fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

My Hardest Words

My father exhibited some goofy language errors during a phone conversation, substituting sound-alike words two to three times over a ten-minute period. I called my brother, and we made a seventy-minute drive to take him to the emergency room. The resident physician suspected a stroke, and Dad went for an MRI. Stroke seemed like a pipedream as his symptoms were not clear. The MRI came back, and the resident back-pedaled as the new findings looked more like tumor than stroke. I confirmed what part of the brain was involved, his risk for seizure, and the follow-up treatment plan.

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The In-Between

In that space between the knowing and the not knowing, that mezzanine containing neither a safe room nor a hall of horrors, within that space the fear took on a life of its own.

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Self Treatment

His broad, open smile met me as I walked into the exam room. I noticed his feet didn’t quite reach the floor, and he was wearing sandals. His feet were wide and squarish, the type of feet one would get from going barefoot their entire life. The type of feet my yoga teacher always asked us to emulate with toes spread wide and space between each digit.

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There Wasn’t a Biopsy

During dinner with an oncologist friend, she noticed a lump at the front of my neck. “Likely a thyroid cyst,” she said, “nothing to worry about,” and explained that an ultrasound would differentiate a cystic from a solid lesion.

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Positive

Thirty-two years ago, I was the mom of a toddler and a baby. I’d found a spot above my left eyebrow that hadn’t healed and that was itchy. I went to a dermatologist (that’s another story) and had a biopsy. A couple of weeks later, a message was left on my answering machine: The biopsy was positive; the lesion was skin cancer.

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Waiting

A good imagination can be an asset but also a liability. I first discovered that fact in 1974, when I found a lump on my left breast. Three more lumps—another on my left breast and two on my right—reinforced my belief that my creative mind could be my most formidable foe.

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March More Voices: The Biopsy

Dear Readers,

My dear, departed prostate was the cause–and the victim–of several biopsies.

Before the first one, I consulted with friends and family members. Turns out that a surprising number of men over fifty have had prostate biopsies–who knew? (Men don’t talk about this much.)

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Committed to My Dad’s Comfort

When the phone rang at 4:30 a.m., my heart raced, expecting bad news from dad’s assisted-care facility. Instead, I heard the stammer and slow, almost indecipherable words of my father, “Rozzie, I’m so cold. Can you come and help me?”

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The Icy-Cold Patient at the Curb

One Friday night, a petite African-American woman approached the ER triage desk.

Voice quivering, “You gotta come get my brother.”

“What’s . .  .?” But she’d walked away. I followed her outside with a wheelchair, and she pointed to a blue VW bug.

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COVID in 2024

I still remember the days of peak pandemic when everyone was stocking up on masks, toilet paper and even hand sanitizer. Back then, all patients wore masks, physicians gowned up, and loved ones couldn’t see their family members in the hospital. So many things have changed, with more patients being vaccinated, visiting hours loosened, and rarely do I reach for an N95. Even if I do reach for N95s, I can throw them away after one use without worrying that the hospital will run out of supplies.

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The Greatest Health Care System in the World

One might reasonably assume that diabetes testing supplies could be simply obtained. Continuous glucose monitoring (CGM) eliminates fingersticks and enables more precise knowledge of sugar levels. Recently insurance denied coverage of CGM supplies for a patient I see. My patient’s blood sugars were higher than last year. My patient was upset about their elevated blood sugars AND their lack of glucose monitoring supplies. I pressed the pharmacy to learn the reason for the denial. Insurance would not cover CGM because the patient’s diabetes control had worsened, which indicated that the CGM did not help lower their blood sugars.

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I Will Never Forget

I will never forget the doctor my husband, Ralph, and I met with after Ralph had routine bloodwork that revealed an elevated white cell count. Dr. R glanced at the folder on his desk, pushed his glasses up on his nose, and said, “You have acute myelogenous leukemia. Your type is especially difficult to cure.”

Ralph sat stoically, eyes fastened on the framed diplomas on the wall.

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