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It’s Not What You Get in Life

The words I heard most often from my mother are, “It’s not what you get in life, it’s how you handle what you get.” These words have shaped my life and become the essence of what I believe.

My mother faced so many challenges in her life: the birth of a severely autistic child in the era of blaming mothers for that diagnosis; breast cancer resulting in a mastectomy; a wayward husband and divorce; a serious hand injury following an automobile accident. But somehow she managed to keep her jealousy of others at bay and appreciate her own joys in life.

At first I applied her maxim to relatively minor disappointments, like not making the cheerleading squad or a disappointing test grade. Over time I came to face my own serious challenges in my life: diagnosis with breast cancer twice and endometrial cancer once; major surgeries, radiation and chemotherapy; significant developmental issues with one child and serious health concerns with the other. Through it all, my mother’s words have guided and shaped me.

My experiences have also led me to develop a personal corollary to my mother’s belief. I now believe that, while others can support us in meeting the

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How Not to Fly Away

It’s 1971 and we are in a green-tinted hospital waiting room, half-sterile, half-filled with sawhorses, wood planks, a drill, sitting in attached sickness-colored plastic chairs. My aunt–my father’s sister, whose ability to exclude herself from experiences by analyzing everyone else has diminished during this mutual terror–is at my right. Her long and elegant fingers cover my own. My younger sister, then brother, mother and older sister are to my left. We wait. It is the eternity of waiting for bad news while hoping for good.

The surgeon enters, scrubs matching walls. He lifts a hand and motions my mother to come to him. My mother grabs my older sister’s hand and moves with the surgeon behind a five-foot high flimsy room divider. Maybe it’s ten feet away from us. Maybe the surgeon really thinks it’s a separate room, closed off ceiling to floor, wall to wall. Asshole, I think to myself. My rage replaces the nausea of waiting. We are invisible to him.

The surgeon’s hand reaches up and pulls off his surgical cap. He’s bald. He’s stooping. He speaks as if we can’t hear. “Your husband has a tumor on his pancreas as big as a grapefruit. It’s inoperable and incurable.”

My

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Why I Need to Survive, What I Need to Survive

I considered the idea of survival only when I found out, postsurgery, that the cancer had spread to my lymph nodes. I wondered what would have happened had I waited any longer, had I ignored going to the hospital to follow up about the lump on my breast.

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I Carry My Cancer Patients in My Heart

“I am grateful for witnessing your courage, your strength is inspiring, your wisdom is eternal, and you are not alone”: These words, written on a paper heart with irises around it, sit on my desk. I feel fortunate to be a behavioral health clinician, providing therapy to patients with cancer who are undergoing radiation at Stanford’s Cancer Center.

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Invisibility

The glass doors yawn open, first one set, then the other. They don’t see me; they don’t hear me. They just sense me—automatically, electronically, a body approaching. It doesn’t matter my size, shape, or color. The doors don’t know whether I’m walking slowly or quickly; they don’t care whether I’m smiling or crying. They just blindly do their job, usher me in (and later out) of the building. Another patient, another day. 

Three women sit at the reception desk. More glass separates the sick from the well. Masks make everyone look like no one. A hand reaches out to grab my parking ticket and stamp it. Cancer is the price you pay for free parking.

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A Haunting Disease

I never told my father that his physicians had diagnosed him with pancreatic cancer. Since he was ninety-eight years old, I decided that telling him would only cause him profound mental and emotional anguish—a fear that would diminish however long he had to live but would not alter the reality. To have Dad endure rounds of chemotherapy or radiation at his age would also be physically cruel.

Most of all, I did not tell Dad because not even the doctors were one-hundred percent certain of their diagnosis.

For months, Dad had experienced attacks that left him light-headed and disoriented. By giving him something to drink or eat, I was able to bring him back to reality. Although I told his primary care physician about these frightening episodes, he dismissed them as the concerns of an overly-emotional and loving daughter. Then, while leaving his office after a check-up, Dad had an incident in the waiting room; within minutes, a physician’s assistant had wheeled him to the emergency room.

A multitude of tests led to the rare diagnosis of insulinoma. When Dad’s blood sugar plummeted, he required sugar and/or protein to stabilize him. I had to wake him up every two hours

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An Editor’s Invitation: Cancer

Dear Pulse readers,
I don’t have to go far to find a personal connection to cancer.
As I write this letter, I have friends battling brain cancer and pancreatic cancer.
Other friends have fought off breast cancer, oral cancer and colon cancer.

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Uniquely Me

“She plays with you when you’ve got no one to play with.” Those words were used to describe a young girl in a Sunday school class many years ago.

The adult equivalent of “not having anyone to play with” might be the experience of being in the minority.

Being a black female physician in the US, I am no stranger to this. It seems like I have been “in the minority” for the majority of my life. Those who don’t know me may be surprised to hear that I experienced “minority status” even while growing up in Nigeria. Not only was I a year younger than my classmates, I was also one of the few Nigerians in a boarding school where the majority of students were white North Americans. Later, I was the “American” in a predominantly Nigerian school. Decades later, as a “second career medical student,” I was on the other end of the age spectrum.

The only female in a group visiting a traditional ruler in Northern Nigeria during a year of national service, I wondered why I wasn’t offered a handshake along with my male colleagues, only to realize later that it was for religious reasons.

This perpetual

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Being Alienated Can Be A Catalyst for Improvement

Starting pre-med in 1948, my intention in becoming a physician was to learn how to be a healer. To learn how to relieve pain and suffering.

At that time, medical education viewed the physician’s role as a mechanic. Physicians were mechanics who fixed a malfunctioning machine: the human body.

My medical school professors “trained” us to be objective, to view patients through their separate parts, and never to view patients as  persons. With the benefit of hindsight and the autopsy table to uncover the pathology, they viewed the “local medical doctor” and “the local hospital” as second-rate.

My medical school professors marginalized the art and humanity of medicine. They did not treat their students as persons. They did not address the cultural aspects of health, such as racism, sexism and homophobia. They marginalized the palliative needs of dying patients. They failed to address the spiritual dimensions of sickness and suffering.

As a medical student, I felt like a stranger in my own land. I felt isolated.

After completing my training, I joined one of those “local hospitals” my medical school professors had disparaged. And it was at Morristown Medical Center that I discovered that I was not alone in wanting

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My First (and Only) Day in the ER…

It was the first day of a course in medical ethics at the University of Vermont medical school. As a graduate student in public administration, I had been invited to sit in on the class because of my research interest in health care distributional ethics. That made me the only student in the room who wasn’t training to be a physician.

I entered the classroom and took a seat. I barely had time to say hello to a couple of other students before the professor walked in.

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Birthing

Saturday night in my living room, I was surrounded by the parents of the children in my daughter’s kindergarten class. I had boldly offered to host a parent social. We were playing Two Truths and a Lie, one of my favorite icebreakers. My turn had come, and I shared three statements. One of my truths was that my daughters were intentionally born at home. Immediately everyone declared this as the lie, joking that I asked for an epidural as soon as I arrived at the hospital. I understood that no one knew me, yet I was thrown by this gross misunderstanding of who I am and the deliberate choices that I make.

When I was pregnant for the first time, I could not conceive of walking out of my house as two people and then returning home as three. As a family physician who practiced obstetrics, I was well-acquainted with the ups and downs of hospital births. I had seen intervention beget further intervention. I resented the television mindlessly blaring while a woman was laboring. I cringed at hospital staff who would chitchat as if the birthing woman was invisible. Once I learned about the improved outcomes for low-risk home

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Why Won’t You Ask Me, Too?

The Brooklyn Bridge and the water running beneath it shimmered in the evening sunlight as I gazed out the window of my  Pace University classroom. Class had just gotten over, and my classmates were making plans to go out for a drink and unwind. Snippets of conversation reached my ears as I gathered up my books and unplugged my computer.

“What about Esther? Shall we ask her?”

“Oh, no! She is Catholic, Indian, and married. She wouldn’t come!”

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