fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Assaulted by “Health Care”

Sandra Shea

I’m no stranger to dealing with the medical world and its billing systems. I’m a triple cancer survivor, had knee surgery in 2012 and now have ulcerative colitis. All told, I’ve had eleven surgeries and fourteen colonoscopies. Paperwork is practically my middle name.

But the last twenty-four hours have been ridiculous.

In that time, I’ve had three different encounters with healthcare billing–each absurd in its own way, and each more challenging than the last. Things got to where I almost had to laugh. And if almost $10,000 of my money hadn’t been at stake, I would have.

Yesterday morning and early afternoon were punctuated by the following events:

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Two Timelines

Timeline One

Day 1: For over thirty-five years my strong, spirited spouse, Carlo, served around the world in the Air Force. Now retired from the military, he still serves at the air base as a civilian security police officer.

His neck hurts. A lot. He blames the pain on the unbalanced weight of the bulletproof vest that Uncle Sam added last year to the uniform he proudly wears every day.

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Imagine

Linda Koebner 

“Her vitals are fine,” the nurse told Besarta’s mother during a rare visit to the family’s basement apartment in the Bronx.

Besarta’s mind is also fine–sharp and clear. She asked me to use her real name in this story.

Her twenty-five-year-old face is beautiful and flawless, despite the howls of frustration, rage and pain she directs at her family, at fate and especially at Friedreich’s ataxia, the disease that controls her.

When I come for our weekly visit, Besarta’s blue-green eyes smile at me from where she sits in her wheelchair. Then her head suddenly wobbles sideways. Her face smashes against the chair’s headrest–first the right side, then the left.

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Saving My Appendix

Andrew T. Gray

The doctor was adamant. “This is America, not Sweden,” he told me. “We operate.” 

How did this happen to me? I wondered, looking at him across the ER exam room. How could I, a healthcare provider, not have insurance? 

I had woken up that morning with a mildly upset stomach. Nonetheless, I’d gone to my job (begun only six weeks earlier) as a physician assistant at a Beverly Hills HIV clinic. I’d seen patients until lunchtime, then attended a research meeting. The subject was a study of irritable bowel syndrome. 

“I need to be in this study,” I joked to a coworker. “My IBS is acting up.” 

I don’t have IBS, but I was indeed having crampy stomach pain. I continued to see patients

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A Greater Truth

Nancy Elder

Should someone have to lie to get care? For millions of uninsured Americans, finding a way to receive health care is a challenge. In my practice, I’ve been seeing more and more of the following:

“Where have you been living lately?” I ask my third patient of the morning, a heavy-set, forty-nine-year-old man with dark, weathered skin and rough hands.

“I’ve been staying with my friend,” comes the casual reply

“How long have you been staying there?” I continue.

“You know, for a while.” His tone is a bit guarded.

“How long is ‘a while’?” I am wary now.

“You know, a bit of time.” I can

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Finding a Way Home

Erin Imler

Preparing to assemble my new bed, I open the wordless instruction manual. The first page shows a picture of a single stick-figure standing there, hands on hips, and sadly regarding a bungled, not-put-together bed; the next image is two happy-looking stick-figures standing with their arms around each others’ shoulders, looking at a successfully constructed bed.
Despite the warning, I’m determined to do this by myself. For almost four years, I’ve slept on my couch, preferring it to my twenty-year-old mattress. Now that I’m starting a new job in a new city, it’s finally time for a new bed.

James and Bob

Paul Rousseau

I think his name was James, but I can’t remember for sure. What I do remember is the day’s heat, the metal cart and a rust-colored dog. 

Like many homeless people, James carried his belongings in a grocery cart–a sort of mobile home for the homeless, but without the protection of a roof, the support of four walls or the security of a front door.

I’d just walked out of the local Safeway store into its parking lot. He ambled over from a park across the street. His eyes were narrow, his face tanned and his clothes dirty brown from weeks of sleeping in the streets.

Being a dog lover, I found my eyes drawn to the dog–a mixed breed with matted hair,

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Halloween Horrors

Paul Gross

One October evening last year, I went to our local pharmacy to pick up a prescription for my daughter. I made sure to bring Cara’s insurance card because my employer had switched us to a new health plan.

I wasn’t sorry about the change. Our prior plan had been operated by incompetents–although they might only have been crooks, I couldn’t be sure–who also managed our flexible spending accounts. These accounts, you may recall, collect pre-tax income from your pay and then return it to you to pay for out-of-pocket medical expenses.

With that plan, nothing ever worked as advertised. I would submit a dental bill for reimbursement and the company would review it for three months before sending me a denial notice, stating

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A Brush With the Beast

It all begins one Sunday morning when Mrs. Morris, a 75-year-old retiree with a heart condition, trips on her way out of church. She falls flat on the sidewalk, can’t get up, and ends up in our Bronx emergency room. A CT scan shows a pelvic fracture, and she’s admitted to our inpatient team.

When I join the family medicine residents to see Mrs. Morris the following day, she can’t get out of bed. She’s got short, unruly white hair and a gee-whiz expression that charms us. “What a pain!” she says. Given how close she lives to the brink–terrible circulation has cost her one heart attack and several toe amputations–I’m impressed with her good cheer.

Things looks promising. Follow-up studies confirm that the

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