fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

À Cause de la Guerre

It was the winter of 1991. We were a group of 25 or so Dartmouth College students on a language study abroad (LSA) program in Lyon, France. A few days after our arrival, the United States led a multinational coalition in an intensive bombing campaign against Iraq. This made Americans quite unpopular in Lyon.

When we’d enrolled in the LSA, we’d envisioned train-hopping through Europe during our free time, notre temps libre. We’d imagined bonding together over cheap French wine, chocolate croissants, and buttery baguettes. Instead, we had the war. La guerre.

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The Gift of Friendship

Even before COVID, I tended to live an isolated life. I interacted with my colleagues and students at the Writing Center where I worked, and I chatted with other ushers at cultural events—but once I was at home, I welcomed the silence and aloneness that my apartment offered. COVID, however, has made me more cognizant of the value of people—of how friends have provided a silver lining to the darkness of this pandemic.

I wonder what I would have done if the parents of the children I tutor had not reached out to me during these past twelve months. They have grocery-shopped for me, brought me dinners, and stayed in touch with me on a regular basis. I used to tell my middle school students that friends are the family we choose for ourselves; how fortunate I am that my friends have chosen me to be a part of their extended families.

For the past five years, I have attended my city’s Broadway Cabaret. The Cultural Trust assigned me to a table with three other people, none of whom I had previously known. However, our shared love for Broadway turned us into friends who went to dinners and shows together

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An Editor’s Invitation: Silver Linings

Dear Pulse readers,

I’d like to think that every cloud has a silver lining, and every unfortunate occurrence brings moments of grace.

That’s sometimes true with illness.

When my Belgian mother became ill with Alzheimer’s, it brought headaches and heartaches. After every fall or episode of getting lost, we’d try to talk with her about the future. Her answer was always the same: “I’ll cross that bridge when I get to it.”

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Healers Need Healing, Too

When flight attendants deliver safety instructions, they remind us of the need to put on our own oxygen masks first before we try to assist others.

As health-care professionals, our natural tendency is to focus on the well-being of others; that’s what we’ve been trained to do. We give our patients good advice regarding their physical and mental health, yet the environments we work in are not always conducive to our own well-being. The result can be burnout, which is associated with depression, which increases the risk for suicide. In fact, physicians have a higher suicide rate than the general population.

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Thin Red Line

“You’ll feel better after the surgery,” my psychiatrist said, “and the cancer is cut out.” I scoffed. He knew me too well to think it would be that easy to quell my escalating anxiety. Cognitive behavioral therapy has never been my thing, and there weren’t enough pills in my prescription bottles to make my fears fly out the window as neatly as that 6 mm tumor would be excised from my breast.

The surgery was easy, as was the recovery. The wound healed quickly. Just five weeks later, my scar is a smooth, scarlet sliver that looks more like a careless scratch than evidence of the purposeful cutting that it was. If I were an optimist, I’d say this is a good sign. Things are going well. I’ve also gotten through my first round of chemo with relatively mild complaints. My body is responding, and healing.

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Embracing Vulnerability

Her voice trembled as she fumbled with the scrap of paper in her hands. What did I do wrong? Is this the right prescription? Am I going to die? The questions gushed from her all at once.

As a medical student on my first clinical rotation, I was still getting used to how to run these clinic visits. It seemed like no one was ever there for the reason originally listed, and somehow I always ended up with the long-winded patients that kept me in the room so long I was lucky if I made it to the physical exam before my attending ran into the room to take over. Any plan I had made to make this visit any different was quickly derailed when I heard the words: deep vein thrombosis.

I was transported back five months prior when my mother received the same diagnosis. She had a long personal and family history with varicose veins, but the new, painful swelling in one of her legs was new. I recalled the darkness of the ultrasound room, the feeling of holding my breath each time the technician paused to ask my mother a question, the unbearable waiting

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Searching for Sparks

I’ve been thinking a lot about how the practice of medicine is not always the practice of wellness. How optimistically I applied to join this profession out of a sense that I intuitively took better care of myself than did many of my peers. I knew that happiness and health intertwined, though my naiveté about how to rescue one if the other faltered was sorely lacking. 

Ahh, youth. Unencumbered by the kind of financial and emotional obligations I would eventually crave, back then I could restore balance with a day trip to wine country, or a chance to ski instead of study. I took up swing dancing during my surgery rotation in medical school, if only to prove to myself that my life was my own. 

Years later I chose yoga, biking, traveling. Now, in the pandemic, yoga happens in my living room. I write about little moments. I hike. I daydream about the places I once went and hope to take my children someday.

But my pastimes are not my patients’ pastimes. Often, dropping one activity suggestion after another, like feeding quarters into a slot, I hear them fall into the coin return instantly, never registering. Too many teens are

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Mutual Wounding, Mutual Healing

One of the hardest parts of being a physician is dealing with the death of a patient. In the course of my career, I’ve learned that the physician-patient relationship can be an effective tool for healing, for the doctor as well as the patient’s family.

An example follows: My patient with advanced COPD died in association with emergency surgery. Despite appropriate care, his condition overwhelmed him. His wife, also my patient, was an assertive, take-charge individual. In addition to blaming herself, she angrily insisted that some error in care led to her husband’s death.

I realized that we had to allow time with active listening to help the widow to heal. I decided to increase her visits, at first using the cover of following her blood pressure and atrial fibrillation more closely.

It was not pleasant, and it required restraint. One day, after listening to the litany for over eighteen months, I became frustrated, and said: “Mrs. Smith, let me help you find a good malpractice lawyer! Otherwise, if you continue down this path, there will be another death. Yours!”

Slowly, her anger dissipated, and she remained my patient twenty more years.

Perhaps one can call this extreme grief counseling.

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Cardiac Ward

I cradle a fragile baby whose heart cannot support her growth. I have fed her, bathed her, changed her diaper, rocked her to sleep, and measured her meds in drips per second, all in the hope that she will gain enough weight to withstand surgery.

I take the baby to sit in the playroom because I know her eyes will sparkle to the sound of little voices. She coos as we sit among chattering toddlers with clanging IV poles.

Suddenly her eyes go dull, and she is limp in my arms. Blood erupts from her mouth with a guttural sound. She is choking. Blood is gushing, hitting me in my face, my neck, my chest. My throat is a spasm of panic. I can’t call for help.

I hear “Treatment room! Treatment room, Maddy!” I clutch the baby tight against me and run. Doors are flung open. I lurch forward and someone begins pulling my arms open, peeling the baby away from me as my shirt stretches and snaps back against my skin, sticky with blood. The overhead lamp is blinding. My chest, where I just held her, is cold and wet. I am shivering as the team surges around

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Healing Beyond the Wound

My ICU room is quiet, except for the interruption of the sounds made by equipment attached to me. My most important visitor, my wife, has gone home for the evening. Thoughts of despair and brokenness begin to creep in. I contemplate what life after emergency, life-saving, open-heart surgery will be like for my wife, and will she recover from the trauma and fear she has endured.

As Editha, the nightshift ICU nurse, enters my room to take my blood sugar reading, I ask if I can have some morphine for the pain. With a smile, she responds by asking me what I think the result of the test will be. I make a guess, followed by her telling me what her guess is. I believe she won that first round.

Rather than yearning for morphine as she approaches me an hour later, I focus on playing and winning our game. Editha is purposeful, thoughtful, and kind to give me a mental break from the pain I endure. She does not have to do this; she chooses to offer this little thing, our game, for my benefit.

Walking around the nurse’s station for the first time after surgery, nurse Barbara greets

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A New Year’s Resolution: Make Every Breath Count

As the final hours of 2020 approach, I try to tie up the loose ends as I sign over our busy inpatient service to the next attending physician. As I do so, my mind begins reflecting on the first nine months of this pandemic.

The hardest part has not been the hassle of donning and doffing the PPE. Nor, figuring out how to optimize drug dosages to best treat patients with COVID. The hardest parts are these: finding inner quiet among the incessant overhead rapid response alerts; learning to treat the loneliness and despair visible in my patients’ eyes; and, when treatment fails, helping them die in dignity.

Those are the hardest parts for me as a physician. As a parent, the hardest part is learning to be fully present–even in my despair–for my own child, who is navigating puberty, social isolation and loneliness.

These nine months have taught me many lessons.

I’m reminded how complex we humans are. Some of my patients, paralyzed by fear of the virus, have completely isolated themselves. Others, triggered by fear of isolation, indulge in reckless social behaviors. In caring for my patients, I’ve found myself navigating these extremes.

The second lesson I’ve learned is

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Blessings

During a routine Thursday evening clinic, I knock on the exam room door, enter, and greet my patient. She is an elderly Puerto Rican woman with worsening Type 2 diabetes, a new bleeding sore on her face, and chronic back pain.

As I log onto the computer, my patient and her niece discuss how guapa I am, and I blush silently. The patient smiles, at ease, as her niece laughs wildly, such music to my ears.

As this visit concludes, we plan a telemedicine follow-up in three months. My sweet patient forgoes her pre-pandemic kisses and hugs, and instead says to me, in rapid Spanish: “May God keep you safe, bless your children, and protect your husband. Take care of yourself, my kind doctor. You have helped me so much. I pray for you and your family.” This song fills the room – and then heals my heart.

Immediately my mind flashes to my family’s weekly Friday evening dinner, when husband and I place our hands on our daughters’ heads. When they were younger, they would squirm, smile and laugh in response. Now, as teenagers, they grudgingly grant us this privilege – to bless them in the Jewish tradition. After we recite the Hebrew prayer,

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