fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Something Wagging This Way Comes

For five years I had the privilege and honor of visiting hospital patients as a pet therapy volunteer with my springer spaniel, Baker. During those years, when I also cared for elderly parents, the smiles of patients and clinical staff and gratitude for the pet therapy visits sustained me. I couldn’t stop my parents’ decline, but I could brighten a stranger’s day.

Pet therapy rounds required me to adapt to each patient’s situation and allow the visit to unfold. When we entered the room, the mood became lighter; solemn faces broke into smiles. Some patients wanted to quietly stroke Baker’s soft fur. I’d push a chair next to the bed, so Baker could sit within reach. Others wanted him to lie next to them on the bed, on a clean sheet I’d spread on top. It could be challenging to hoist a 45-pound spaniel on to the bed, avoiding monitor wires, tubes and catheters. But I managed, with liberal hand sanitizer applied to anyone who touched Baker. He’d been bathed and groomed that morning.

Staff welcomed our visits as well: a respite from their stressful routines; a means to comfort a patient struggling with despair.

I don’t know what Baker

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Cartwheels

When the shutdown came last March in Michigan, I could not attend my favorite (only) granddaughter’s wedding in Toronto, but she included me on FaceTime. I struggled with Zoom for City Council and Zoning meetings: many of us were fighting the building of a parking ramp in our neighborhood. From my window, I watched as crowds gathered at the Capitol, twice, to protest the shutdown, with kids, flags, blasting car horns and guns. My daughter in California threw a joyful 80th birthday party for me on Zoom, with family attending from four states and Canada. One day I was down, the next up.

I recorded these events in a Covid-19 journal I started keeping. I also recorded the increasing numbers of Covid-19 deaths in the state.

I have multiple sclerosis. For four months I did not have close contact with another person. I wore a mask to go to the mailbox. But mid-July, I held my breath and did my own grocery shopping, at 7am.

In the Fall, I monitored the development of vaccines. I had been a member of the IRB at Michigan State University (MSU), and the fast track made me nervous. I was concerned when the FDA

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A Losing Game

As a child, I played a game called “Mother, May I.” Because I usually forgot to say the correct words—“Mother, may I?”–I spent most of the game retreating several steps instead of moving forward.

I often think of this childhood game as I try to heal—mentally, physically and emotionally—from almost eleven months of self-isolation in a world that has stolen my job, my theater and my social interactions from me. Yet, every time I feel as if I am healing—moving forward in acceptance and hope—I descend further into the darkness.

My children and friends tell me to stop watching the news, but I am obsessed with knowing the latest updates about everything. “Get a vaccine,” the guest physician on a newscast tells me. “A vaccine will protect you from a severe case of COVID-19.” That sounds good, but every time I go online to find a site giving vaccines, I am told that no appointment is available. Not even for a 73-year-old woman who becomes feebler with each passing day. That is not a healing message.

The Cultural Trust of my city emails me that the Broadway Series and Cabaret will return in the fall. However, they always add the

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An Editor’s Invitation: Healing

Dear Pulse readers,
I spent most of my boyhood with a scab on one knee or the other. There were two reasons: First, I must have fallen down a lot; and second, it was hard to resist picking the scab that formed over a bad scrape.
Picking at or pulling off the scab meant fresh bleeding, a brand-new scab and delayed healing. But it was hard to leave well enough alone and have the patience to let nature do its required work at its own pace.
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False Spring

We are on the cusp of something. The weather outside says so with its mellow almost-warmth, the green grass coaxed out of latency, buds starting to form on trees that should be dormant. At an hour that should be frosty, birds are already singing to the just-risen sun, and the sky reveals a careless blue. This could be March, that month of dramatic change, time to think of planting things, of growing. 

I am outside in a sweatshirt, repairing a fence, snuggling our animals, letting my lungs fill with this peaceful morning. I putter and delay, finding projects to occupy my attention, holding tight to this moment.

When I return indoors, the newspaper screams of painful reality: sedition, pandemic, security, racism. It reminds me of the fortune I woke to: I am vaccinated but the world is not. I have space around me but the world does not. I have freedoms that much of the world does not. 

We talk instead of things to do: roses to cut back, mowing to be done, painting, cleaning. Thinking. I have found myself more introvert than not, these last ten months of pandemic. Helpless to change the political pageantry, the degradation of national

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Please Try Your Call Again Later

“All of our service representatives are busy. Please try your call again later.”

On the first day that our local health system allowed medical staff to call in to schedule vaccine appointments, the demand quickly overwhelmed the phone lines. The plan was to open up scheduling by phone starting at 8:00 a.m., and I called as soon I could, only to be greeted by the message above after a few rings. I continued calling the rest of that morning, and eventually the line didn’t even ring before going straight to the recording. We later learned that the call center received over 5,000 calls in the first hour—no wonder I couldn’t get through! 

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Vials of Hope

Is it my imagination, or is everyone talking about silver linings these days? By now I’ve heard the phrase spoken so many times in so many different contexts that I’ve begun to expect it as an explanation whenever people mention a COVID-related restriction in their lives. In the midst of despair, misfortune, or even just plain frustration, they find something positive that offers them comfort. I truly admire such vision. Where they see soft, white clouds floating overhead, I see grey ones, spiked with danger—a herd of elephants stampeding across a leaden sky.

But now the vaccine has come along, and even I am beginning to feel optimistic. Reading the eligibility requirements in my state’s plan for phased distribution last month, I saw right away that I did not fall into Phase 1A. Next would be Phase 1B, including (among others) those at increased risk for serious illness. Fortunately, I thought, I suffer from none of the underlying health conditions described in that category.

Or at least I didn’t think I did.

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Hope for Mastery Again

Breaking my vow that I would not check my work email during my desperately needed vacation, I peeked at my phone. Sometimes, anxiety about the unknown is worse than reality. Scanning my messages, one subject line made me pause: “Your COVID Vaccination Date.” I clicked and read further. I was assigned a day, time, and place to receive the Moderna COVID-19 vaccine. Oddly, I felt nothing. No excitement, trepidation, relief, sense of history-in-the-making. Nothing.

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Waiting for the Answer

It’s tricky—the balance between deserving, needing, and entitled. Who gets the vaccine first? Who gets it last? What part of the decision is privilege. What part experimental.

I am a noncompromised age-qualifying mental health counselor who has worked remotely, from the confines of my home. I am not a high-risk-by-exposure candidate, unless I want to be. I have remained masked and distant throughout the pandemic. What are my response and responsibility to having an invitation to be at the front of the line?

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The Shot

Excitement. A little bit of fear. Some confidence, too. But most of all, fellowship.

Around me, spaced a careful six feet apart, are tables along with other scrub-clad men and women who work in the hospital, each of us perched on the edge of our seats, listening to a masked nurse explaining vaccination procedure. 

There is no doubt this is a momentous occasion, an opportunity for protection against an unruly pandemic. But it is also a reminder how many of us have been facing down this demon, gliding silently past one another, expressions unreadable as we carry on about our work. We are doctors and nurses and scrub techs and lab techs and cleaners and food service, and we are all, every day, in this fight together. Why is that so easy to forget?

When I chose medicine, I believed I had picked an uncontroversial way to help people. I did not anticipate the waves of science deniers, the people who wanted nothing to do with facts, or the misinformation campaigns that would sweep across social media. (What was social media?) Those voices can be loud, the arguments draining. Some days I forget how many of us are still here,

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The Honorable Choice

I developed my fear of needles as a kindergartener in the early 1950s. With my classmates, I waited in a slow-moving line to receive the Salk polio vaccine. When I later complained to my parents about a sore arm, they commiserated—but also assured me that the soreness would pass, while polio would be forever. I thus learned that vaccines are vital to my well-being.

That being said, the COVID-19 vaccine still causes me some anxiety. The speed with which it was developed—and the lack of knowledge about its long-term effects—worries me. Yet as I sit in my living room, the same setting in which I have sat for the past ten months of isolation, I realize that I have limited choices: to be vaccinated and, hopefully, become immune to COVID, or not to be vaccinated and, sadly, continue to live a life of isolation and vulnerability.

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An Editor’s Invitation: The Vaccine

Dear Pulse readers,
A New Year is upon us. I hope that it finds you well so far.
It’s an old saw in medicine: Never be the first doctor to prescribe a new medication–nor the last.
It’s advice that I take to heart. I generally wait a few years before offering the latest, greatest pill to my patients. On more than one occasion that strategy has saved me the guilt and shame of violating the most sacred medical directive: First, do no harm.
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