fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Social Distancing To and From China

On recent flights to and from China, I had two different experiences of isolation and contagion.

Flying over, I was upgraded to business class. Cocooned in our own little fully reclining enclaves, my isolated, entitled fellow travelers and I interacted only with the attendants solicitously serving us. It was self-indulgently pleasant, and with the help of melatonin and a hearty meal, I got seven hours of sleep and arrived feeling like the world should continue to cater to me.

Read More »

When Babies Died

I arrived at Boston City Hospital in 1986 as the new 38-year-old chief of child neurology. I soon realized that many of our tiny patients were dying from AIDS. The pediatric cases were the victims of “vertical transmission,” due to their mothers’ being infected. There was no treatment. Zidovidine (AZT) was not yet approved for pregnant women or their babies. So the mothers transmitted the virus to their babies and the babies got sick and died. 
Read More »

Do I Stay or Do I Go?

Looking out at a metal awning, I sit with my view from this hotel room in North Carolina. Do I stay or do I go?

Three years ago, my older son, who was immune naïve and compromised, got a probable viral pneumonia which progressed much like we know coronavirus does into a heightened inflammatory response. He was intubated on day five and died on day sixteen. I know what this looks like.

 My younger son has been deployed to Afghanistan for nine months. He was due back to North Carolina yesterday.

Read More »

Care Package from Afar

Within a week of the news about the coronavirus outbreak in Wuhan, China, many people panicked and bought all the facemasks off the shelf. Over one of our lunch breaks, my colleague in the immunology department told me she recently sent a box of masks to her mother in New York, because the stores there ran out of masks. My colleague and I agreed that the panicked reaction to the virus in America is laughable. Those affected here would be properly quarantined, and it would take several weeks at least for the virus to fully spread. The countries adjacent to China had many more worries than we did, we agreed.

Read More »

The Spanish Flu Hits Home

I’m very sensitive to contagious illness; I have an almost nonfunctioning immune system. Even before the coronavirus, I wore masks on my limited outings and washed my hands often, telling people who were sick to come see me when well. But that’s not the story I want to tell.
At age twelve, my mother was hit by the flu of 1918, but recovered. When the same flu hit even more ferociously in 1919, she was the only one well in the home, due to her immunity. Her parents, grandparents and the three of her five sibs still living there all got sick.
Read More »

Carpe Diem

I grew up hearing about the flu epidemic of 1918–and knowing how contagious disease can affect a family’s history. My 26-year-old paternal grandfather died in that epidemic; he left behind his 23-year-old wife and my dad, not quite three years old. This tragedy determined the trajectory of the lives of my beloved grandmother and dad; it left a hole in our family tree that no amount of time could ever fill. 

Read More »

An Editor’s Invitation: Contagion

We have entered a period of uncertainty and fear as a new coronavirus infects more people and makes its way around the globe and into our midst.
As an undergraduate, I read The Plague by Albert Camus and wondered what it would have been like to have lived in the time of the Black Death.
Read More »

Retirement, Hibernation, and Renewal

I retired from a deeply satisfying teaching career just before I turned sixty-five, having always thought I would keep teaching well into my seventies. The decision came in the aftermath of my parents’ illnesses and deaths.

The years between stroke and death for both my mother and father seem, with hindsight, to have been a time of accelerated aging for me, not so much in my legs and arms and feet as in my heart and brain. Not so much the aging that reaps wisdom but the aging that topples into vulnerability. The aging that makes it seem too hard to keep up with a challenging job, to keep giving my students the education they deserve. The aging that makes each ache or pain or worry that I would have shrugged off at a younger age feel like inevitable decline, a one-way street.

Read More »

The Joy of Getting Older

Whenever I talk about getting older with those who are older than me, I see the same facial expression. I like to describe it as a scowl: a blank stare with a raised eyebrow. Every so often I get the sad droop of a head as it shakes side to side. Sometimes it’s even coupled with a smirk, seemingly saying: “Oh, child, you have no idea!”
Read More »

Birthday Card Campaign

My awesome friend, Flo, worked as the RN nurse manager of the Spinal Cord Unit at the Veterans Administration hospital for many years. During that time, she married, raised twins and earned a master’s degree. Then, in 1990, she came to work at my hospital, and we’ve been friends ever since.

Flo was generous, had a great sense of humor and always saw the best in people. We said she looked at the world through rose-colored glasses.

Read More »

Gratitude and Generosity

After fifty-six years of practicing primary internal medicine, I retired in my ninetieth year. The goodbyes and well wishes were only the tip of an iceberg in which my patients and I shared the journey of their illnesses together, and I was honored to serve as a guide in their odyssey.
Read More »

I Used to Be Happy about My Birthday

My mother was forty-nine when she died of primary pulmonary hypertension. She was a non-smoker and a non-drinker, but she had a tremendous amount of stress in her life. After being told she could not have a management job because she was a woman, she sued her employer for discrimination. These were the days of the “women’s liberation movement.”
My mother won her lawsuit, but she died before it was settled. I blame the stress of the lawsuit on her illness and untimely death. 
Read More »
Scroll to Top

Subscribe to Pulse.

It's free.