fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

An Upside Down World

Life turned upside down in a matter of days. On March 13, the governor closed schools. My husband and I met friends for dinner that night. We were nervous and opened the restaurant’s door with a Lysol wipe and carried hand sanitizer inside. On March 16, restaurants and gyms shut down. It was my son’s 15th birthday and he almost cried when I didn’t let him go to a friend’s house. We’d promised him dinner at a steakhouse. Instead, we got takeout, and he was too sad to eat cake.

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Mom

My mom is ninety-six years old. She lives in a wonderful assisted living facility, and is mostly blind and incontinent. She has lost most of her motor skills, uses a wheelchair and suffers from dementia.

Mom was once as sharp as a tack and a force to be reckoned with. Despite her dementia, she is still that. Each day in my heart, I bow down to the wonderful aides who treat her with infinite patience, humor and gentle kindness.

Two nights ago I received an email telling all residents and families that four residents had tested positive for COVID-19.

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Saying Goodbye through the Loving Hands of a Nurse

Because of COVID-19, the rec center in Dad’s retirement community was closed. Determined to continue exercising, my vigorous 89-year-old father went for a walk. We don’t know what happened, but passers-by found him on the ground. Paramedics were called; flat-line ECG. He was resuscitated and placed on a ventilator. Unfortunately, his brain appeared damaged.

Despite the emerging pandemic, my sister and I traveled to Arizona. We sat by his side and held his hand.

Then, the rules changed: No visitors allowed.

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Filling the Unusual Silence with Purposeful Rustling

“Did they finally pull you out of the hospitals and clinics?” My father’s voice resonated through the receiver.

“Yeah,” I replied with my eyes fixed on my whirling ceiling fan. “I figured it was inevitable after the AAMC issued its recommendation for students to be pulled from direct patient care, given the uncertainties surrounding the supply of PPE and the potential harms of having more people than necessary in clinical environments.” My father knew those abbreviations referred to the Association of American Medical Colleges, which governs the education of medical students, and to personal protective equipment, like surgical masks and gloves.

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Dying 101

People don’t die like they do in the movies–alive one minute, saying something profound, and dead the next. There is a way the body is programed to die. Most of us don’t think about that, don’t know about it, and generally don’t want to know about it. We live in a death-denying society.

But as a nurse, I have spent most of my life talking about death, and now more than ever I want to explain the normal way the body dies.  

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New Normal

The fear is palpable as I walk through the near-empty maze-like hallways of the hospital. Having no visitors makes things eerily quiet. It is the same as the quiet throughout my small city–in empty shopping center parking lots, down neighborhood roads.

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Helpless and Hopeless

Even as a little girl, I needed a routine to keep me focused and sane. Now, I like knowing that from 9 a.m. to noon, I will be working at the university with my writing students; that after I get home, I will either read or take a nap; that I might take a before-dinner walk or muster my energy to clean the bathroom or kitchen; that I will watch the news—news that does not inundate me with warnings and dire statistics—and then challenge myself on Jeopardy; and that I will end the day with a book, feeling satisfied and comfortable.  
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An Editor’s Invitation: COVID-19

April’s More Voices theme is COVID-19.

What else could it be?

I hope that you’ll take a few moments to send us a short first-person piece on how COVID-19, a term that was utterly foreign to us just a few weeks ago, has impacted you.
Here’s how it’s changed my workplace: As of yesterday, my hospital in the Bronx had about 500 patients admitted with the COVID-19 diagnosis. Over sixty of those were in the ICU.
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A Bad Dream

Last night I dreamt that New York City was gone–that it had disappeared into a billowy horizon. I was walking on some unknown highway and looked over my shoulder and saw nothing but grey-white layers of clouds. No blue sky. No brown earth. No Big Apple. A real nightmare.

I woke to huge snowflakes dropping from the sky. My family is safe. But I am sad and scared. I can taste the fear, and I don’t like it. 

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A Poem a Day for Good Health

On Leap Day this year, I was at the beautiful Meijer Gardens and Sculpture Park in Michigan. In the gift shop, I saw a booklet of 30 postcards featuring photos of the park–nature scenes, sculptures, the Japanese Garden, etc. It gave me an idea for a writing project during the month of March. I bought the booklet and every day this month I am writing a short poem reflective of the photograph on the postcard, working my way through the booklet. I then choose a stamp that fits the scene and put the postcard in the mail to myself.

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The Pandemic – A Medical Student’s Perspective

My mom wants to hear my opinion on public transportation. Can she take the subway to see her dentist this week, or should she take a cab? I say to her, “Take a cab if you can afford it, and if you take the subway try getting on a less crowded car. Practice social distancing, if possible.”
Mom asks me because I’m her medical student in the family. The truth is, I don’t have any more information to offer than what’s already found on the CDC’s website. I don’t have much to add, really, unless…
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Denial

I first heard about COVID-19 in January. My husband, a fellow physician, read to me about it from a news article. On the third day in a row as he read aloud about the epidemic, I asked him to stop. It was hard to appreciate his daily updates when all I wanted to do was throw up due to the severe morning sickness I was experiencing in my first trimester of pregnancy. After all, it was just in China, right? Too far away to worry about.

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