fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Sick of Being Sick

Ryan Nesbit ~

From second through fifth grade, I mastered the art of being sick. I got out of school, soccer practice and piano lessons so that I could be the child I wanted to be–not sick, but loved, cared for.

Here was my recipe:

1. Wake up.
2. Feel anxious about the day to come (this was natural).
3. Let the anxiety morph into a sickly pallor.

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A Survival Guide to Chemo and Radiation


Lynn Lazos ~

Chemotherapy and radiation are not pleasant experiences, but knowing how to handle them can make your life a whole lot easier.

I had my first mammogram at age thirty-five, and for the next thirty-five years I had mammograms regularly. On my way, I’d pass the entrance to the Thomas Johns Cancer Hospital, outside of Richmond, VA, never thinking that I’d one day cross that threshold myself.

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Christmas Story

Ned Towle ~

Christmas Day 2012

This Christmas is different. My wife and I are spending the day alone, as our two children and four grandchildren came over yesterday for the big celebration.

It’s 10:00 in the morning. I have just completed a nine-mile run and am sitting on the living-room floor. My wife, Linda, is on the sofa with her computer.

I feel unusually tired; rather than take a shower, I want to climb into bed.

After all, I did just run nine miles, I tell myself.

My lungs are sore, but running for an hour and twenty-five minutes in thirty-six-degree weather seems a good reason for that. My right arm is numb and my right hand cold,

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First Combat, Then Conversation

 
2010: I’m a 25-year-old premedical student, an herbalist and a volunteer at a free clinic. I’m experiencing unaccountable fatigue, achiness, brain fog and dizziness. After a series of medical evaluations, I receive a dreaded diagnosis–Lyme disease, the same infection that crippled my mother, that I now feel twisting my body and contorting my mind. I am infected with terror.
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No Laughing Matter

 
“You need a fifth surgery,” the maxillofacial surgeon tells me. “Heterotopic bone is again growing over your prosthetic device.”

For eight years I have endured intense pain in my left jaw. While having four surgeries, I have also undergone Botox treatment, acupuncture and physical therapy; taken a variety of medications prescribed by pain doctors, neurologists and my primary care physician; and used specially made creams, ice and heat on the affected area. Nothing has worked.

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A Call In The Night

I married him in-between tours of Vietnam as a Navy junior officer, and even though we divorced after eight years, we stayed in touch and saw each other over the years.

When he emailed two years ago to say he’d been diagnosed with esophogeal cancer, I was concerned. But after radiation and an operation he wrote that his first two scans were good, and the doctors were hopeful. He was always a strong man and had been healthy, so I relaxed my fear somewhat.

When I wrote him a few months later, his reply was strange. He just said, “A lot is going on here,” and didn’t sign the note. He still worked as a lawyer, so I thought he was doing well and busy

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It Changed My Life Forever

 
Today is the first “back to work” day of the new year. Twenty-six years ago today, I got my HIV positive diagnosis. I’d had my blood tested prior to a vacation in Palm Springs, and my first appointment of the year was with my physician. He didn’t hem or haw or mince words–told me straight out. I was stunned but stoic. In my heart, I had expected it. I had been a sexually active gay man in New York in the 1970s and 80s; more than a dozen close friends were dead from AIDS.
 

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Monkey Magic

 
Although I was an unpopular adolescent–never invited to parties, never asked on a date–I still had dreams. I wanted to become a teacher, a wife, a mother. Then a medical issue threatened my mother dream and, possibly, my wife one as well.

Shortly after I graduated from high school and a few days after I turned eighteen on August 8, 1965, I entered the hospital for surgery. A chronic pain on the left side of my abdomen had intensified, making it impossible for me to leave my bed.

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Nothing Left Unexposed

“Use the room over there,” she said, pointing towards the closed door to my right and handing me a clear, plastic cup with blue-twist top. “When you’re done, open the slot behind you, place the sample and close the slot door.”

It’s opening day at my cancer hospital. First peek into my innards is a urine sample, checking for protein. Too much excreted protein may signal kidney disease, a death knell to my upcoming cancer treatment. Which would in turn mean a death knell for me. The urine sample will be followed by a needlestick into one of my veins to fill an endless line of blood tubes. Some will be used to check routine blood labs. The rest will be mailed

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It’s Only One IV

I was lying in the preop area, waiting to be taken in for abdominal surgery, when a nurse came along with a bag of liquid and hung it from my IV pole.

“What’s that?” I asked.

“It’s an antibiotic,” she replied.

“I’m not scheduled to get an antibiotic,” I said.

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Pain

Ronna Edelstein

When my friend Madeline turned seventy, she celebrated in a big way: She walked a half-marathon; she hosted a cabaret for family and friends at which she sang and told stories; she traveled to China. Now, six years later, this dynamic woman has become a virtual prisoner in her apartment. She has undergone back surgery, suffered a nearly fatal intestinal infection and, after a fall, had bolts and screws placed in her hip. Her voice, which once broadcast her energy and joie de vivre, has dwindled to a whisper.

The thread that links all of these bodily assaults is pain. Chronic, intense pain has drained away my friend’s energy and quality of life. No doctor has definitively diagnosed the source of

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Chemo Brain

Rick Monteith

One weekend about nine-and-a-half years ago, I flew from Minneapolis, where I live, to Atlanta for a publishing conference. A colleague and I were to make a presentation to the vice-president of one of our major customers.

For a couple of weeks I’d been plagued by a sore throat, but I’d written it off as allergies or a virus. When I tried to begin the presentation, though, all that came out was a squeak. The VP was very sympathetic, and fortunately my colleague was able to handle the meeting.

I flew home that afternoon. The next morning, I saw my primary-care physician, who referred me to a radiologist for a CT scan that very day.

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