fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

The Playground

I stand squinting in the sun as the kids parade off the buses. Quickly, the campgrounds fill with smiling faces, colorful t-shirts and baseball caps. From afar, there seems to be no difference between this place and any other summer camp.

However, underneath many of the t-shirts are chemotherapy ports and surgical scars, below the hats are bald heads and behind the smiles are fears, memories and young lives impacted by cancer. Yet walking through the camp’s rainbow-adorned gates, I lead the children into a world of hope. A place without needles, hospital beds, pain or isolation, a place where they can be free. Free of IV poles, free of worries, free of the stares of strangers, free of the word “cancer.”

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Leaving a Little Sparkle Everywhere I Go

“You have glitter on your face,” my grandmother reminded me for the tenth time that afternoon. Though she was relatively early in the Alzheimer’s process, to us it seemed that she was losing something every single day, and today it appeared to be her short term memory.
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Seeing Patients for the First Time

 
I wish I could see his eyes, hidden beneath a pair of shades. A tweed cap, or as I like to think of it, the “grandpa cap,” covers his head. With his hands resting on a cane, he leans his back against the chair.
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Music Fills the Soul

Over the years I had come to dread this weekly chore and today, as always, it filled me with such sadness. Tuesdays, on my day off from work, I would drive to the nursing home to visit my mother. There were times when Mom would look at me with her crystal clear blue eyes and say, “Do you know when Beth is coming?” “I AM Beth,” I would exclaim, over and over again when Mom asked me the same question until finally, one day I answered, “Beth is coming to see you soon.” Mom’s face lit up and she smiled.

As time passed, she didn’t ask for me at all.

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Monkey Magic

 
Although I was an unpopular adolescent–never invited to parties, never asked on a date–I still had dreams. I wanted to become a teacher, a wife, a mother. Then a medical issue threatened my mother dream and, possibly, my wife one as well.

Shortly after I graduated from high school and a few days after I turned eighteen on August 8, 1965, I entered the hospital for surgery. A chronic pain on the left side of my abdomen had intensified, making it impossible for me to leave my bed.

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When You Don’t Know What to Hope For

 
My mother lies quietly in the hospital bed that has replaced her regular bed, now that she can no longer get up on her own. Every day she stares at the TV, appearing to watch it with interest. When I come into her room, she smiles and tries to say hello–in a voice that is barely a whisper. Her eyes sparkle a little. In my own discomfort, I begin asking simple questions, hoping to elicit a simple answer. She stares at me, then she stares above me, looking intently at the ceiling.
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Optimism

“You will get better,” the physician told my brother. My brother was younger than I am now when he was diagnosed with multiple myeloma. I don’t think even he believed the doctor, or he wouldn’t have asked me to take care of everything. 

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