fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Chief Complaint: Not Always What You Assume

 
If I did not ask, I would have assumed regaining muscle control was the “chief complaint” of the young man I was caring for during my brain injury elective. He was an active college student up until a few months ago when a tragic accident left him wheelchair-bound and dependent on nursing staff for even the smallest of tasks. 
 
The first time we met, he introduced himself to me through a laminated copy of the alphabet. Spelling out his name took some time, due to the severe spasticity that still engulfed his musculoskeletal system, but it was his only means of communication due to the loss of control of his vocal cords. 
 
“I am here to join your care team,” I had told him. “I want to help you work on facing your biggest problem right now. Can you tell me what that is?”
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The Warrior

When I first met my future sister-in-law—I was fifteen, she was seventeen—I assumed that her life was perfect. She was pretty, perky and popular—everything I was not. She was dating my brother, a medical school student, while I had never been on a date. I just knew her life would be a fairy tale with a happily-ever-after ending.

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To Chemotherapy–Or Not!

I had breast cancer twice. My first time I made an educated choice not to start aromatase inhibitors (AIs). With early stage premenopausal cancer, overall survival rates were the same, on or off AIs. (There is 13% increased chance of reoccurrence off AIs). I chose survival rates and lifestyle. I am very active and wanted to avoid muscle and joint aches, osteoporosis and possible diabetes.  
I felt like I was in Vegas, spinning in Russian Roulette. I chose the wrong number and lost. Two years later, I grew another breast cancer on the same side, in breast tissue remaining after my mastectomy. Now there were two metastases in axillary lymph nodes. My survival rates markedly declined. I had difficult choices to try to improve my odds. 
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An Editor’s Invitation: Making Assumptions

As a physician, I make assumptions all the time.
When a child or teenager presents to me with chest pain, I assume that the pain is not being caused by heart disease–the thing that they or their parent are most worried about.
Yes, I do my due diligence to confirm that assumption. But that snap judgment occurs as quickly as the words “chest pain” are out of a youngster’s mouth.
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Reflections on Ageism

As a pre-med student, I volunteered in the emergency department of a local hospital, and I also worked as a personal trainer for MacWheelers, an exercise program for adults with spinal cord injury. Looking back, I now realize how often I made wrong assumptions about elderly patients I cared for. I assumed they were too weak and fragile for simple tasks. As a personal trainer, I was overly restrictive on which equipment they could use and the types of movements they could safely perform.

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Corporality

My first memory is of me asking my mother about the man trapped behind the glass of the picture frame that lived amongst the gods in my grandmother’s temple. I learned that he was my grandfather, and that he stopped breathing to go to a better place. I didn’t understand why he didn’t love my grandmother enough to take her along.
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