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Guinness

Linda E. Clarke

Once upon a long eighteen years ago, I got sick.

I was just finishing ten years of hospital-based ethics work, and at first I thought that the work had made me sick. I thought that the stress of hearing so many difficult stories, of witnessing so much suffering, was hurting me. I was wrong.

I was sick from a growth in my brain.

The growth was found after I’d shuttled from doctor to doctor, from appointment to appointment, from X-ray to scan. It took a long year. By then, my pain was clothed in shame. Undiagnosed pain does that: It draws the gaze of friends, family and providers. Everyone looks for the cause.

“Soul pain,” said one

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