fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: parent stories

In the Pediatric Ward

In this forest of tubes and bottles,
Children wander in sleep.
A dying bird drops
From the corner of my eye.
The night nurse floats through paths
Tending the rooted tubes,
Weighing the pause between breaths.
In the dark, a man’s voice
Stuns like a hunter’s gun.
We wait for dawn.

Last night we cried–four worn children
Facing their walls, and I,
Handing out animal crackers.
Willow’s bones are flaking
John’s eye refuses light
Paige’s ears close up and
Something is eating the soft parts of
Adam’s knee.
We know these things and we cry.

The children force the beds to do acrobatic tricks.
They’ve

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Counting Cards

Alexandra Godfrey

Once again, I see a still heart. As I stare at the fetal monitor, I search for signs of life. The screen flickers; my son’s heart does not.

The last time I saw him, he looked happy–content in his life-bubble. As he turned somersaults, he waved at me. I had thought he was saying hello, but I realize now that he was waving goodbye.

Soon I must deliver his still form into the world. My labor will be difficult–his cries exchanged for my tears; his body, small and membranous, fitting into my one hand.

This is not what I had envisioned. I had dreamt of my son’s vitality, not his mortality. I contemplate the suffering–is there no way to tally up the trauma?

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First Night Call

Abby Caplin

During my first night on call as an intern, I felt scared. Not just scared–terrified. I was serving on the medical center’s pediatric oncology floor, and medical school hadn’t prepared me for children with cancer. What did I know about cutting-edge chemotherapy regimens? What if a child suddenly developed an overwhelming infection or a seizure triggered by a tumor? Someone would expect me to know what to do.

“It’s okay,” said Brad, the second-year resident. “The nurses do everything. You just treat the kids’ hypertension.”

“How?” I asked.

“Hydralazine,” he answered, glancing at his watch. He looked tired and ready to split. “Ten to twenty milligrams IV every four hours.” When I looked up from my hasty scribbling, he was gone. I was

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Ripped From the Headlights

Maureen Picard Robins

“Get a notebook,” he said. 

Dr. Altman and I stood face to face on the pediatric surgical floor of Columbia-Presbyterian Babies & Children’s Hospital. It was the first week in December. A metal crib–it seemed more like a cage or prison–separated us. In this center space lay my yellow heart: my eight-week-old daughter, wounded by surgery, dulled by morphine, our whispers flying over her.

It had been nearly twenty-four hours since Dr. Altman opened the baby’s abdomen and held her tiny intestines in his hands, untwisting them like a fisherman untangling his line; nearly one day since he’d performed a Kasai procedure, fashioning a conduit so that bile could tremble down to her small intestine; one thousand four hundred and forty minutes

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