorry to Wake You Up

My twins were born just twelve hours after I came home from work, but six weeks earlier than expected, so I extended my maternity leave for as long as possible. My partners were accommodating and generous while I was away, but they were plenty glad to have me in the call rotation when I came back. So, after my four months’ leave, I was on the schedule within a week or two of returning to work.
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Monday at 4 p.m.

On a cold December day, I heard a knock on our clinic door. “Hello? Can someone help me?”

Her name was Sara. She wore an oversized blue jacket, black rain boots and a scarf over her head. With my bright blue Health Leads patient advocate polo shirt, I greeted Sara as she sat down in the chair next to me.

“I need some childcare vouchers. They’ve stopped giving me money and I can’t seem to make ends meet any more,” she told me quietly.

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