fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Losing My Footing

I have a neuroimmune illness that for years was considered not to be “real” but that changed my life. On top of that, I’m unable to tolerate many medications, which have too often been prescribed for me with no consideration of what I’ve told doctors about their debilitating side effects. But about eighteen years ago, an angel entered my life in the form of a physician who did his initial training in India and then finished up in New York. I don’t know if it was his Eastern orientation that made him so patient-oriented, listening seriously when I needed his help, but he was perfect.

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Aphasia

Your words topped mid-sentence again. Will I speak to fill the awkward silence as you search for the words, or hope you complete the thought? Your quiet blank look hangs like milk fog, white, colorless as music at rest when I can still hear it playing. I search your face as finally you finish speaking, apologizing to me again.

The diagnosis was FND. I had never heard of Functional Neurologic Disorder. When you first described symptoms to medical staff, they first thought you had MS, especially after many falls.

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Thanks for the Memories

I have always felt blessed to be a person who enjoys her own company—who does not feel lonely when alone. That being said, I do welcome technology and its ability to link me virtually with family and friends. I do rely on a car, train and plane to transform those virtual connections into in-person ones. And I am grateful to books that always create a bridge between me and other people and worlds. Although the content of the books is fictional, the characters, plots and themes resonate in a very real way.

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December More Voices: Connections

Dear Pulse readers,

When I was a second-year medical student, a physician in our lecture hall warned us what would happen if we made a particular error:

“Your patient’s family will sue you,” he said sharply, as if reprimanding us for a mistake we’d already made.

“And you will deserve to be sued.”

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The Expect

Statistically, to avoid missing a case of appendicitis, one must send to the ER some patients with symptoms of appendicitis whose appendices turn out to be normal. This lesson from medical school is imprinted indelibly on my mind.

In my residency program, if a resident sent a patient to the ER, the resident was required to go the ER to evaluate them, to further their learning. However, this created a conflict of interest—if you had to meet a patient in the ER, you missed out on sleep. Hence I thought hard about the disposition of each patient.

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Shock and Awe

My ambulance partner and I responded to a 9-1-1 call for a person with difficulty breathing at a department store, but we couldn’t find anybody needing medical attention. A worker pointed to the metal ladder at the back, saying there was a guy working on the roof, and they hadn’t seen him in a while.

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Finding the Words

A hush fell over the room as reality sank in. “He likely will not survive this,” the surgeon said.

The patient’s brow wrinkled in confusion. Why was everyone so quiet? His eyes met mine, pleading for a clue and awaiting my translation.

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The Power of Belief

At 3:00 a.m. one morning, my wife collapsed in our small bathroom with a crash. She was, it turned out, having her first epileptic grand-mal seizure at age 48. Out of the blue! I was able to get her back to bed and then watched her have another nine seizures before calling the ambulance company. Shortly afterward, a fire truck, a paramedic truck, and an ambulance arrived, along with seven first-responders.

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Emergency Surgery: The Easy Part

“When I went in, it was as if a grenade had gone off in there.” That was what my husband’s surgeon told me after he performed emergency surgery to address the havoc in my husband’s colon and bladder. A diverticular sac had ruptured and eaten a lima-bean–sized hole in my husband’s bladder. This was no mere urinary tract infection, as my husband had thought; it was massive infection, called a colovesical fistula.

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Halloween Fright

My wife and I had just gotten home from work one Halloween evening when we got one of “those calls.” A young, male voice told me our nineteen-year-old daughter, Liza, had gone to her college dispensary with abdominal pain and had been sent to a local teaching hospital several hours before. He told me she had been admitted, and they wanted permission to do an appendectomy.

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La Emergencia

A stereotypical pathologist, my father was a man of few words and fewer friends. He spent long days in solitude with his microscope, examining tissues and cells. In 1982, almost 20 years before his own diagnosis with metastatic breast cancer, he published a rare case in which breast cancer cells invaded individual chest muscle fibers. He later examined his own breast biopsy.

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My Heart’s Not the Same

The clerk at city hall told me I had to fill out a Freedom of Information Act (FOIA) request if I wanted to see the accident report. In the midst of dealing with claims for my vehicle (now totaled) and medical expenses, I wanted to see in black and white an acknowledgement that the other driver was at fault. And there it was: “Failed to yield.”

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