For eight years I have endured intense pain in my left jaw. While having four surgeries, I have also undergone Botox treatment, acupuncture and physical therapy; taken a variety of medications prescribed by pain doctors, neurologists and my primary care physician; and used specially made creams, ice and heat on the affected area. Nothing has worked.
Shortly after I graduated from high school and a few days after I turned eighteen on August 8, 1965, I entered the hospital for surgery. A chronic pain on the left side of my abdomen had intensified, making it impossible for me to leave my bed.
“Use the room over there,” she said, pointing towards the closed door to my right and handing me a clear, plastic cup with blue-twist top. “When you’re done, open the slot behind you, place the sample and close the slot door.”
It’s opening day at my cancer hospital. First peek into my innards is a urine sample, checking for protein. Too much excreted protein may signal kidney disease, a death knell to my upcoming cancer treatment. Which would in turn mean a death knell for me. The urine sample will be followed by a needlestick into one of my veins to fill an endless line of blood tubes. Some will be used to check routine blood labs. The rest will be mailed
I was lying in the preop area, waiting to be taken in for abdominal surgery, when a nurse came along with a bag of liquid and hung it from my IV pole.
“What’s that?” I asked.
“It’s an antibiotic,” she replied.
“I’m not scheduled to get an antibiotic,” I said.
Ronna Edelstein
When my friend Madeline turned seventy, she celebrated in a big way: She walked a half-marathon; she hosted a cabaret for family and friends at which she sang and told stories; she traveled to China. Now, six years later, this dynamic woman has become a virtual prisoner in her apartment. She has undergone back surgery, suffered a nearly fatal intestinal infection and, after a fall, had bolts and screws placed in her hip. Her voice, which once broadcast her energy and joie de vivre, has dwindled to a whisper.
The thread that links all of these bodily assaults is pain. Chronic, intense pain has drained away my friend’s energy and quality of life. No doctor has definitively diagnosed the source of
Rick Monteith
One weekend about nine-and-a-half years ago, I flew from Minneapolis, where I live, to Atlanta for a publishing conference. A colleague and I were to make a presentation to the vice-president of one of our major customers.
For a couple of weeks I’d been plagued by a sore throat, but I’d written it off as allergies or a virus. When I tried to begin the presentation, though, all that came out was a squeak. The VP was very sympathetic, and fortunately my colleague was able to handle the meeting.
I flew home that afternoon. The next morning, I saw my primary-care physician, who referred me to a radiologist for a CT scan that very day.
Heidi Johnson-Wright
When I was nine years old, I was diagnosed with juvenile rheumatoid arthritis, an autoimmune disorder that triggers an inflammatory response of the joints, causing swelling, stiffness and severe pain. The disease sped through my body like wildfire.
By the time I was fifteen, my hip joints were utterly ruined. Just getting out of bed was a slow, carefully choreographed sequence of movements, with frequent pauses to allow the pain to subside. When I walked, my hips emitted sickening crunching sounds, bone grinding on bone.
I kept denying how bad my hips were, because I knew that the only solution was joint-replacement surgery. The thought of having my joints sawed through and torn away, and then having metal replacements hammered
Sandra Shea
I’m no stranger to dealing with the medical world and its billing systems. I’m a triple cancer survivor, had knee surgery in 2012 and now have ulcerative colitis. All told, I’ve had eleven surgeries and fourteen colonoscopies. Paperwork is practically my middle name.
But the last twenty-four hours have been ridiculous.
In that time, I’ve had three different encounters with healthcare billing–each absurd in its own way, and each more challenging than the last. Things got to where I almost had to laugh. And if almost $10,000 of my money hadn’t been at stake, I would have.
Yesterday morning and early afternoon were punctuated by the following events:
Michael Carbine
Dr. Peterson, the radiation oncologist, gets right to the point.
“The medical center’s tumor board has concluded that your cancer is inoperable, incurable and untreatable,” he says flatly. “Any chemotherapy or radiation treatments would be palliative in nature.”
He begins explaining the reasons behind the board’s verdict, but everything he’s saying washes out. My mind stopped working as soon as I heard the words “incurable” and “palliative.” I am sliding into shock.
Dr. Peterson pauses.
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